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Personal health information management (PHIM) is a broad endeavor that requires the patient to navigate many different types of information. Including patients performing a variety of tasks and roles to make information useful. I ask the question: what practices constitute a patient’s personal health information management socio-technical assemblage? By doing this I am interested in understanding how PHIM is an assemblage of different actors, tools, technologies, information, and materialities that form a heterogeneous network to motivate the patient’s health maintenance and wellbeing. I describe information practices, planning and sense making practices that patients engage to begin to define this assemblage, and the social actors and materialities that manifest and stabilize. Then, I discuss three key commitments learned from this approach, namely: the personal aspect of PHIM, the role of physical and digital materials on PHIM, and the role of information practice materialities.
Aarhus, Rikke; and Stinne Aalokke Ballegaard (2010). Negotiating Boundaries: Managing Disease at Home. In: CHI 2010. Proceedings of the SIGCHI conference on Human Factors in Computing Systems, Atlanta, GA, USA, 10 – 15 April 2010. New York: ACM Press , pp. 1223–1232.
Agarwal, Ritu (2009). Personal Health Information Management and the Design of Consumer Health Information Technology. College Park, Maryland: Agency for Healthcare Research and Quality, U.S. Department of Health and Human Services.
Ball, Marion; Melinda Costin; and Christoph Lehmann (2008). The personal health record: consumers banking on their health. Studies in Health Technology and Informatics, vol. 134, pp. 35–46.
Bennett, J (2010). Vibrant Matter: a political ecology of things, London: Duke University Press
Berg, Marc (1999). Patient care information systems and health care work: A sociotechnical approach. International Journal of Medical Informatics, vol. 55, no. 2, pp. 87–101. CrossRef
Berg, Marc; and Geoffrey Bowker (1997). The Multiple Bodies of the Medical Record: Toward a Sociology of an Artifact. The Sociological Quarterly, vol. 38, no. 3, pp. 513–537. CrossRef
Berg, Marc; Chris Langenberg; Ignas vd Berg; and Jan Kwakkernaat (1998). Considerations for sociotechnical design: experiences with an electronic patient record in a clinical context. International Journal of Medical Informatics, vol. 52, no. 1–3, pp. 243–251. CrossRef
Brennan, Patricia Flatley; Stephen Downs; Gail Casper; and Daniel Kenron (2007). Project HealthDesign: stimulating the next generation of personal health records. In: AMIA 2007. Proceedings of the American Medical Informatics Association Annual Symposium, Chicago, Illinois, 10 – 14 November 2007, pp. 70–4. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC2655909/
Chen, Yunan; Karen Cheng; Charlotte Tang; Katie Siek; and Jakob Bardram (2013). Is my doctor listening to me?: impact of health it systems on patient-provider interaction. In: CHI 2013. Proceedings of the SIGCHI conference on Human Factors in Computing Systems, Paris, France, 27 April – 2 May 2013. New York: ACM Press, pp. 2419–2426. https://doi.org/10.1145/2468356.2468791
Civan, Andrea; Meredith Skeels; Anna Stolyar; and Wanda Pratt (2006). Personal health information management: consumers’ perspectives. In AMIA 2006. Proceedings of the American Medical Informatics Association Annual Symposium, San Francisco, Calif., USA, 14 – 18 November 2006. pp. 156–60. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC1839450/
Civan, Andrea; David McDonald; Kenton Unruh; and Wanda Pratt (2009). Locating Patient Expertise in Everyday Life. In GROUP 2009. Proceedings of the 2009 international ACM conference on supporting group work, ACM, Sanibel Island, Florida, 10 – 13 May 2009. New York: ACM Press, pp. 291–300.
Davidson, Elizabeth; Carsten S. Østerlund; and Mary Grace Flaherty (2015). Drift and shift in the organizing vision career for personal health records: An investigation of innovation discourse dynamics. Information and Organization, vol. 25, no. 4, pp. 191–221. https://doi.org/10.1016/j.infoandorg.2015.08.001 CrossRef
DeLanda, Manuel (2006). A New Philosophy of Society: Assemblage Theory and Social Complexity. Bloomsbury Academic.
Deleuze, Gilles; and Félix Guattari (1987). A Thousand Plateaus. (B. Massumi, Ed.). Minneapolis: University of Minnesota Press.
