Abstract
Health care systems are in transition to citizen-centered care with focus on prevention, proactive and personalized services and healthy lifestyles. Innovative technologies enable citizens’ empowerment and allow them to manage their complete health and wellness. Citizen-centered tools collect life-long cross-institutional information and data from health care providers and citizens. From the health care organizations viewpoint the new paradigm implies changes in the ways how the services are produced, how they are offered for use and in the contents of the services. Research with the citizen-centered health paradigm has been active and many significant results have been achieved, for instance improvements in citizens’ lifestyle, weight loss, reduction of the duration of hospitalization, better accessibility of health related information and improved communication between the care providers. Based on our literature review we present in this chapter the approaches, achievements, barriers and challenges of citizen-centered health paradigm. We propose a new innovative approach to build the next generation, collaborative health information space that links the care providers and citizens together and helps them to access the distributed health resources any time anywhere. The visional, sustainable citizen-centered health environment offers means to gradually migrate from the current situation to a citizen-centered care environment where citizens have a participatory role in health care activities.
Access this chapter
Tax calculation will be finalised at checkout
Purchases are for personal use only
References
Aaltonen, J., Ailio, A., Kilpikivi, P. et al. (2009). Kansallisen tason sähköisten potilastietojärjestelmien toteuttamisvaihtoehtojen vertailu – Kattava projekti. SITRAn selvityksiä 12, http://www.sitra.fi (in Finnish).
Adler-Milstein, J., Bates, D. W., & Jha, A. K. (2009). US regional health information organisations: Progress and challenges. Health Affairs, 28, 483–492.
AHIMA e-HIM Personal Health Record Work Group. (2005). Defining the personal health record. Journal of AHIMA, 76(6), 24–25.
Ash, J. S., & Bates, D. W. (2005). Factors and forces affecting EHR system adoption: Report of a 2004 ACMI discussion. Journal of the American Medical Informatics Association, 12, 8–12.
Basch, P. (2005). Electronic health records and the national health information network: Affordable, adoptable and ready fro prime time? Annals of Internal Medicine, 143, 227–228.
Berry, L. L., & Mirabito, A. M. (2010). Innovative healthcare delivery. Business Horizons, 53, 157–169.
Boulos, M. N. K., & Wheeler, S. (2007). The emerging Web 2.0 Social software: An enabling suite of sociable technologies in health and health care education. Health Information and Libraries Journal, 24(1), 2–23.
Center for Information Technology Leadership (CITL). (2008). The value of personal health records. Healthcare Information and Management Systems Society (HIMSS), http://www.citl.org/publications/_pdf/CITL_PHR_Report.pdf. Accessed 28 Aug 2010.
Clarke, J. L., & Meiris, D. C. (2006). Electronic personal health records come of age. American Journal of Medical Quality, 21(3 Suppl), 5S-15S.
Codagnone, C. (2009). Reconstructing the whole: Present and future of personal health systems, PHS2020, European Commission, http://ec.europa.eu/information_society/activities/health/docs/projects/phs2020/phs2020-book-rev16082009.pdf. Accessed 28 Aug 2010.
Connecting for Health. (2008). Common framework for networked personal health information: Consumers as network participants. Markle Foundation, http://www.connectingforhealth.org/phti/docs/ConsumerNetwork.pdf. Accessed 28 Aug 2010.
Continua Health Alliance. (2005). Connected Personal Health in 2015: “Getting it Right!” – Looking back on the emergence of integrated person-centered health. Continua Health Alliance, http://www.continuaalliance.org/static/cms_workspace/CHA_WP081408v07.pdf. Accessed 28 Aug 2010.
De la Fuente, M. W., & Ros, L. (2009). A health collaborative network focus on self care processes in a personal assistant. IFIP Advances in ICT, 307, 759–766.
Detmer, D., & Steen, E. (2006). Learning from abroad: Lessons and questions on personal health records for national policy. The American Association of Retired Persons (AARP), http://assets.aarp.org/rgcenter/health/2006_10_phr_abroad.pdf. Accessed 28 Aug 2010.
