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2019 | OriginalPaper | Chapter

Sugar Ka Saathi – A Case Study Designing Digital Self-management Tools for People Living with Diabetes in Pakistan

Authors : Kehkashan Zeb, Stephen Lindsay, Suleman Shahid, Waleed Riaz, Matt Jones

Published in: Human-Computer Interaction – INTERACT 2019

Publisher: Springer International Publishing

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Abstract

This paper presents the results of an iterative participatory process to design a smart self-management tool for less-literate people living with diabetes in Pakistan. Initially, interviews and focus groups with sixty-nine people living with diabetes identified issues that they face when self-managing including un-controllable factors, lack of diabetes awareness, low-tech mobile phones, and poor internet availability. We developed personas grounded in the scoping results and adjusted our PD approach to focus on more tangible design artefacts before running narrative scoping PD sessions. Working from older, illiterate persona, we designed a phone-line delivered Interactive Voice Response (IVR) system.
We developed a functional IVR Prototype “Sugar ka Saathi” (Diabetes Companion) with input from a group of 4 Pakistan-based healthcare professionals, to act as a design probe in the PD process. We tested the IVR probe with fifty-seven of the original scoping participants which validated the knowledge transferred by the IVR and its acceptability. Invisible design videos were shown to elaborate the IVR and community concept to thirteen participants through two filmed videos using our existing persona characters from the scoping studies, these videos helped to engage older people with diabetes in PD sessions.

