Skip to main content
Erschienen in: Quality of Life Research 6/2014

01.08.2014

Concept Analysis of the Patient Reported Outcomes Measurement Information System (PROMIS®) and the International Classification of Functioning, Disability and Health (ICF)

verfasst von: Carole A. Tucker, Alarcos Cieza, Anne W. Riley, Gerold Stucki, Jin Shei Lai, T. Bedirhan Ustun, Nenad Kostanjsek, William Riley, David Cella, Christopher B. Forrest

Erschienen in: Quality of Life Research | Ausgabe 6/2014

Einloggen

Aktivieren Sie unsere intelligente Suche, um passende Fachinhalte oder Patente zu finden.

search-config
loading …

Abstract

Purpose

The Patient Reported Outcomes Measurement Information System (PROMIS ® ) is a US National Institutes of Health initiative that has produced self-report outcome measures, using a framework of physical, mental, and social health defined by the World Health Organization in 1948 (WHO, in Preamble to the Constitution of the World Health Organization as adopted by the International Health Conference, New York, 1948). The World Health Organization’s International Classification of Functioning, Disability and Health (ICF) is a comprehensive classification system of health and health-related domains that was put forward in 2001. The purpose of this report is to compare and contrast PROMIS and ICF conceptual frameworks to support mapping of PROMIS instruments to the ICF classification system .

Methods

We assessed the objectives and the classification schema of the PROMIS and ICF frameworks, followed by content analysis to determine whether PROMIS domain and sub-domain level health concepts can be linked to the ICF classification.

Results

Both PROMIS and ICF are relevant to all individuals, irrespective of the presence of health conditions, person characteristics, or environmental factors in which persons live. PROMIS measures are intended to assess a person’s experiences of his or her health, functional status, and well-being in multiple domains across physical, mental, and social dimensions. The ICF comprehensively describes human functioning from a biological, individual, and social perspective. The ICF supports classification of health and health-related states such as functioning, but is not a specific measure or assessment of health, per se. PROMIS domains and sub-domain concepts can be meaningfully mapped to ICF concepts.

Conclusions

Theoretical and conceptual similarities support the use of PROMIS instruments to operationalize self-reported measurement for many body function, activity and participation ICF concepts, as well as several environmental factor concepts. Differences observed in PROMIS and ICF conceptual frameworks provide a stimulus for future research and development.

Sie haben noch keine Lizenz? Dann Informieren Sie sich jetzt über unsere Produkte:

Springer Professional "Wirtschaft+Technik"

Online-Abonnement

Mit Springer Professional "Wirtschaft+Technik" erhalten Sie Zugriff auf:

  • über 102.000 Bücher
  • über 537 Zeitschriften

aus folgenden Fachgebieten:

  • Automobil + Motoren
  • Bauwesen + Immobilien
  • Business IT + Informatik
  • Elektrotechnik + Elektronik
  • Energie + Nachhaltigkeit
  • Finance + Banking
  • Management + Führung
  • Marketing + Vertrieb
  • Maschinenbau + Werkstoffe
  • Versicherung + Risiko

Jetzt Wissensvorsprung sichern!

Springer Professional "Wirtschaft"

Online-Abonnement

Mit Springer Professional "Wirtschaft" erhalten Sie Zugriff auf:

  • über 67.000 Bücher
  • über 340 Zeitschriften

aus folgenden Fachgebieten:

  • Bauwesen + Immobilien
  • Business IT + Informatik
  • Finance + Banking
  • Management + Führung
  • Marketing + Vertrieb
  • Versicherung + Risiko




Jetzt Wissensvorsprung sichern!

