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2019 | OriginalPaper | Buchkapitel

6. Connections: The Power of Learning Together to Improve Healthcare in the United Kingdom

verfasst von : Rachel Matthews, Stuart Green, Rowan Myron, Catherine French, Susan Barber, Dionne Matthew, Sandra Jayacodi, Jenny Trite, Adrian Brown, Justin Baker, Howard Bluston, Ron Grant, Jean Straus, Richard M Ballerand, Maurice Hoffman, Fran Husson, Laura Fischer, Cherelle Augustine

Erschienen in: Patient Engagement

Verlag: Springer International Publishing

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Abstract

Patient, service user, health, and disability advocacy movements contribute to a stronger voice for patients in healthcare in the UK. The National Health Service, introduced in 1948, funded through general taxation, and free at the point of delivery, is less characterized by paternalism now than at its inception. Successive health reforms, policy directives, and legislation support increasing patient autonomy and choice. With the introduction of the internet, changes in technology, and the growth of social media, patient expectation and behaviour are shifting further towards active involvement in decision-making. Translating policy rhetoric and research evidence into meaningful patient and public involvement practice presents challenges to healthcare professionals and researchers. Co-designing opportunities to learn collaboratively offers ways to strengthen practice through the exchange of experiential knowledge and to generate emergent insight. This enhances relational skills that underpin quality improvement, research, and transformation. Patient and service users eloquently articulate the benefits of learning together and model attributes that are essential to improvement efforts.

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Literatur
Zurück zum Zitat Acheson, D. 1998. Inequalities in health: Report of an independent inquiry. Acheson Report, London. Acheson, D. 1998. Inequalities in health: Report of an independent inquiry. Acheson Report, London.
Zurück zum Zitat Argyris, C. 1982. The executive mind and double-loop learning. Organizational Dynamics 11 (2): 5–22.CrossRef Argyris, C. 1982. The executive mind and double-loop learning. Organizational Dynamics 11 (2): 5–22.CrossRef
Zurück zum Zitat Barkley, E.F., K.P. Cross, and C.H. Major. 2004. Collaborative learning techniques: A handbook for college faculty. San Francisco: Jossey-Bass. Barkley, E.F., K.P. Cross, and C.H. Major. 2004. Collaborative learning techniques: A handbook for college faculty. San Francisco: Jossey-Bass.
Zurück zum Zitat Barnes, M., and P. Cotterell, eds. 2012. Critical perspectives on user involvement. Bristol: Policy Press. Barnes, M., and P. Cotterell, eds. 2012. Critical perspectives on user involvement. Bristol: Policy Press.
Zurück zum Zitat Batalden, P. 2018. Getting more health from healthcare: Quality improvement must acknowledge patient coproduction—An essay by Paul Batalden. BMJ Clinical Research 362: k3617. Batalden, P. 2018. Getting more health from healthcare: Quality improvement must acknowledge patient coproduction—An essay by Paul Batalden. BMJ Clinical Research 362: k3617.
Zurück zum Zitat Beresford, P. 2019. Austerity is denying patients and care service users a voice. The Guardian. Beresford, P. 2019. Austerity is denying patients and care service users a voice. The Guardian.
Zurück zum Zitat Beresford, P., and F. Branfield. 2012. “Building solidarity, ensuring diversity: Lessons from service users’ and disabled people’s movements”, critical perspectives on user involvement. Bristol: Policy Press. Beresford, P., and F. Branfield. 2012. “Building solidarity, ensuring diversity: Lessons from service users’ and disabled people’s movements”, critical perspectives on user involvement. Bristol: Policy Press.
Zurück zum Zitat Black, D. (Chair). 1980. Report of the working group on inequalities in health. Black Report, London. Black, D. (Chair). 1980. Report of the working group on inequalities in health. Black Report, London.