Gherardi, Silvia (2012). How to Conduct a Practice-Based Study: Problems and Methods (1st ed.). Cheltenham, UK: Edward Elgar Pub. CrossRef
Gibson, James; (1986). The ecological approach to visual perception. Hillsdale, N.J.: Lawrence Earlbaum.
Henningsson, Stefan; and Ole Hanseth (2011). The essential dynamics of information infrastructures. In: ICIS 2011. Thirty Second International Conference on Information Systems, Shanghai, China, 4 – 7 December 2011. pp. 1–19.
Hersh, William (2002). Medical Informatics: Improving Health Care Through Information. The Journal of the American Medical Association (JAMA), vol. 288, no. 16, pp. 1955–1958. https://doi.org/10.1001/jama.288.16.1955
Hill, Jason; Sandra Burge; Anna Haring; and Richard a Young (2012). Communication Technology Access, Use, and Preferences among Primary Care Patients: From the Residency Research Network of Texas (RRNeT). Journal of the American Board of Family Medicine (JABFM), vol. 25, no. 5, pp. 625–634. https://doi.org/10.3122/jabfm.2012.05.120043
Jarrahi, Mohammad Hossein (2015). Digital and physical materiality of information technologies: The case of fitbit activity tracking devices. In: HICSS 2015. Proceedings of the Annual Hawaii International Conference on System Sciences, Kauai, Hawaii, USA, 5 – 8 January 2015. Washington, DC: IEEE Computer Society, pp. 1768–1777. https://doi.org/10.1109/HICSS.2015.214
Jones, William (2008). Keeping Found Things Found: The Study and Practice of Personal Information Management (1st ed.). Burlington, MA: Elsevier Inc.
Kim, Kyungsook; and Eun-shim Nahm (2012). Benefits of and barriers to the use of personal health records (PHR) for health management among adults. Online Journal of Nursing Informatics, vol. 16, no. 3.
Kim, Eung-Hun; Anna Stolyar; William B Lober; Anne L Herbaugh; Sally E Shinstrom; Brenda K Zierler; … Yongmin Kim (2009). Challenges to using an electronic personal health record by a low-income elderly population. Journal of Medical Internet Research, vol. 11, no. 4, pp. e44. https://doi.org/10.2196/jmir.1256
Klasnja, Predrag; and Wanda Pratt (2012). Healthcare in the pocket: mapping the space of mobile-phone health interventions. Journal of Biomedical Informatics, vol. 45, no. 1, pp. 184–198. https://doi.org/10.1016/j.jbi.2011.08.017 CrossRef
Klasnja, Predrag; Andrea Civan Hartzler; Kent T Unruh; and Wanda Pratt (2010a). Blowing in the Wind: Unanchored Patient Information Work during Cancer Care. In: CHI 2010. Proceedings of the SIG CHI conference on Human factors in computing systems, Atlanta, Georgia, 10 – 15 April 2010. New York: ACM Press, pp. 193–202. https://doi.org/10.1145/1753326.1753355
Klasnja, Predrag; Andrea Hartzler; Christopher Powell; Giovandy Phan; and Wanda Pratt (2010b). Health Weaver Mobile: Designing a Mobile Tool for Managing Personal Health Information during Cancer Care. In: AMIA 2010. Proceedings of the American Medical Informatics Association Annual Symposium, Washington, DC, 13 – 17 November 2010. pp. 392–6. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3041373/
Kutz, Daniel; and Hamid Ekbia (2011). Designing for the Invincible: Health Engagement and Information Management. In: HICSS 2011. Proceedings of the Annual Hawaii International Conference on System Sciences, Kauai, Hawaii, USA, 3 – 7 January 2011. Washington, DC: IEEE Computer Society, pp. 1–10. https://doi.org/10.1109/HICSS.2011.150
Kuutti, Kari; and Liam J. Bannon (2014). The turn to practice in HCI: Towards a research agenda. In M. Jones, et al. (eds.), CHI’14: Proceedings of the 32nd Annual ACM Conference on Human Factors In Computing Systems, Toronto, Canada, 26 April - 1 May 2014. New York: ACM Press, pp. 3543–3552.
Lahtiranta, Jamnne (2009). Current challenges of personal health information management. Journal of Systems and Information Technology. vol. 11. no. 3, pp. 203–43.