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Literature
1.
go back to reference East, L., Jackson, D., O’Brien, L., Peters, K.: Storytelling: an approach that can help to develop resilience. Nurse Res. 17(3), 17–25 (2010)CrossRef East, L., Jackson, D., O’Brien, L., Peters, K.: Storytelling: an approach that can help to develop resilience. Nurse Res. 17(3), 17–25 (2010)CrossRef
2.
go back to reference Joshi, A.: Supporting treatment of people living with HIV/AIDS in resource limited settings with IVRs. In: Proceedings of the SIGCHI Conference on Human Factors in Computing Systems, 26 April 2014, pp. 1595–1604. ACM (2014) Joshi, A.: Supporting treatment of people living with HIV/AIDS in resource limited settings with IVRs. In: Proceedings of the SIGCHI Conference on Human Factors in Computing Systems, 26 April 2014, pp. 1595–1604. ACM (2014)
4.
go back to reference Hussain, S., Sanders, E.B., Steinert, M.: Participatory design with marginalized people in developing countries: challenges and opportunities experienced in a field study in Cambodia. Int. J. Des. 6(2), 91–109 (2012) Hussain, S., Sanders, E.B., Steinert, M.: Participatory design with marginalized people in developing countries: challenges and opportunities experienced in a field study in Cambodia. Int. J. Des. 6(2), 91–109 (2012)
5.
go back to reference Kumar, N.: Projecting health: community-led video education for maternal health. In: Proceedings of the Seventh International Conference on Information and Communication Technologies and Development, 15 May 2015, p. 17. ACM (2015) Kumar, N.: Projecting health: community-led video education for maternal health. In: Proceedings of the Seventh International Conference on Information and Communication Technologies and Development, 15 May 2015, p. 17. ACM (2015)
6.
go back to reference Mamykina, L., Miller, A.D., Mynatt, E.D., Greenblatt, D.: Constructing identities through storytelling in diabetes management. In: Proceedings of the SIGCHI Conference on Human Factors in Computing Systems, 10 April 2010, pp. 1203–1212. ACM (2010) Mamykina, L., Miller, A.D., Mynatt, E.D., Greenblatt, D.: Constructing identities through storytelling in diabetes management. In: Proceedings of the SIGCHI Conference on Human Factors in Computing Systems, 10 April 2010, pp. 1203–1212. ACM (2010)
7.
go back to reference Middleton, S.E., Shadbolt, N.R., De Roure, D.C.: Ontological user profiling in recommender systems. ACM Trans. Inf. Syst. (TOIS) 22(1), 54–88 (2004)CrossRef Middleton, S.E., Shadbolt, N.R., De Roure, D.C.: Ontological user profiling in recommender systems. ACM Trans. Inf. Syst. (TOIS) 22(1), 54–88 (2004)CrossRef
8.
go back to reference Vaportzis, E., Giatsi Clausen, M., Gow, A.J.: Older adults perceptions of technology and barriers to interacting with tablet computers: a focus group study. Front. Psychol. 4(8), 1687 (2017)CrossRef Vaportzis, E., Giatsi Clausen, M., Gow, A.J.: Older adults perceptions of technology and barriers to interacting with tablet computers: a focus group study. Front. Psychol. 4(8), 1687 (2017)CrossRef
9.
go back to reference Mamykina, L., Mynatt, E.D., Kaufman, D.R.: Investigating health management practices of individuals with diabetes. In: Proceedings of the SIGCHI Conference on Human Factors in Computing Systems, 22 April 2006, pp. 927–936. ACM (2006) Mamykina, L., Mynatt, E.D., Kaufman, D.R.: Investigating health management practices of individuals with diabetes. In: Proceedings of the SIGCHI Conference on Human Factors in Computing Systems, 22 April 2006, pp. 927–936. ACM (2006)
10.
go back to reference Triantafyllakos, G., Palaigeorgiou, G., Tsoukalas, I.A.: Fictional characters in participatory design sessions: Introducing the “design alter egos” technique. Interact. Comput. 22(3), 165–175 (2010)CrossRef Triantafyllakos, G., Palaigeorgiou, G., Tsoukalas, I.A.: Fictional characters in participatory design sessions: Introducing the “design alter egos” technique. Interact. Comput. 22(3), 165–175 (2010)CrossRef
11.
go back to reference Chapman, L.: Design for chronic illness: exploring service systems & new technologies for patients with type 2 diabetes Chapman, L.: Design for chronic illness: exploring service systems & new technologies for patients with type 2 diabetes
12.
go back to reference Simonsen, J., Robertson, T. (eds.): Routledge International Handbook of Participatory Design. Routledge, Abingdon (2012) Simonsen, J., Robertson, T. (eds.): Routledge International Handbook of Participatory Design. Routledge, Abingdon (2012)
15.
go back to reference Bidwell, N.J., Reitmaier, T., Marsden, G., Hansen, S.: Designing with mobile digital storytelling in rural Africa. In: Proceedings of the SIGCHI Conference on Human Factors in Computing Systems, 10 April 2010, pp. 1593–1602. ACM (2010) Bidwell, N.J., Reitmaier, T., Marsden, G., Hansen, S.: Designing with mobile digital storytelling in rural Africa. In: Proceedings of the SIGCHI Conference on Human Factors in Computing Systems, 10 April 2010, pp. 1593–1602. ACM (2010)
17.
go back to reference Braun, V., Clarke, V.: Using thematic analysis in psychology. Qual. Res. Psychol. 3(2), 77–101 (2006)CrossRef Braun, V., Clarke, V.: Using thematic analysis in psychology. Qual. Res. Psychol. 3(2), 77–101 (2006)CrossRef
18.
go back to reference Muller, M.J.: Participatory design: the third space in HCI. Hum.-Comput. Interact.: Dev. Process. 4235, 165–185 (2003) Muller, M.J.: Participatory design: the third space in HCI. Hum.-Comput. Interact.: Dev. Process. 4235, 165–185 (2003)
19.
go back to reference Rafique, G., Shaikh, F.: Identifying needs and barriers to diabetes education in patients with diabetes. J.-Pak. Med. Assoc. 56(8), 347 (2006) Rafique, G., Shaikh, F.: Identifying needs and barriers to diabetes education in patients with diabetes. J.-Pak. Med. Assoc. 56(8), 347 (2006)
22.
go back to reference Hinder, S., Greenhalgh, T.: “This does my head in”. Ethnographic study of self-management by people with diabetes. BMC Health Serv. Res. 12(1), 83 (2012)CrossRef Hinder, S., Greenhalgh, T.: “This does my head in”. Ethnographic study of self-management by people with diabetes. BMC Health Serv. Res. 12(1), 83 (2012)CrossRef
23.
go back to reference Muller, M.J.: PICTIVE—an exploration in participatory design. In: Proceedings of the SIGCHI Conference on Human Factors in Computing Systems, 27 April 1991, pp. 225–231. ACM (1991) Muller, M.J.: PICTIVE—an exploration in participatory design. In: Proceedings of the SIGCHI Conference on Human Factors in Computing Systems, 27 April 1991, pp. 225–231. ACM (1991)
24.
go back to reference Kharal, A., Naseem, M., Ahmad, S.S., Raza, A.A.: Sustainable IVR-based social media for the developing world Kharal, A., Naseem, M., Ahmad, S.S., Raza, A.A.: Sustainable IVR-based social media for the developing world
25.
go back to reference Briggs, P., et al.: Invisible design: exploring insights and ideas through ambiguous film scenarios. In: Proceedings of the Designing Interactive Systems Conference, 11 June 2012, pp. 534–543. ACM (2012) Briggs, P., et al.: Invisible design: exploring insights and ideas through ambiguous film scenarios. In: Proceedings of the Designing Interactive Systems Conference, 11 June 2012, pp. 534–543. ACM (2012)
26.
go back to reference Vashistha, A., Cutrell, E., Borriello, G., Thies, W.: Sangeet swara: a community-moderated voice forum in rural India. In: Proceedings of the 33rd Annual ACM Conference on Human Factors in Computing Systems, 18 April 2015, pp. 417–426. ACM (2015) Vashistha, A., Cutrell, E., Borriello, G., Thies, W.: Sangeet swara: a community-moderated voice forum in rural India. In: Proceedings of the 33rd Annual ACM Conference on Human Factors in Computing Systems, 18 April 2015, pp. 417–426. ACM (2015)
27.
go back to reference Mudliar, P., Donner, J., Thies, W.: Emergent practices around CGNet Swara: a voice forum for citizen journalism in rural India. Inf. Technol. Int. Dev. 9(2), 65–79 (2013) Mudliar, P., Donner, J., Thies, W.: Emergent practices around CGNet Swara: a voice forum for citizen journalism in rural India. Inf. Technol. Int. Dev. 9(2), 65–79 (2013)
29.
go back to reference Kazakos, K.: A real-time IVR platform for community radio. In: Proceedings of the 2016 CHI Conference on Human Factors in Computing Systems, 7 May 2016, pp. 343–354. ACM (2016) Kazakos, K.: A real-time IVR platform for community radio. In: Proceedings of the 2016 CHI Conference on Human Factors in Computing Systems, 7 May 2016, pp. 343–354. ACM (2016)
30.
go back to reference Patel, N., Chittamuru, D., Jain, A., Dave, P., Parikh, T.S.: Avaaj Otalo: a field study of an interactive voice forum for small farmers in rural India. In: Proceedings of the SIGCHI Conference on Human Factors in Computing Systems, 10 April 2010, pp. 733–742. ACM (2010) Patel, N., Chittamuru, D., Jain, A., Dave, P., Parikh, T.S.: Avaaj Otalo: a field study of an interactive voice forum for small farmers in rural India. In: Proceedings of the SIGCHI Conference on Human Factors in Computing Systems, 10 April 2010, pp. 733–742. ACM (2010)
31.
go back to reference Grover, A.S., Plauché, M., Barnard, E., Kuun, C.: HIV health information access using spoken dialogue systems: touchtone vs. speech. In: 2009 International Conference on Information and Communication Technologies and Development (ICTD), 17 April 2009, pp. 95–107. IEEE (2009) Grover, A.S., Plauché, M., Barnard, E., Kuun, C.: HIV health information access using spoken dialogue systems: touchtone vs. speech. In: 2009 International Conference on Information and Communication Technologies and Development (ICTD), 17 April 2009, pp. 95–107. IEEE (2009)
32.