Zurück zum Zitat Boivin, A., K. Currie, B. Fervers, J. Gracia, M. James, C. Marshall, C. Sakala, S. Sanger, J. Strid, V. Thomas, T. van der Weijden, R. Grol, and J. Burgers. 2010. Patient and public involvement in clinical guidelines: International experiences and future perspectives. Quality & Safety in Health Care 19 (5): e22. https://doi.org/10.1136/qshc.2009.034835.CrossRef Boivin, A., K. Currie, B. Fervers, J. Gracia, M. James, C. Marshall, C. Sakala, S. Sanger, J. Strid, V. Thomas, T. van der Weijden, R. Grol, and J. Burgers. 2010. Patient and public involvement in clinical guidelines: International experiences and future perspectives. Quality & Safety in Health Care 19 (5): e22. https://​doi.​org/​10.​1136/​qshc.​2009.​034835.CrossRef
Zurück zum Zitat Britto, M.T., S.C. Fuller, H.C. Kaplan, U. Kotagal, C. Lannon, P.A. Margolis, S.E. Muething, P.J. Schoettker, and M. Seid. 2018. Using a network organisational architecture to support the development of learning healthcare systems. BMJ Quality and Safety 27 (11): 937–946. https://doi.org/10.1136/bmjqs-2017-007219.CrossRef Britto, M.T., S.C. Fuller, H.C. Kaplan, U. Kotagal, C. Lannon, P.A. Margolis, S.E. Muething, P.J. Schoettker, and M. Seid. 2018. Using a network organisational architecture to support the development of learning healthcare systems. BMJ Quality and Safety 27 (11): 937–946. https://​doi.​org/​10.​1136/​bmjqs-2017-007219.CrossRef
Zurück zum Zitat Busari, J.O., F.M. Moll, and A.J. Duits. 2017. Understanding the impact of interprofessional collaboration on the quality of care: A case report from a small-scale resource limited health care environment. Journal of Multidisciplinary Healthcare 10: 227–234. https://doi.org/10.2147/jmdh.S140042.CrossRef Busari, J.O., F.M. Moll, and A.J. Duits. 2017. Understanding the impact of interprofessional collaboration on the quality of care: A case report from a small-scale resource limited health care environment. Journal of Multidisciplinary Healthcare 10: 227–234. https://​doi.​org/​10.​2147/​jmdh.​S140042.CrossRef
Zurück zum Zitat Chang, C.K., R.D. Hayes, G. Perera, M.T.M. Broadbent, A.C. Fernandes, W.E. Lee, M. Hotopf, and R. Stewart. 2011. Life expectancy at birth for people with serious mental illness and other major disorders from a secondary mental health care case register in London. PLoS One 6 (5): e19590. https://doi.org/10.1371/journal.pone.0019590.CrossRef Chang, C.K., R.D. Hayes, G. Perera, M.T.M. Broadbent, A.C. Fernandes, W.E. Lee, M. Hotopf, and R. Stewart. 2011. Life expectancy at birth for people with serious mental illness and other major disorders from a secondary mental health care case register in London. PLoS One 6 (5): e19590. https://​doi.​org/​10.​1371/​journal.​pone.​0019590.CrossRef
Zurück zum Zitat Chita, S., C. Mead, and M. Fernando. 2012. Long-term conditions: A few words on self-management. Health Service Journal 122 (6312): 28. Chita, S., C. Mead, and M. Fernando. 2012. Long-term conditions: A few words on self-management. Health Service Journal 122 (6312): 28.
Zurück zum Zitat Clarke, J., J. Waring, and S. Timmons. 2018. The challenge of inclusive coproduction: The importance of situated rituals and emotional inclusivity in the coproduction of health research projects. Social Policy & Administration 53 (2): 1–16. Clarke, J., J. Waring, and S. Timmons. 2018. The challenge of inclusive coproduction: The importance of situated rituals and emotional inclusivity in the coproduction of health research projects. Social Policy & Administration 53 (2): 1–16.
Zurück zum Zitat Cochrane, A.L. 1972. Effectiveness and efficiency: Random reflections on health services. London: Nuffield Provincial Hospitals Trust. Cochrane, A.L. 1972. Effectiveness and efficiency: Random reflections on health services. London: Nuffield Provincial Hospitals Trust.
Zurück zum Zitat Cooksey, D. 2006. A review of UK health research funding (Cooksey review). London: HMSO. Cooksey, D. 2006. A review of UK health research funding (Cooksey review). London: HMSO.
Zurück zum Zitat Coulter, A. 2001. The future. In Evidence-based patient choice, ed. A. Edwards and G.J. Elwyn. Oxford: Oxford University Press. Coulter, A. 2001. The future. In Evidence-based patient choice, ed. A. Edwards and G.J. Elwyn. Oxford: Oxford University Press.
Zurück zum Zitat ———. 2011. Engaging patients in healthcare. Maidenhead: Open University Press. ———. 2011. Engaging patients in healthcare. Maidenhead: Open University Press.