Leonardi, Paul (2010). Digital materiality? How artifacts without matter, matter. First Monday, vol. 15, no. 6. https://doi.org/10.5210/fm.v15i6.3036e
Lindeman, David (2010). Lessons from a Leader in Telehealth Diffusion: A Conversation with Adam Darkins of the Veterans Health Administration. Ageing International. https://doi.org/10.1007/s12126-010-9079-7
Mickelson, Robin; Matt Willis; and Richard Holden (2015). Medication-related cognitive artifacts used by older adults with heart failure. Health Policy and Technology, vol. 4, no. 4, pp. 387–398. https://doi.org/10.1016/j.hlpt.2015.08.009 CrossRef
Miles, Matthew; and Michael Huberman (1994). Qualitative data analysis: an expanded sourcebook (1st ed.). Thousand Oaks, California: Sage.
Moen, Anne; and Patricia Flatley Brennan (2005). Health @ Home: The Work of Health Information Management in the Household (HIMH): Implications for Consumer Health Informatics (CHI) Innovations. Journal of the American Medical Informatics Association, vol. 12, no. 6, pp. 648. CrossRef
Nazi, Kim M (2013) The Personal Health Record Paradox: Health Care Professionals’ Perspectives and the Information Ecology of Personal Health Record Systems in Organizational and Clinical Settings. Journal of Medical Internet Research, vol. 15, no. 4, pp. e70. https://doi.org/10.2196/jmir.2443 CrossRef
Nazi, Kim M.; Timothy P. Hogan; Todd H. Wagner; D. Keith McInnes; Bridget M. Smith; David Haggstrom; … Frances M. Weaver (2010). Embracing a health services research perspective on personal health records: lessons learned from the VA My HealtheVet system. Journal of General Internal Medicine, vol. 25, no.1, pp. 62–67. https://doi.org/10.1007/s11606-009-1114-6
Northcutt, Norvell; and Danny McCoy (2004). Interactive qualitative analysis: a systems method for qualitative research (1st ed.). Thousand Oaks, California: Sage. CrossRef
Nunes, Francisco; and Geraldine Fitzpatrick (2015). Self-Care Technologies and Collaboration. International Journal of Human-Computer Interaction, vol. 31, no. 12, pp. 869–881. https://doi.org/10.1080/10447318.2015.1067498 CrossRef
Orlikowski, Wanda J. (2000). Using Technology and Constituting Structures: A Practice Lens for Studying Technology in Organizations. Organization Science, vol. 11, no. 4, pp. 404–428. https://doi.org/10.1287/orsc.11.4.404.14600 CrossRef
Orlikowski, Wanda J.; and Susan V. Scott (2008). Sociomateriality: Challenging the separation of technology, work and organization. The Academy of Management Annals, vol. 2, no. 1, pp. 433-474. https://doi.org/10.1080/19416520802211644
Østerlund, Carsten; Nienke P Dosa; and Catherine Arnott Smith (2005). Mother Knows Best: Medical Record Management for Patients with Spina Bifida During the Transition from Pediatric to Adult Care. In AMIA 2005. Proceedings of the American Medical Informatics Association Annual Symposium, Washington, DC, USA, 22 – 26 October 2006, pp. 580–584. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC1560796/
Østerlund, Carsten; Finn Kensing; and Elizabeth Davidson (2011). Personal Health Records in the US and Denmark: From visions to versions? In Bjørn et al. (eds), Infrastructures for Healthcare: Global Healthcare: Proceedings of the 3rd International Workshop 2011, IT University of Copenhagen, pp. 13–16.
Østerlund, Carsten; Finn Kensing; and Silvia Gherardi (2014). Personal Health Records: Empowering patients through information systems? Information Technology & People, vol. 27, no. 4, pp. 390–396.
Palen, Leysia; and Stinne Aaløkke Ballegaard (2006). Of Pill Boxes and Piano Benches: “Home-made” Methods for Managing Medication. In CSCW 2006. Proceedings of the ACM Conference on Computer Supported Cooperative Work, Banff, Alberta, Canada, 4-8 November 2006. New York: ACM Press, pp. 79–88.
Piras, Enrico Maria (2016). The Changing Locus of Health Data Production and Use: Patient-Generated Health Data, Observations of Daily Living, and Personal Health Information Management. In COOP 2016. Proceedings of the international conference on the Design of Collaborative Systems, Trento, Italy, 22 – 27 May 2016, pp. 1–7.