go back to reference Mamykina, L., Mynatt, E., Davidson, P., Greenblatt, D.: MAHI: investigation of social scaffolding for reflective thinking in diabetes management. In: Proceedings of the SIGCHI Conference on Human Factors in Computing Systems, 6 April 2008, pp. 477–486. ACM (2008) Mamykina, L., Mynatt, E., Davidson, P., Greenblatt, D.: MAHI: investigation of social scaffolding for reflective thinking in diabetes management. In: Proceedings of the SIGCHI Conference on Human Factors in Computing Systems, 6 April 2008, pp. 477–486. ACM (2008)
33.
go back to reference Yang, Y., Liu, C., Li, C., Hu, Y., Niu, Y., Li, L.: The recommendation systems for smart TV. In: 2014 International Conference on Computing, Communication and Networking Technologies (ICCCNT), 11 July 2014, pp. 1–6. IEEE (2014) Yang, Y., Liu, C., Li, C., Hu, Y., Niu, Y., Li, L.: The recommendation systems for smart TV. In: 2014 International Conference on Computing, Communication and Networking Technologies (ICCCNT), 11 July 2014, pp. 1–6. IEEE (2014)
35.
go back to reference Sherwani, J., et al.: Healthline: speech-based access to health information by low-literate users. In: 2007 International Conference on Information and Communication Technologies and Development, ICTD 2007, 15 December 2007, pp. 1–9. IEEE (2007) Sherwani, J., et al.: Healthline: speech-based access to health information by low-literate users. In: 2007 International Conference on Information and Communication Technologies and Development, ICTD 2007, 15 December 2007, pp. 1–9. IEEE (2007)
36.
go back to reference Korpela, M., Soriyan, H.A., Olufokunbi, K.C.: Activity analysis as a method for information systems development. Scand. J. Inf. Syst. 12(1–2), 191–210 (2001) Korpela, M., Soriyan, H.A., Olufokunbi, K.C.: Activity analysis as a method for information systems development. Scand. J. Inf. Syst. 12(1–2), 191–210 (2001)
38.
go back to reference Bowen, S., Dearden, A., Wright, P., Wolstenholme, D., Cobb, M.: Participatory healthcare service design and innovation. In: Proceedings of the 11th Biennial Participatory Design Conference, 29 November 2010, pp. 155–158. ACM (2010) Bowen, S., Dearden, A., Wright, P., Wolstenholme, D., Cobb, M.: Participatory healthcare service design and innovation. In: Proceedings of the 11th Biennial Participatory Design Conference, 29 November 2010, pp. 155–158. ACM (2010)
39.
go back to reference Jones, M., et al.: Beyond yesterday’s tomorrow: future-focused mobile interaction design by and for emergent users. Pers. Ubiquitous Comput. 21(1), 157–171 (2017)CrossRef Jones, M., et al.: Beyond yesterday’s tomorrow: future-focused mobile interaction design by and for emergent users. Pers. Ubiquitous Comput. 21(1), 157–171 (2017)CrossRef
40.
go back to reference Haque, M.M., et al.: e-ESAS: evolution of a participatory design-based solution for breast cancer (BC) patients in rural Bangladesh. Pers. Ubiquitous Comput. 19(2), 395–413 (2015)CrossRef Haque, M.M., et al.: e-ESAS: evolution of a participatory design-based solution for breast cancer (BC) patients in rural Bangladesh. Pers. Ubiquitous Comput. 19(2), 395–413 (2015)CrossRef
41.
go back to reference Medhi-Thies, I., Ferreira, P., Gupta, N., O’Neill, J., Cutrell, E.: KrishiPustak: a social networking system for low-literate farmers. In: Proceedings of the 18th ACM Conference on Computer Supported Cooperative Work & Social Computing, pp. 1670–1681. ACM, February 2015 Medhi-Thies, I., Ferreira, P., Gupta, N., O’Neill, J., Cutrell, E.: KrishiPustak: a social networking system for low-literate farmers. In: Proceedings of the 18th ACM Conference on Computer Supported Cooperative Work & Social Computing, pp. 1670–1681. ACM, February 2015
42.
go back to reference Ahmed, F., Asim-Bin-Zafar, M.R., Ghafoor, E., Rehman, R.A., Uddin, Q.: Impact of 24-hour helpline service for people with diabetes. Pak. J. Med. Sci. 33(3), 747 (2017)CrossRef Ahmed, F., Asim-Bin-Zafar, M.R., Ghafoor, E., Rehman, R.A., Uddin, Q.: Impact of 24-hour helpline service for people with diabetes. Pak. J. Med. Sci. 33(3), 747 (2017)CrossRef
43.
go back to reference Yadav, D., et al.: Sangoshthi: empowering community health workers through peer learning in rural India. In: Proceedings of the 26th International Conference on World Wide Web, pp. 499–508. International World Wide Web Conferences Steering Committee, April 2017 Yadav, D., et al.: Sangoshthi: empowering community health workers through peer learning in rural India. In: Proceedings of the 26th International Conference on World Wide Web, pp. 499–508. International World Wide Web Conferences Steering Committee, April 2017
Metadata
Title
Sugar Ka Saathi – A Case Study Designing Digital Self-management Tools for People Living with Diabetes in Pakistan
Authors
Kehkashan Zeb
Stephen Lindsay
Suleman Shahid
Waleed Riaz
Matt Jones
Copyright Year
2019
DOI
https://doi.org/10.1007/978-3-030-29387-1_10