Detmer, D., Bloomrosen, M., Raymond, B., & Paul, T. C. (2008). Integrated personal health records: Transformative tools for consumer-centric care. BMC Medical Informatics and Decision Making, 8:45, http://www.biomedcentral.com/1472-6947/8/45/.Accessed 28 Aug 2010.
eHealth roadmap – Finland. (2007). Reports of the Ministry for Social Affairs and Health, 2007:15, Helsinki.
European Commission, DG Information Society and Media, eHealth Unit (2006), Research Book of EU projects on Health. Brussels.
Fayn, J., & Rubel, P. (2010). Toward a personal health society in cardiology. IEEE Transactions on Information Technology in Biomedicine, 14(2), 401–9.
Frantzidis, C. A., & Bamidis, P. D. (2009). Description and future trends of ICT solutions offered towards independent living: The case of LLM project. ACM international conference proceeding series. Proceedings of the 2nd international conference on pervasive technologies related to assistive environments. Corfu, Greece (PETRA 09), ACM, New York, USA.
Froomkin, M. A. (2008). The new health information architecture: Coping with the privacy implications of the personal health records revolution. UM ELSI Group for Project HealthDesign.
Ganesh, J. (2004). E-health – drivers, applications, challenges ahead and strategies: A conceptual framework. Indian Journal of Medical Informatics, 1, 39–47.
Halamka, J. D., Mandl, K. D., & Tang, P. C. (2008). Early experiences with personal health records. Journal of the American Medical Informatics Association, 15, 1–7.
Halonen, R. (2010). Social media as a means of peer support. In R. Suomi & I. Ilveskoski (Eds.), Navigating the fragmented innovation landscape. Proceedings of the 3rd international conference on well-being in the information society (WIS2010), Turku, Finland (pp. 48–60). TUCS General Publication 56, August, Turku, Finland.
Hawn, C. (2009). Report from the field: Take two aspirins and tweet me in the morning: How twitter, facebook and other social media are reshaping health care. Health Affairs, 28(2), 361–368.
Hill, J. W., & Powell, P. (2009). The national healthcare crisis: Is eHealth a key solution? Business Horizons, 52, 265–277.
Iliakovidis, I., Wilson, P., and Healy, J. C. (Eds.) (2005). eHealth. Current situation and examples of implemented and beneficial ehealth applications. The Netherlands: IOS Press.
James, G. A. (2007). Social, ethical and legal barriers to eHealth. International Journal of Medical Informatics, 76(5-6), 480–3.
Jha, A. K., Doolan, D., Grandt, D., Scott, T., & Bates, D. W. (2008). The use of health information technology in seven nations. International Journal of Medical Informatics, 77(12), 848–854.
Kaplan, A. M., & Haenlein, M. (2010). Users of the world, unite! the challenges and opportunities of social media. Business Horizons, 53, 59–68.
Kolitsi, Z., & Cabrera, M. F. (2007). Personal health systems: Deployment opportunities and ICT research challenges – Conference report. February 12–13, 2007, Brussels. European Commission http://ec.europa.eu/information_society/newsroom/cf/document.cfm?action=display&doc_id=323. Accessed 28 Aug 2010.
Koop, C. E., Mosher, R., Kun, L., Geiling, J., Grigg, E., Long, S., Macedonia, C., Merrell, R., Satava, R., & Rosen, J. (2008). Future delivery of health care: Cybercare. IEEE Engineering in Medicine and Biology Magazine, 27(6), 29–38. November-December.
Lee, H. J., Lee, S. H., Ha, K. S., Jang, H. C., Chung, W. Y., Kim, J. Y., Chang, Y. S., & Yoo, D. H. (2009). Ubiquitous healthcare service using Zigbee and mobile phone for elderly patients. International Journal of Medical Informatics, 78(3), 193–8.
Lopez, K. (2007). Global perspective on PHRs: Consumer engagement in health information exchange in Europe & the U.S., presentation, http://www.nocalhimss.org/events/presentations/ICW-Presentation.ppt. Accessed 28 Aug 2010.