Literatur
1.
Zurück zum Zitat WHO (1948). Preamble to the Constitution of the World Health Organization as adopted by the International Health Conference, New York, 19–22 June 1946, and entered into force on 7 April 1948. WHO (1948). Preamble to the Constitution of the World Health Organization as adopted by the International Health Conference, New York, 19–22 June 1946, and entered into force on 7 April 1948.
2.
Zurück zum Zitat Üstün, B., & Jakob, R. (2005). Calling a spade a spade: Meaningful definitions of health conditions. Bulletin of the World Health Organization, 83, 802.PubMedCentralPubMed Üstün, B., & Jakob, R. (2005). Calling a spade a spade: Meaningful definitions of health conditions. Bulletin of the World Health Organization, 83, 802.PubMedCentralPubMed
3.
Zurück zum Zitat ICF (2001). International classification of functioning, disability and health. Geneva Switzerland: World Health Organization. ICF (2001). International classification of functioning, disability and health. Geneva Switzerland: World Health Organization.
4.
Zurück zum Zitat Ustun, T. B., Chatterji, S., Bickenbach, J., Kostanjsek, N., & Schneider, M. (2003). The international classification of functioning, disability and health: A new tool for understanding disability and health. Disability and Rehabilitation, 25(11–12), 565–571.PubMedCrossRef Ustun, T. B., Chatterji, S., Bickenbach, J., Kostanjsek, N., & Schneider, M. (2003). The international classification of functioning, disability and health: A new tool for understanding disability and health. Disability and Rehabilitation, 25(11–12), 565–571.PubMedCrossRef
5.
Zurück zum Zitat Cieza, A., Geyh, S., Chatterji, S., Kostanjsek, N., Ustün, B., & Stucki, G. (2005). ICF linking rules: An update based on lessons learned. Journal of Rehabilitation Medicine, 37, 212–218.PubMedCrossRef Cieza, A., Geyh, S., Chatterji, S., Kostanjsek, N., Ustün, B., & Stucki, G. (2005). ICF linking rules: An update based on lessons learned. Journal of Rehabilitation Medicine, 37, 212–218.PubMedCrossRef
6.
Zurück zum Zitat Geyh, S., Cieza, A., Kolleris, B., Grimby, G., & Stucki, G. (2007). Content comparison of health-related quality of life measures used in stroke based on the international classification of functioning, disability and health (ICF): A systematic review. Quality of Life Research, 16(5), 833–851.PubMedCrossRef Geyh, S., Cieza, A., Kolleris, B., Grimby, G., & Stucki, G. (2007). Content comparison of health-related quality of life measures used in stroke based on the international classification of functioning, disability and health (ICF): A systematic review. Quality of Life Research, 16(5), 833–851.PubMedCrossRef
7.
Zurück zum Zitat Riley, W. T., Rothrock, N., Bruce, B., et al. (2010). Patient-reported outcomes measurement information system (PROMIS) domain names and definitions revisions: Further evaluation of content validity in IRT-derived item banks. Quality of Life Research, 19(9), 1311–1321.PubMedCentralPubMedCrossRef Riley, W. T., Rothrock, N., Bruce, B., et al. (2010). Patient-reported outcomes measurement information system (PROMIS) domain names and definitions revisions: Further evaluation of content validity in IRT-derived item banks. Quality of Life Research, 19(9), 1311–1321.PubMedCentralPubMedCrossRef
8.
Zurück zum Zitat Cella, D., Yount, S., Rothrock, N., et al. (2007). The Patient-Reported Outcomes Measurement Information System (PROMIS): progress of an NIH Roadmap cooperative group during its first two years. Medical Care, 45(5 Suppl 1), S3–S11.PubMedCentralPubMedCrossRef Cella, D., Yount, S., Rothrock, N., et al. (2007). The Patient-Reported Outcomes Measurement Information System (PROMIS): progress of an NIH Roadmap cooperative group during its first two years. Medical Care, 45(5 Suppl 1), S3–S11.PubMedCentralPubMedCrossRef
9.
11.
Zurück zum Zitat Carle, A. C., Cella, D., Cai, L., Choi, S. W., Crane, P. K., Curtis, S. M., et al. (2011). Advancing PROMIS’s methodology: Results of the third Patient-Reported Outcomes Measurement Information System (PROMIS(®)) Psychometric Summit. Expert Rev Pharmacoecon Outcomes Res, 11(6), 677-84. doi: 10.1586/erp.11.74. Carle, A. C., Cella, D., Cai, L., Choi, S. W., Crane, P. K., Curtis, S. M., et al. (2011). Advancing PROMIS’s methodology: Results of the third Patient-Reported Outcomes Measurement Information System (PROMIS(®)) Psychometric Summit. Expert Rev Pharmacoecon Outcomes Res, 11(6), 677-84. doi: 10.​1586/​erp.​11.​74.