Zurück zum Zitat Department of Health. 1991. The patient’s charter. London. Department of Health. 1991. The patient’s charter. London.
Zurück zum Zitat ———. 2000. The NHS plan: A plan for investment, a plan for reform. London. ———. 2000. The NHS plan: A plan for investment, a plan for reform. London.
Zurück zum Zitat ———. 2009. The NHS constitution for England. London: HMSO. ———. 2009. The NHS constitution for England. London: HMSO.
Zurück zum Zitat Dixon-Woods, M. 2018. Improving quality and safety in health care. London: Harveian Oration 2018, Royal College of Physicians. Dixon-Woods, M. 2018. Improving quality and safety in health care. London: Harveian Oration 2018, Royal College of Physicians.
Zurück zum Zitat Faulkner, A., D. Crepaz-Keay, J. Kalathil, S. Yiannoullou, F. Singer, N. James, R. Griffiths, E. Perry, D. Forde, and J. Kallevik. 2015. Involvement for influence: 4Pi national involvement standards. London. Faulkner, A., D. Crepaz-Keay, J. Kalathil, S. Yiannoullou, F. Singer, N. James, R. Griffiths, E. Perry, D. Forde, and J. Kallevik. 2015. Involvement for influence: 4Pi national involvement standards. London.
Zurück zum Zitat Francis, R. (Chair). 2013. Report of the Mid Staffordshire NHS Foundation Trust public inquiry executive summary. London. Francis, R. (Chair). 2013. Report of the Mid Staffordshire NHS Foundation Trust public inquiry executive summary. London.
Zurück zum Zitat Gilbert, D. 2018. Rethinking engagement. BJPsych Bulletin 29: 1–4. Gilbert, D. 2018. Rethinking engagement. BJPsych Bulletin 29: 1–4.
Zurück zum Zitat Godfrey, M.M. 2013. Improvement capability at the front lines of healthcare: Helping through leading and coaching. PhD Thesis, School of Health Sciences, University of Jönköping, University of Jönköping, Sweden. Godfrey, M.M. 2013. Improvement capability at the front lines of healthcare: Helping through leading and coaching. PhD Thesis, School of Health Sciences, University of Jönköping, University of Jönköping, Sweden.
Zurück zum Zitat Green, S.A., L. Evans, R. Matthews, S. Jayacodi, J. Trite, A. Manickam, R. Evered, J. Green, J. Williams, E. Beveridge, C. Parker, and B. Tiplady. 2016. Service user engagement in quality improvement: Applying the national involvement standards. Journal of Mental Health Training Education and Practice 11 (5): 279–285. https://doi.org/10.1108/jmhtep-02-2016-0011.CrossRef Green, S.A., L. Evans, R. Matthews, S. Jayacodi, J. Trite, A. Manickam, R. Evered, J. Green, J. Williams, E. Beveridge, C. Parker, and B. Tiplady. 2016. Service user engagement in quality improvement: Applying the national involvement standards. Journal of Mental Health Training Education and Practice 11 (5): 279–285. https://​doi.​org/​10.​1108/​jmhtep-02-2016-0011.CrossRef
Zurück zum Zitat Green, S., E. Beveridge, L. Evans, J. Trite, S. Jayacodi, R. Evered, C. Parker, L. Polledri, E. Tabb, J. Green, A. Manickam, J. Williams, R. Deere, and B. Tiplady. 2018. Implementing guidelines on physical health in the acute mental health setting: A quality improvement approach. International Journal of Mental Health Systems 12 (1): 1. https://doi.org/10.1186/s13033-018-0179-1.CrossRef Green, S., E. Beveridge, L. Evans, J. Trite, S. Jayacodi, R. Evered, C. Parker, L. Polledri, E. Tabb, J. Green, A. Manickam, J. Williams, R. Deere, and B. Tiplady. 2018. Implementing guidelines on physical health in the acute mental health setting: A quality improvement approach. International Journal of Mental Health Systems 12 (1): 1. https://​doi.​org/​10.​1186/​s13033-018-0179-1.CrossRef
Zurück zum Zitat Greer, S. 2008. Devolution and health policy in the UK. Eurohealth 14 (4): 22. Greer, S. 2008. Devolution and health policy in the UK. Eurohealth 14 (4): 22.