Lorenzi, N., Kouroubali, A., Detmer, D., Bloomrosen, M. (2009). How to successfully select and implement electronic health records (EHR) in small ambulatory practice settings. BMC Medical Informatics and Decision Making 9: 15, http://www.biomedcentral.com/1472-6947/9/15. Accessed 28 Aug 2010.
Maglaveras, N., Chouvarda, I., Koutkias, V. G., Gogou, G., Lekka, I., Goulis, D., Avramidis, A., Karvounis, C., Louridas, G., & Balas, E. A. (2005). The citizen health system (CHS): A modular medical contact center providing quality telemedicine services. IEEE Transactions on Information Technology in Biomedicine, 9(3), 353–62.
Malmqvist, G., Nerander, K. G., & Larsson, M. (2005). Sjunet – The national IT infrastructure for healthcare in Sweden. In: I. Iliakovidis, P. Wilson, & J. C. Healy (Eds.), Current situation and examples of implemented and beneficial eHealth application, (pp. 41–49). The Netherlands: IOS Press.
Markle Foundation. (2003). Connecting for health: The personal health working group final report, July 1, http://www.connectingforhealth.org/resources/final_phwg_report1.pdf. Accessed 28 Aug 2010.
Mattila, E., Korhonen, I., Merilahti, J., Nummela, A., Myllymaki, M., & Rusko, H. (2008). A concept for personal wellness management based on activity monitoring. Second international conference on pervasive computing technologies for healthcare, PervasiveHealth 2008, pp. 32–36, Jan. 30, 2008–Feb. 1, 2008, Tampere, Finland.
Mattila, E., Korhonen, I., Salminen, J. H., Ahtinen, A., Koskinen, E., Sarela, A., Parkka, J., & Lappalainen, R. (2010). Empowering citizens for well-being and chronic disease management with wellness diary. IEEE Transactions on Information Technology in Biomedicine, 14(2), 456–463.
McConnell, H. (2004). International effort in implementing national health information infrastructure and electronic health records. World Hospitals and Health Services, 40(1), 33–52.
Monteagudo, J. L., & Moreno, O. (2007). D2.5, Report on Priority Topic Cluster two: Patient Empowerment. eHealth ERA (http://www.ehealth-era.org/documents/eH-ERA_D2.5_Patient_Empowerment_Final_31-03-2007_revised.pdf). Accessed 28 Aug 2010.
National Committee on Vital and Health Statistics (NCVHS). (2006). Personal Health Records and Personal Health Record Systems, U.S. Department of Health and Human Services, Feb. 2006.
Nykänen, P. (2008). Requirements for user friendly personal ehealth information systems. International council for medical and care compunetics (ICMCC) conference, June 2008, London, UK. In: L Bos, B Blobel, A Marsh and D Carroll (Eds.), Medical care and compunetics. Studies in Technology and Informatics 137. IOS Press, Amsterdam, 367–372.
Nykänen, P., Ruotsalainen, P., Blobel, B., & Seppälä, A. (2009). Research on trusted personal health and wellness information in ubiquitous health information space. In D. Dössel & W. C. Schlegel (Eds.), World congress on medical physics and biomedical engineering, Munchen, Germany.. IFMBE Proceedings 25/XII (pp. 432–435). Berlin: Springer.
Ohashi, M., Hori, M., & Suzuki, S. (2010). Citizen-centric e-healthcare management based on pervasive authentication – New ICT roadmap to active ageing. Fourth international conference on pervasive computing technologies for healthcare (PervasiveHealth), Munich, Germany.
Osmani, V., Balasubramaniama, S., & Botvich, D. (2008). Human activity recognition in pervasive health-care: Supporting efficient remote collaboration. Journal of Network and Computer Applications, 31(4), 628–655. November.
