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2023 | Buch

Dementia Lab 2022: The Residue of Design

Proceedings of the 6th Dementia Lab Conference, D-Lab 2022, September 20–22, 2022, Leuven, Belgium

herausgegeben von: Maarten Houben, Rens Brankaert, Niels Hendriks, Andrea Wilkinson, Kellie Morrissey

Verlag: Springer International Publishing

Buchreihe: Design For Inclusion

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Über dieses Buch

This book gathers the revised and selected contributions to the 6th Dementia Lab Conference, D-Lab 2022, held on September 20-22, 2022, in Leuven. It describes original and innovative research on how design can contribute to the quality of life of people with dementia, their loved ones, and caregivers. The papers highlight the value of participation within design, analyzing it at three levels: personal, product, and organizational. The presented ideas and findings address ‘The Residue of Design’ and go beyond the initial impact of the design itself by looking at what benefits design research brings for people with dementia. The papers cover topics such as the development of creative design methods to foster participation and engagement from people with dementia, evaluation studies or critical reflections that reveal the impact of products and the built environment in dementia care, and raising awareness and countering stigma in societal views on dementia.

Inhaltsverzeichnis

Frontmatter
Compassionate Design—HUGs on Prescription
Abstract
There is a growing need for well-designed innovative products and services for people affected by dementia. Governments and charities are offering a range of business support to encourage the development of commercial products to address this need. This paper describes how HUG, an output from LAUGH and LAUGH EMPOWERED academic dementia research in the UK, has been successfully translated into a commercial product via accelerator start-up business funding. HUG is being used in care homes and hospitals in the UK to reduce anxiety and improve the quality of life of people living with advanced dementia. Compassionate Design methodology has underpinned this work. Personhood, sensory stimulation, and connection with others have been used as three key principles to ensure that the design meets the needs of people living with dementia in the later stages of the disease. Loving kindness for the person living with dementia (product user) has been central to the design process and involvement of people affected by dementia at various stages of the disease has been crucial to the success of the product. The studies described in this paper provide an example of how an output from academic research has been successfully translated into a commercial product that is now improving the lives of people living with dementia.
Cathy Treadaway, Jac Fennell, Abdul Seckam, Aidan Taylor
Adaptivity in Research Practice with People Living with Dementia: A Designer's Reflection
Abstract
Engaging people with dementia in the design of technology is increasingly gaining more attention—and rightfully so. Yet to be sensitive and responsive to the variety of participants with dementia in different contexts and phases of a design process can be challenging. In this case-study, we applied retrospective reporting to elicit information on this topic from an experienced designer. The findings show how a designer practices adaptivity in duration, explanations, and approach to access experiences during in-situ evaluation of a technical prototype. Insights from this case show the need for reflecting on the potential impact of adaptivity and discussing in the field how adaptivity should be practiced to add value to the work of designers in dementia care contexts.
Sandra Suijkerbuijk, Myrte Thoolen, Henk Herman Nap, Mirella Minkman, Wijnand IJsselsteijn, Rens Brankaert, Yvonne de Kort
Impact of Care Home Design on Wellbeing and Social Connections of People with Dementia During the COVID-19 Pandemic
Abstract
The functionality, well-being, and quality of life of people living with dementia can be positively impacted by careful environmental design. As a consequence of the COVID-19 outbreak, sudden rearrangements were made in the social and physical environment of dementia care residents. The present study aimed to explore the lessons learned regarding the design and use of the built environment during the COVID-19 lockdown and to find how the built environment might contribute positively to improved well-being, and social and physical connection of dementia care residents in the future. In a mixed-method explorative study, social-physical aspects of the built environment that influence quality of life during the COVID-19 pandemic were explored. In general, buildings with a spacious layout and flexible use of spaces contribute to a higher quality of life and level of resident well-being, improved infection control, greater resilience, and enhances social and physical contact. Currently, the buildings of many care facilities are not designed to accommodate a severely infectious disease outbreak. Additionally, nursing staff have learned the importance of attending to the number of stimuli in the social and built environment and attuning these to individual, instead of group needs. Our findings indicate there is a need for designing and building spacious long-term dementia care facilities that allow for flexible, social and personalized appropriation of spaces.
Ans Tummers-Heemels, Anne Coppelmans, Yvonne de Kort, Wijnand IJsselsteijn
The Role of Interior Design Materialities in Dementia Care: Mundane Elements from the Past
Abstract
Apathy, defined as an affective state characterized by loss of interest and indifference towards the surrounding world, has been widely identified as an important behavioural syndrome in Alzheimer’s Disease (AD). The aim of this paper is to inquire the existing relationship between materialities, meant as ‬tangible elements of an interior, ‬including ‬various ‬spatial ‬elements, ‬objects ‬and ‬bodies, and their role in enabling people with dementia to engage in spontaneous interactions with the surrounding environment, diminishing apathy. In particular, the authors extend the definition of “materialities of care”, including the visual representation of mundane elements typical of past decades, defined as “mundane elements from the past” including them in thematic collections of visual posters presented in an on-going pilot study. The placement of these collections in the spaces of a day care centre enhanced recognition and sense of belonging, enacting meaningful interactions and reminiscence conversations among people with dementia and caregivers.
Silvia Maria Gramegna, Alessandro Biamonti, Ruta Valusyte
Humanizing Information About Meaningful Activities for People with Dementia
Abstract
Stigma and discrimination regarding dementia are still very impactful on the experience of having dementia and of being a carer. To tackle this issue and uplift the quality of life of people with dementia and their carers, efforts are being made to push forward a change in the societal perception of dementia. These include raising awareness and promoting inclusive initiatives that conjointly involve people with dementia and their carers, such as engaging in meaningful activities. Meaningful activities have a crucial role in enhancing the well-being of people with dementia as a means for participation, connection with others, self-expression, and control. This position paper calls attention to the need for improving the design of information so that it is tailored to people with dementia and supports their self-determination, individuality and autonomy, and the feeling of living a meaningful life. Although there is plenty of information about dementia, often this is not targeted to people with dementia, nor designed in a way that facilitates their access and understanding. This is an opportunity for design practice and research to contribute. This position is driven by person-centred, rights-based and participatory design approaches and is anchored in the authors’ previous research on co-designing with people with dementia and their families to support their engagement in meaningful activities.
Rita Maldonado Branco, Joana Quental, Oscar Ribeiro, Soraia Teles, Ana Margarida Almeida
House of Memories: A Tangible and Multisensory Museum Installation Focused on Daily Life with Dementia
Abstract
One of the major global challenges of the twenty-first century is the aging population. This is reflected by the growing group of people living with dementia. Even though awareness of dementia is growing, the gap between awareness and understanding still causes stigmatization. This stigma pervades discourse regarding dementia and threatens wellbeing. In this project, an interactive museum installation is built to create awareness and educate people about daily life with dementia. This study investigates how an interactive museum installation contributes to awareness of dementia of the public. During this study, Personal Meaning Maps, field notes, and semi-structured interviews are used to gather data which is analyzed through a thematic analysis. Overall, the exhibition was found to be recognizable from different perspectives, and it was an appropriate form to convey daily life with dementia in a meaningful manner. Each separate aspect of the exhibition contributed differently and evoked emotional responses in participants. The results indicate that the visitor’s awareness is increased.
Sanne Beijer, Rens Brankaert
One Step at a Time: Evaluation of a Step-By-Step Recipe Tool Designed for People with Dementia
Abstract
Due to dementia, people lose the ability to deal with complex tasks such as cooking. We can support this group by designing new tools to keep them active and enhance their feeling of self-worth. Previous studies have focused on step-by-step guidance for people with dementia using innovative technology, which is often too complicated to learn and set up for the users. In this paper, we designed and evaluated an intuitive, non-intimidating, step-by-step recipe tool for people living with dementia. The tool is designed for collaboration to stimulate socialisation between people with dementia or with a caregiver. The design was evaluated in situ, with 36 individuals at varying stages of dementia. Participants were instructed to cook a dish using the recipe tool and reflect on its usability. The step-by-step approach of the tool appeared highly suitable for people with dementia, and added visuals helped with understanding the recipe. The level of initiative shown by the participants with dementia seemed to depend on the amount of trust shown by the caregiver. We found that collaboration between participants during cooking as facilitated by the tool was enjoyable and highly suited for both at-home and meeting centre settings. We offer several suggestions for designing step-by-step tools and encourage facilitating more collaborative, non-intimidating activities for people with dementia and their caregivers.
Yvon Ruitenburg, Gert Pasman, Rens Brankaert
Supporting Intergenerational Dialogue Through Memories: A Case Study of Hilde Kramer’s Picturebook for Dementia
Abstract
This paper examines the potential of picturebooks to stimulate communication, interaction, and recall in individuals with dementia together with their caregivers. Focusing on a picturebook created by Hilde Kramer specifically for older people with dementia, this study analyzes the production process having people with dementia in mind as we examine the utilization of the visual and verbal devices to enhance the reading experience. Insights from an interview with the author stressed the role of research and the importance of artistic and sensory considerations while creating a literary tool as an intervention for people with dementia. Investigating multisensorial experiences that stem out of the picturebook content both for the wellbeing of people with dementia and as an aid for their caregivers, we pinpoint how these strategies may be furthered in the future. As such, shared reading was found not only to foster a dialogue and trigger memories but build intergenerational relationships and cross-cultural sharing for the empowerment of both parties and beyond, bearing the potential to attract a wide range of audience.
Serpil Karaoğlu, Ilgım Veryeri Alaca
Designing for People with Dementia: A Portuguese Case Study
Abstract
This article reports design practices for People with Dementia carried out within a curricular context between September 2021 and January 2022. The project was developed from a collaboration between Alzheimer Portugal, and the Lusófona University, Porto, through the Communication Design BA. Based on the case study of the Memória de Mim Day Care Centre (a service from Alzheimer Portugal), it aimed to create signage and cognitive stimulation materials inspired by Portuguese culture and biographical components of the Centre’s users. Research has shown the need for design intervention in the creation of artefacts aimed at People with Dementia, given the scarcity of materials in this area in Portugal. This project is a starting point to fill this gap in the Portuguese market, while aiming to introduce contents in the field of Social Design to design students, an area less addressed in current courses. The materials developed benefited the Centre’s community, contributing to cognitive stimulation activities and moments of sociability among users with dementia. The project also benefited the students by providing a real work context and highlighting the importance of their role in society as designers. A larger project is now under study, integrating various Alzheimer Portugal services and university contexts, aiming to research and create further cognitive stimulation artefacts targeted at People with Dementia in Portugal. We believe that a more focused study on biographical components and vernacular culture of these people will contribute significantly to improve their health and well-being.
Cláudia Raquel Lima, Eliana Penedos-Santiago
Metadaten
Titel
Dementia Lab 2022: The Residue of Design
herausgegeben von
Maarten Houben
Rens Brankaert
Niels Hendriks
Andrea Wilkinson
Kellie Morrissey
Copyright-Jahr
2023
Electronic ISBN
978-3-031-14466-0
Print ISBN
978-3-031-14465-3
DOI
https://doi.org/10.1007/978-3-031-14466-0