Zurück zum Zitat Hickey, G. 2018. Co-production from proposal to paper: Share power in five ways. Nature Comment 562: 29–30.CrossRef Hickey, G. 2018. Co-production from proposal to paper: Share power in five ways. Nature Comment 562: 29–30.CrossRef
Zurück zum Zitat Illich, I. 1975. The medicalization of life. Journal of Medical Ethics 1 (2): 73–77.CrossRef Illich, I. 1975. The medicalization of life. Journal of Medical Ethics 1 (2): 73–77.CrossRef
Zurück zum Zitat Kennedy, I. 2001. Learning from Bristol: The report of the public inquiry into children’s heart surgery at the Bristol Royal Infirmary 1984–1995. London: HMSO. Kennedy, I. 2001. Learning from Bristol: The report of the public inquiry into children’s heart surgery at the Bristol Royal Infirmary 1984–1995. London: HMSO.
Zurück zum Zitat Klein, R. 2010. The new politics of the NHS: From creation to reinvention. 6th ed. Oxford: Radcliffe Publishing. Klein, R. 2010. The new politics of the NHS: From creation to reinvention. 6th ed. Oxford: Radcliffe Publishing.
Zurück zum Zitat Lucas, B., and H. Nacer. 2015. The habits of an improver: Thinking about learning for improvement in health care. London: The Health Foundation. Lucas, B., and H. Nacer. 2015. The habits of an improver: Thinking about learning for improvement in health care. London: The Health Foundation.
Zurück zum Zitat Malby, B., and M. Anderson-Wallace. 2017. Networks in healthcare: Managing complex relationships. Bradford: Emerald Group Publishing. Malby, B., and M. Anderson-Wallace. 2017. Networks in healthcare: Managing complex relationships. Bradford: Emerald Group Publishing.
Zurück zum Zitat Manganiello, M., and M. Anderson. 2011. Back to basics: HIV/AIDS advocacy as a model for catalyzing change. Washington, DC. Manganiello, M., and M. Anderson. 2011. Back to basics: HIV/AIDS advocacy as a model for catalyzing change. Washington, DC.
Zurück zum Zitat McKeown, T. 1976. The role of medicine: Dream, mirage, or Nemesis? London: Nuffield Provincial Hospitals Trust. McKeown, T. 1976. The role of medicine: Dream, mirage, or Nemesis? London: Nuffield Provincial Hospitals Trust.
Zurück zum Zitat National Institute for Health Research. 2015. Going the Extra Mile: Improving the nation’s health and wellbeing through public involvement in research. London. National Institute for Health Research. 2015. Going the Extra Mile: Improving the nation’s health and wellbeing through public involvement in research. London.
Zurück zum Zitat ———. 2016. Briefing document: Collaborations for leadership in applied Health Research and care (CLAHRCs) (v.9). London: NIHR. ———. 2016. Briefing document: Collaborations for leadership in applied Health Research and care (CLAHRCs) (v.9). London: NIHR.
Zurück zum Zitat Nelson, E.C., M. Dixon-Woods, P.B. Batalden, K. Homa, A.D. Van Citters, T.S. Morgan, E. Eftimovska, E.S. Fisher, J. Ovretveit, W. Harrison, C. Lind, and S. Lindblad. 2016. Patient focused registries can improve health, care, and science. BMJ 354: i3319. https://doi.org/10.1136/bmj.i3319.CrossRef Nelson, E.C., M. Dixon-Woods, P.B. Batalden, K. Homa, A.D. Van Citters, T.S. Morgan, E. Eftimovska, E.S. Fisher, J. Ovretveit, W. Harrison, C. Lind, and S. Lindblad. 2016. Patient focused registries can improve health, care, and science. BMJ 354: i3319. https://​doi.​org/​10.​1136/​bmj.​i3319.CrossRef
Zurück zum Zitat NHS England. 2014. Five year forward view. NHS England. 2014. Five year forward view.
Zurück zum Zitat ———. 2019. The NHS long term plan. ———. 2019. The NHS long term plan.
Zurück zum Zitat Owen, H. 2008. Open space technology: A user’s guide. 3rd ed. San Francisco: Berrett-Koehler Publishers. Owen, H. 2008. Open space technology: A user’s guide. 3rd ed. San Francisco: Berrett-Koehler Publishers.
Zurück zum Zitat Percy Commission. 1957. Report of the Royal Commission on the law relating to mental illness and mental deficiency 1954–1957 (Cmnd 169). London. Percy Commission. 1957. Report of the Royal Commission on the law relating to mental illness and mental deficiency 1954–1957 (Cmnd 169). London.
