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Diagnosed HIV Infection in Transgender Adults and Adolescents: Results from the National HIV Surveillance System, 2009–2014

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Abstract

Publications on diagnosed HIV infection among transgender people have been limited to state- or local-level data. We analyzed data from the National HIV Surveillance System and present results from the first national-level analysis of transgender people with diagnosed HIV infection. From 2009 to 2014, HIV surveillance jurisdictions from 45 states plus the District of Columbia identified and reported at least one case of newly diagnosed HIV infection for transgender people; jurisdictions from 5 states reported no cases for transgender people. