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Quality of Life Research
Published in: Quality of Life Research 4/2015

01-04-2015

Quality of life domains important and relevant to family caregivers of advanced cancer patients in an Asian population: a qualitative study

Authors: Geok Ling Lee, Mandy Yen Ling Ow, Ramaswamy Akhileswaran, Grace Su Yin Pang, Gilbert Kam Tong Fan, Brandon Huat Heng Goh, Cai Fong Wong, Yin Bun Cheung, Hwee Lin Wee

Published in: Quality of Life Research | Issue 4/2015

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Abstract

Purpose

This study aims to identify domains of quality of life (QoL) that are culturally relevant to Chinese caregivers of advanced cancer patients in Singapore and to evaluate content adequacy of currently available instruments for use in the target population.

Methods

English- and Chinese-speaking caregivers of advanced cancer patients receiving care under a tertiary cancer center and/or a community hospice home care/day care provider were recruited for in-depth interviews. The interviews were analyzed using thematic analysis. The identified domains, themes and sub-themes were compared to concepts addressed by items from five existing cancer-specific caregiver QoL instruments.

Results

Eighteen female and eight male caregivers aged 28–74 years participated in the study. Twenty-nine QoL themes and 59 sub-themes were identified in six domains, namely physical health, mental health, social health, spiritual health, financial health and daily life. Collectively, but not individually, the content of the five existing instruments adequately cover the physical health domain, social health domain and some themes on mental health domain for the study population. Content gaps were identified in the domains of mental health, spiritual health, daily life and financial health.

Conclusions

The present study found culturally and contextually specific themes and sub-themes about positive emotional health, spiritual health and financial health.
previous article Multiple imputation to deal with missing EQ-5D-3L data: Should we impute individual domains or the actual index?
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Metadata
Title
Quality of life domains important and relevant to family caregivers of advanced cancer patients in an Asian population: a qualitative study
Authors
Geok Ling Lee
Mandy Yen Ling Ow
Ramaswamy Akhileswaran
Grace Su Yin Pang
Gilbert Kam Tong Fan
Brandon Huat Heng Goh
Cai Fong Wong
Yin Bun Cheung
Hwee Lin Wee
Publication date
01-04-2015
Publisher
Springer International Publishing
Published in
Quality of Life Research / Issue 4/2015
Print ISSN: 0962-9343
Electronic ISSN: 1573-2649
DOI
https://doi.org/10.1007/s11136-014-0832-3

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