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Quality of Life Research
Erschienen in: Quality of Life Research 3/2016

09.09.2015 | Special Section: PROs in Non-Standard Settings (by invitation only)

Evaluating PROMIS® instruments and methods for patient-centered outcomes research: Patient and provider voices in a substance use treatment setting

verfasst von: Kelly L. Johnston, Suzanne M. Lawrence, Nathan E. Dodds, Lan Yu, Dennis C. Daley, Paul A. Pilkonis

Erschienen in: Quality of Life Research | Ausgabe 3/2016

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Abstract

Purpose

Our work as a primary research site of the Patient-Reported Outcomes Measurement Information System (PROMIS®), combined with support from the Patient-Centered Outcomes Research Institute, allowed us to evaluate the real-world applicability and acceptability of PROMIS measures in an addiction medicine setting.

Methods

As part of a 3-month prospective observational study, 225 outpatients at a substance abuse treatment clinic completed PROMIS item banks for alcohol use (as well as 15 additional item banks from 8 other PROMIS domains, including emotional distress, sleep, and pain), with assessments at intake, 1-month follow-up, and 3-month follow-up. A subsample of therapists and their patients completed health domain importance ratings and qualitative interviews to elicit feedback regarding the content and format of the patients’ assessment results.

Results

The importance ratings revealed that depression, anxiety, and lack of emotional support were rated highest of the non-alcohol-related domains among both patients and clinicians. General alcohol use was considered most important by both patients and clinicians. Based on their suggestions, changes were made to item response feedback to facilitate comprehension and communication.

Conclusions

Both therapists and patients agreed that their review of the graphical display of scores, as well as individual item responses, helped them to identify areas of greatest concern and was useful for treatment planning. The results of our pilot work demonstrated the value and practicality of incorporating a comprehensive health assessment within a substance abuse treatment setting.
Vorheriger Artikel Evaluating a new methodology for providing individualized feedback in healthcare on quality of life and its importance, using the WHOQOL-BREF in a community population
Nächster Artikel QLU-C10D: a health state classification system for a multi-attribute utility measure based on the EORTC QLQ-C30