12.
Zurück zum Zitat Oberhauser, C., Escorpizo, R., Boonen, A., Stucki, G., & Cieza, A. (2012). A statistical validation of the Brief ICF Core Set for osteoarthritis based on a large international sample of patients with osteoarthritis. Arthritis Care Res (Hoboken). 2012 Jun 28. doi: 10.1002/acr.21775. Oberhauser, C., Escorpizo, R., Boonen, A., Stucki, G., & Cieza, A. (2012). A statistical validation of the Brief ICF Core Set for osteoarthritis based on a large international sample of patients with osteoarthritis. Arthritis Care Res (Hoboken). 2012 Jun 28. doi: 10.​1002/​acr.​21775.
13.
Zurück zum Zitat Kus, S., Oberhauser, C., Cieza, A. (2012). Validation of the brief International Classification of Functioning, Disability, and Health (ICF) core set for hand conditions. Journal of Hand Therapy, 25(3), 274–286; quiz 287. doi: 10.1016/j.jht.2012.02.003. Kus, S., Oberhauser, C., Cieza, A. (2012). Validation of the brief International Classification of Functioning, Disability, and Health (ICF) core set for hand conditions. Journal of Hand Therapy, 25(3), 274–286; quiz 287. doi: 10.​1016/​j.​jht.​2012.​02.​003.
14.
Zurück zum Zitat Glocker, C., Kirchberger, I., Glaessel, A., Fincziczki, A., Stucki, G., & Cieza, A. (2012). Content validity of the comprehensive international classification of functioning, disability and health (ICF) core set for low back pain from the perspective of physicians: a Delphi survey. Chronic Illness. [Epub ahead of print] PubMed PMID: 22689356. Glocker, C., Kirchberger, I., Glaessel, A., Fincziczki, A., Stucki, G., & Cieza, A. (2012). Content validity of the comprehensive international classification of functioning, disability and health (ICF) core set for low back pain from the perspective of physicians: a Delphi survey. Chronic Illness. [Epub ahead of print] PubMed PMID: 22689356.
15.
Zurück zum Zitat Cieza, A., Brockow, T., Ewert, T., et al. (2002). Linking health-status measurements to the international classification of functioning, disability and health. Journal of Rehabilitation Medicine, 34, 205–210.PubMedCrossRef Cieza, A., Brockow, T., Ewert, T., et al. (2002). Linking health-status measurements to the international classification of functioning, disability and health. Journal of Rehabilitation Medicine, 34, 205–210.PubMedCrossRef
16.
Zurück zum Zitat Ghazvinian, A., Noy, N. F., & Musen, M. A. (2009). Creating mappings for ontologies in biomedicine: Simple methods work. In AMIA annual symposium (AMIA 2009), San Francisco, CA. Ghazvinian, A., Noy, N. F., & Musen, M. A. (2009). Creating mappings for ontologies in biomedicine: Simple methods work. In AMIA annual symposium (AMIA 2009), San Francisco, CA.
17.
Zurück zum Zitat Tucker, C.A., Escorpizo, R., Cieza, A., Lai, J. S., Stucki, G., Ustun, T.B., et al. (2013). Describing the Content of the Patient Reported Outcomes Measurement Information System (PROMIS®) Using the International Classification of Functioning, Health and Disability (in review 12/2013). Tucker, C.A., Escorpizo, R., Cieza, A., Lai, J. S., Stucki, G., Ustun, T.B., et al. (2013). Describing the Content of the Patient Reported Outcomes Measurement Information System (PROMIS®) Using the International Classification of Functioning, Health and Disability (in review 12/2013).
Metadaten
Titel
Concept Analysis of the Patient Reported Outcomes Measurement Information System (PROMIS®) and the International Classification of Functioning, Disability and Health (ICF)
verfasst von
Carole A. Tucker
Alarcos Cieza
Anne W. Riley
Gerold Stucki
Jin Shei Lai
T. Bedirhan Ustun
Nenad Kostanjsek
William Riley
David Cella
Christopher B. Forrest
Publikationsdatum
01.08.2014
Verlag
Springer International Publishing
Erschienen in
Quality of Life Research / Ausgabe 6/2014
Print ISSN: 0962-9343
Elektronische ISSN: 1573-2649
DOI
https://doi.org/10.1007/s11136-014-0622-y

Weitere Artikel der Ausgabe 6/2014

Quality of Life Research 6/2014 Zur Ausgabe