Pagliari, C., Detmer, D., & Singleton, P. (2007). Electronic personal records: Emergence and implications for the UK. The Nuffield Trust, http://www.nuffieldtrust.org.uk/ecomm/files/Elec%20Personal%20Records%20II.pdf. Accessed 28 Aug 2010.
Pratt, W., Unruh, K., Civan, A., & Skeels, M. (2006). Personal health information management. Communication of the ACM, 49(1), 51–55.
Prentza, A., Maglavera, S., & Maglaveras, N. (2006). Quality healthcare management and well-being through INTERLIFE services: New processes and business models. D2H2 1st transdisciplinary conference on distributed diagnosis and home healthcare (pp. 109–112), 2–4 April 2006, Arlington, USA.
PricewaterhouseCoopers Health Research Institute. (2005). Healthcast 2020: Creating a sustainable future. Pricewaterhousecoopers, http://www.pwc.com/us/en/healthcast/past-reports.jhtml. Accessed 28 Aug 2010.
Pulli, P., Metso, A., & Zheng, X. (2008). Ubiquitous services for senior citizens – service architecture and middleware. Applied Sciences on Biomedical and Communication Technologies, 2008. ISABEL ‘08. First International Symposium on, vol., no., pp.1–5, 25–28 Oct. 2008, Aalborg, Denmark.
Quinn, C. C., Gruber-Baldini, A. L., Shardell, M., Weed, K., Clough, S. S., Peeples, M., Terrin, M., Bronich-Hall, L., Barr, E., & Lender, D. (2009). Mobile diabetes intervention study: Testing a personalized treatment/behavioral communication intervention for blood glucose control. Contemporary Clinical Trials, 30(4), 334–346. 1 July.
Tang, P. C., Ash, J. S., Bates, D. W., Overhage, J. M., & Sands, D. Z. (2006). Personal health records: Definitions, benefits, and strategies for overcoming barriers to adoption. Journal of the American Medical Informatics Association, 13, 121–126.
Tang, P. C., & Lansky, D. (2005). The missing link: Bridging the patient — Provider health information gap. Health Affairs, 24(5), 1290–1295. Sep/Oct.
Teperi, J., Porter, M. E., Vuorenkoski, L., & Baron, J. (2009). The Finnish health care system: A value-based perspective. Sitra Reports 82, http://www.sitra.fi Accessed 28 Aug 2010.
The Long Lasting Memories. (2010), http://www.longlastingmemories.eu/. Accessed 23 Aug 2010.
Varshney, U. (2007). Pervasive healthcare and wireless health monitoring. Mobile Networks and Applications, 12, 113–127.
Wartena, F., Muskens, J., & Schmitt, L. (2009). Continua: The impact of a personal telehealth ecosystem. International conference on eHealth, telemedicine, and social medicine, eTELEMED ‘09, Cancun, Mexico.
World Health Organization (WHO). (2006). Gaining health – The European strategy for the prevention and control of noncommunicable diseases. Copenhagen, Denmark: WHO, Regional Office for Europe.
Acknowledgments
We acknowledge the partial funding of this research by Academy of Finland through Trusted eHealth and eWelfare Space-project in the MOTIVE Research Programme 2009–2012.
Author information
Authors and Affiliations
Corresponding author
Editor information
Editors and Affiliations
Rights and permissions
Copyright information
© 2012 Springer Science+Business Media, LLC
About this chapter
Cite this chapter
Nykänen, P., Seppälä, A. (2012). Collaborative Approach for Sustainable Citizen-Centered Health Care. In: Wickramasinghe, N., Bali, R., Suomi, R., Kirn, S. (eds) Critical Issues for the Development of Sustainable E-health Solutions. Healthcare Delivery in the Information Age. Springer, Boston, MA. https://doi.org/10.1007/978-1-4614-1536-7_8
Download citation
DOI: https://doi.org/10.1007/978-1-4614-1536-7_8
Published:
Publisher Name: Springer, Boston, MA
Print ISBN: 978-1-4614-1535-0
Online ISBN: 978-1-4614-1536-7
eBook Packages: MedicineMedicine (R0)