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Literatur
1.
American Psychiatric Association. (2013). Assessment Measures. In Diagnostic and statistical manual of mental disorders (5th ed., pp. 733–748). Arlington, VA: American Psychiatric Association.
2.
U.S. Government Accountability Office (GAO). (2015). Comparative effectiveness research: HHS needs to strengthen dissemination and data-capacity-building efforts: GAO-15-280. www.​gao.​gov.
3.
Snyder, C. F., Jensen, R. E., Geller, G., Carducci, M. A., & Wu, A. W. (2010). Relevant content for a patient-reported outcomes questionnaire for use in oncology clinical practic: Putting doctors and patients on the same page. Quality of Life Research, 19, 1045–1055.CrossRefPubMed
4.
Wu, A. W., Kharrazi, H., Boulwar, L. E., & Snyder, C. F. (2013). Measure once, cut twice–adding patient-reported outcome measures to the electronic health record for comparative effectiveness research. Journal of Clinical Epidemiology, 66(8 Suppl), S12–S20.PubMedCentralCrossRefPubMed
5.
Marshall, S., Haywood, K., & Fitzpatrick, R. (2006). Impact of patient-reported outcome measures on routine practice: A structured review. Journal of Evaluation in Clinical Practice, 12(5), 559–568.CrossRefPubMed
6.
Rotgers, F. (2002). Clinically useful, research validated assessment of persons with alcohol problems. Behaviour Research and Therapy, 40(12), 1425–1441.CrossRefPubMed
7.
Cella, D., Gershon, R., Lai, J. S., & Choi, S. (2007). The future of outcomes measurement: Item banking, tailored short forms, and computerized adaptive assessment. Quality of Life Research, 16(Suppl 1), 133–144.CrossRefPubMed
8.
Pilkonis, P. A., Choi, S. W., Reise, S. P., Stover, A. M., Riley, W. T., & Cella, D. (2011). Item banks for measuring emotional distress from the patient-reported outcomes measurement information system: Depression, anxiety, anger. Assessment., 18(3), 263–283.PubMedCentralCrossRefPubMed
9.
Broderick, J. E., DeWitt, E. M., Rothrock, N., Crane, P. K., & Forrest, C. B. (2013). Advances in patient reported outcomes: The NIH PROMIS measures. eGEMs (Generating Evidence & Methods to improve patient outcomes), 1(1), Article 12, 1–7.
10.
Buysse, D., Yu, L., Moul, D. E., Germain, A., Stover, A., Dodds, N. E., et al. (2010). Development and validation of patient-reported outcome measures for sleep disturbance and sleep-related impairments. Sleep, 33(6), 781–792.
11.
Revicki, D., Chen, W., Harnam, N., Cook, K., Amtmann, D., Callahan, L. F., et al. (2009). Development and psychometric analysis of the PROMIS pain behavior item bank. Pain, 146(1–2), 158–169.PubMedCentralCrossRefPubMed
12.
Fries, J. F., Cella, D., Rose, M., Krishnan, E., & Bruce, B. (2009). Progress in assessing physical function in arthritis: PROMIS short forms and computerized adaptive testing. Journal of Rheumatology, 36(9), 2061–2066.CrossRefPubMed
13.
Pilkonis, P. A., Yu, L., Dodds, N. E., Johnston, K. L., Maihoefer, C., & Lawrence, S. M. (2014). Validation of the depression item bank from the Patient-Reported Outcomes Measurement Information System (PROMIS®) in a three-month observational study. Journal of Psychiatric Research, 56, 112–119.PubMedCentralCrossRefPubMed
14.
Reeve, B. B., Hays, R. D., Bjorner, J. B., Cook, K. F., Crane, P. K., Teresi, J. A., et al. (2007). Psychometric evaluation and calibration of health-related quality of life item banks: Plans for the Patient-Reported Outcome Measurement Information System (PROMIS). Medical Care, 45, S22–S31.CrossRefPubMed
15.
DeWitt, E. M., Stucky, B. D., Thissen, D., Irwin, D. E., Langer, M., Varni, J. W., et al. (2011). Construction of the eight item PROMIS pediatric physical function scales: Built using item response theory. Journal of Clinical Epidemiology, 64(7), 794–804.PubMedCentralCrossRefPubMed
16.
Varni, J. W., Stucky, B. D., Thissen, D., DeWitt, E. M., Irwin, D., Lai, J. S., et al. (2010). PROMIS Pediatric Pain Interference Scale: An item response theory analysis of the Pediatric Pain Item Bank. Journal of Pain, 11(11), 1109–1119.PubMedCentralCrossRefPubMed
17.
Amtmann, D., Cook, K., Jensen, M. P., Chen, W.-H., Choi, S. W., Revicki, D., et al. (2010). Development of a PROMIS item bank to measure pain interference. Pain, 150(1), 173–182.PubMedCentralCrossRefPubMed
18.
Flynn, K. E., Jeffrey, D. D., Keefe, F. J., Porter, L. S., Shelby, R. A., Fawzy, M. R., et al. (2011). Sexual functioning along the cancer continuum: focus group results from the Patient-Reported Outcomes Measurement Information System (PROMIS). Psycho-Oncology, 20(4), 378–386.PubMedCentralCrossRefPubMed
19.
Forrest, C. B., Bevans, K. B., Tucker, C., Riley, A. W., Ravens-Sieberer, U., Gardner, W., et al. (2012). Commentary: the Patient-Reported Outcome Measurement Information System (PROMIS) for Children and Youth: Application to pediatric psychology. Journal of Pediatric Psychology, 37(6), 614–621.
20.
Hahn, E. A., DeWalt, D. A., Bode, R. K., Garcia, S. F., DeVellis, R. F., Correia, H., et al. (2014). New English and Spanish social health measures will facilitate evaluating health determinants. Health Psychology, 33(5), 490–499.