Piras, Enrico Maria; and Alberto Zanutto (2010). Prescriptions, X-rays and Grocery Lists. Designing a Personal Health Record to Support (The Invisible Work Of) Health Information Management in the Household. Computer Supported Cooperative Work (CSCW), vol. 19, no. 6, pp. 585–613. https://doi.org/10.1007/s10606-010-9128-5 CrossRef
Pratt, Wanda; Madhu C. Reddy; David W. McDonald; Peter Tarczy-Hornoch; and John H. Gennari (2004). Incorporating ideas from computer-supported cooperative work. Journal of Biomedical Informatics, vol. 37, no. 2, pp. 128–137. https://doi.org/10.1016/j.jbi.2004.04.001 CrossRef
Pratt, Wanda; Kenton Unruh; Andrea Civan; and Meredith Skeels (2006). Personal health information management. Communications of the ACM, vol. 49, no. 1, pp. 51–55. CrossRef
Purin, Barbara; and Enrico Maria Piras (2011). Personal Health Records among Institutions, Medical Records, and Patient Wisdom: A Socio-technical Approach. In M. Kostkova and P. Szomszor (eds), Electronic Healthcare. Springer-Verlag., pp. 151–158. https://doi.org/10.1007/978-3-642-23635-8
Saldana, Johnny (2013). The coding manual for qualitative researchers (2nd ed.). Los Angeles: Sage.
Sassen, Saskia (2005). Territory, Authority, Rights. Princeton, NJ: Princeton University Press.
Smith, Aaron (2012). Nearly half of American adults are smartphone owners. Washington, D.C. Retrieved from Pew Research Center’s Internet & American Life Project
Suchman, Lucy (1985). Plans and situated actions: The problem of human-machine communication. New York, NY, US: Cambridge University Press
Swan, Melanie (2009). Emerging patient-driven health care models: an examination of health social networks, consumer personalized medicine and quantified self-tracking. International Journal of Environmental Research and Public Health, vol. 6, no. 2, pp. 492–525. https://doi.org/10.3390/ijerph6020492 CrossRef
Taha, Jessica; Sara J Czaja; Joseph Sharit; and Daniel G Morrow (2013). Factors affecting usage of a personal health record (PHR) to manage health. Psychology and Aging. American Psychological Association. Retrieved from https://www.ncbi.nlm.nih.gov/pubmed/24364414
Unruh, Kenton T; and Wanda Pratt (2007). Patients as actors: the patient’s role in detecting, preventing, and recovering from medical errors. International Journal of Medical Informatics, vol. 76 Suppl 1, pp. S236-S244. https://doi.org/10.1016/j.ijmedinf.2006.05.021 CrossRef
Unruh, Kenton T; and Wanda Pratt (2008). Barriers to Organizing Information during Cancer Care: “I don’t know how people do it". In: AMIA 2008. Proceedings of the American Medical Informatics Association Annual Symposium, Washington, DC, USA, 8 – 12 November 2008. pp. 742–746.
Unruh, Kenton T; Meredith Skeels; Andrea Civan-Hartzler; and Wanda Pratt (2010). Transforming Clinic Environments into Information Workspaces for Patients. In: CHI 2010. Proceedings of the SIG CHI conference on Human factors in computing systems, Atlanta, Georgia, 10 – 15 April 2010. New York: ACM Press, pp. 183–192. https://doi.org/10.1145/1753326.1753354
Walsham, Geoff (2006). Doing Interpretive Research. European Journal of Information Systems, vol. 15, no. 3, pp. 320–330. CrossRef
Wulf, Volker; Claudia Müller; Volkmar Pipek; David Randall; Markus Rohde; and Gunnar Stevens (2015). Practice-based computing: Empirically grounded conceptualizations derived from design case studies. In V. Wulf; K. Schmidt; and D. Randall (eds.), Designing Socially Embedded Technologies in the Real-World, London: Springer, pp. 111–150.
Yin, Robert (2014). Case Study Research: Design and Methods (5th ed.). Thousand Oaks, California: Sage Publications.
- I’m Trying to Find my Way of Staying Organized: the Socio-Technical Assemblages of Personal Health Information Management
- Springer Netherlands
Computer Supported Cooperative Work (CSCW)
The Journal of Collaborative Computing and Work Practices
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