Zurück zum Zitat Pereira, P, and N. Creary. 2018. Q: The journey so far. London. Pereira, P, and N. Creary. 2018. Q: The journey so far. London.
Zurück zum Zitat Reed, J.E., C. Howe, C. Doyle, and D. Bell. 2018. Successful healthcare improvements from translating evidence in complex systems (SHIFT-evidence): Simple rules to guide practice and research. International Journal for Quality in Health Care 31 (3): 238–244.CrossRef Reed, J.E., C. Howe, C. Doyle, and D. Bell. 2018. Successful healthcare improvements from translating evidence in complex systems (SHIFT-evidence): Simple rules to guide practice and research. International Journal for Quality in Health Care 31 (3): 238–244.CrossRef
Zurück zum Zitat Revans, R.W. 1982. What is action learning? Journal of Management Development 1 (3): 64–75.CrossRef Revans, R.W. 1982. What is action learning? Journal of Management Development 1 (3): 64–75.CrossRef
Zurück zum Zitat Ross, R. 1994. The ladder of inference. In The fifth discipline fieldbook: strategies and tools for building a learning organization, 242–246. London: Nicholas Brealey Publishing. Ross, R. 1994. The ladder of inference. In The fifth discipline fieldbook: strategies and tools for building a learning organization, 242–246. London: Nicholas Brealey Publishing.
Zurück zum Zitat Schramme, T., ed. 2015. New perspectives on paternalism and health care. Basel: Springer International Publishing. Schramme, T., ed. 2015. New perspectives on paternalism and health care. Basel: Springer International Publishing.
Zurück zum Zitat Seale, B. 2016. Patients as partners: Building collaborative relationships among professionals, patients, carers and communities. London. Seale, B. 2016. Patients as partners: Building collaborative relationships among professionals, patients, carers and communities. London.
Zurück zum Zitat Skrabanek, P. 1994. The death of humane medicine. London: The Social Affairs Unit. Skrabanek, P. 1994. The death of humane medicine. London: The Social Affairs Unit.
Zurück zum Zitat Staniszewska, S., S. Denegri, R. Matthews, and V. Monique. 2018. Reviewing progress in public involvement in NIHR research: Developing and implementing a new vision for the future. BMJ Open 8 (7): e017124.CrossRef Staniszewska, S., S. Denegri, R. Matthews, and V. Monique. 2018. Reviewing progress in public involvement in NIHR research: Developing and implementing a new vision for the future. BMJ Open 8 (7): e017124.CrossRef
Zurück zum Zitat Vygotsky, L.S. 1997. The historical meaning of the crisis in psychology: A methodological investigation. In the collected works of L. S. Vygotsky. Vol. 3. Problems of the theory and history of psychology. New York: Plenum. Vygotsky, L.S. 1997. The historical meaning of the crisis in psychology: A methodological investigation. In the collected works of L. S. Vygotsky. Vol. 3. Problems of the theory and history of psychology. New York: Plenum.
Zurück zum Zitat Wiig, S., M. Storm, K. Aase, M.T. Gjestsen, M. Solheim, S. Harthug, G. Robert, N. Fulop, and Quaser team. 2013. Investigating the use of patient involvement and patient experience in quality improvement in Norway: Rhetoric or reality? BMC Health Services Research 13 (1): 206. https://doi.org/10.1186/1472-6963-13-206.CrossRef Wiig, S., M. Storm, K. Aase, M.T. Gjestsen, M. Solheim, S. Harthug, G. Robert, N. Fulop, and Quaser team. 2013. Investigating the use of patient involvement and patient experience in quality improvement in Norway: Rhetoric or reality? BMC Health Services Research 13 (1): 206. https://​doi.​org/​10.​1186/​1472-6963-13-206.CrossRef
Metadaten
Titel
Connections: The Power of Learning Together to Improve Healthcare in the United Kingdom
verfasst von
Rachel Matthews
Stuart Green
Rowan Myron
Catherine French
Susan Barber
Dionne Matthew
Sandra Jayacodi
Jenny Trite
Adrian Brown
Justin Baker
Howard Bluston
Ron Grant
Jean Straus
Richard M Ballerand
Maurice Hoffman
Fran Husson
Laura Fischer
Cherelle Augustine
Copyright-Jahr
2019
Verlag
Springer International Publishing
DOI
https://doi.org/10.1007/978-3-030-14101-1_6