21.
Hays, R. D., Bjorner, J. B., Revicki, R. A., Spritzer, K. L., & Cella, D. (2009). Development of physical and mental health summary scores from the Patient Reported Outcomes Measurement Information System (PROMIS) global items. Quality of Life Research, 18(7), 873–880.PubMedCentralCrossRefPubMed
22.
Patel, K. (2010). Health reform’s tortuous route to the Patient-Centered Outcomes Research Institute. Health Affairs, 29(10), 1777–1782.CrossRefPubMed
23.
24.
Pilkonis, P. A., Yu, L., Colditz, J., Dodds, N. E., Johnston, K. L., Maihoefer, C., et al. (2013). Item banks for alcohol use from the Patient-Reported Outcomes Measurement Information System (PROMIS®): use, consequences, and expectancies. Drug and Alcohol Dependence, 130, 167–177.PubMedCentralCrossRefPubMed
25.
DeWalt, D. A., Rothrock, N., Yount, S., Stone, A. A., & on behalf of the PROMIS Cooperative Group. (2007). Evaluation of item candidates: The PROMIS qualitative item review. Medical Care, 45, S12–S21.
26.
Saunders, J. B., Aasland, O. G., Babor, T. F., Delafuente, J. R., & Grant, M. (1993). Development of the Alcohol-Use Disorders Identification Test (AUDIT): WHO collaborative project on early detection of persons with harmful alcohol consumption. Addiction, 88, 791–804.CrossRefPubMed
27.
Stinson, F. S., Grant, B. F., Dawson, D. A., Ruan, W. J., Huang, B., & Saha, T. (2005). Comorbidity between DSM-IV alcohol and specific drug use disorders in the United States: results from the National Epidemiologic Survey on Alcohol and Related Conditions. Drug and Alcohol Dependence, 80(1), 105–116.CrossRefPubMed
28.
Jensen, R. E., Rothrock, N. E., DeWitt, E. M., Spiegel, B., Tucker, C. A., Crane, H., et al. (2015). The role of technical advances in the adoption and integration of patient-reported outcomes in clinical care. Medical Care, 53(2), 153–159.CrossRefPubMed
29.
Lohr, K. N., & Zebrack, B. J. (2009). Using patient-reported outcomes in clinical practice: Challenges and opportunities. Quality of Life Research, 18, 99–107.CrossRefPubMed
30.
Rose, M., & Bezjak, A. (2009). Logistics of collecting patient-reported outcomes (PROs) in clinical practice: An overview and practical examples. Quality of Life Research, 18, 125–136.CrossRefPubMed
31.
Graff, F. S., Morgan, T. J., Epstein, E. E., McCrady, B. S., Cook, S. M., Jensen, N. K., & Kelly, S. (2009). Engagement and retention in outpatient alcoholism treatment for women. American Journal of Addictions, 18(4), 277–288.CrossRef
32.
Loveland, D., & Driscoll, H. (2014). Examining attrition rates at one specialty addiction treatment provider in the United States: a case study using a retrospective chart review. Substance Abuse Treatment, Prevention, and Policy, 9(1), 41.PubMedCentralCrossRefPubMed
33.
Substance Abuse and Mental Health Services Administration Treatment Episode Data Set. (2010). Discharges from substance abuse treatment services. BHSIS Series S-67, HHS Publication No. (SMA) 14-4817. Rockville, MD: Substance Abuse and Mental Health Services Administration, 2013.
34.
Stark, M. J. (1992). Dropping out of substance abuse treatment: A clinically oriented review. Clinical Psychology Review, 12(1), 93–116.CrossRef
35.
Babor, T. F., Higgins-Biddle, J. C., Saunders, J. B., & Monteiro, M. G. (2001). The alcohol use disorders identification test: Guidelines for use in primary care (No. WHO/MSD/MSB/01.6a). World Health Organization.
36.
Tracy, E. M. (2010). Social support: A mixed blessing for women in substance abuse treatment. Journal of Social Work Practice in the Addictions, 10(3), 257–282.PubMedCentralCrossRefPubMed
37.
Chou, K. L., Liang, K., & Sareen, J. (2011). The association between social isolation and DSM-IV mood, anxiety, and substance use disorders: Wave 2 of the National Epidemiologic Survey on Alcohol and Related Conditions. Journal of Clinical Psychiatry, 72(11), 1468–1476.CrossRefPubMed
38.
Warren, J. I., Stein, J. A., & Grella, C. E. (2007). Role of social support and self-efficacy in treatment outcomes among clients with co-occurring disorders. Drug and Alcohol Dependence, 89(2–3), 267–274.PubMedCentralCrossRefPubMed
39.
Richter, S. S., Brown, S. A., & Mott, M. A. (1991). The impact of social support and self-esteem on adolescent substance abuse treatment outcome. Journal of Substance Abuse, 3(4), 371–385.CrossRefPubMed
40.
Ciraulo, D. A., Piechniczek-Buczek, J., & Iscan, E. N. (2003). Outcome predictors in substance use disorders. Psychiatric Clinics of North America, 26(2), 381–409.CrossRefPubMed
Metadaten
Titel
Evaluating PROMIS® instruments and methods for patient-centered outcomes research: Patient and provider voices in a substance use treatment setting
verfasst von
Kelly L. Johnston
Suzanne M. Lawrence
Nathan E. Dodds
Lan Yu
Dennis C. Daley
Paul A. Pilkonis
Publikationsdatum
09.09.2015
Verlag
Springer International Publishing
Erschienen in
Quality of Life Research / Ausgabe 3/2016
Print ISSN: 0962-9343
Elektronische ISSN: 1573-2649
DOI
https://doi.org/10.1007/s11136-015-1131-3

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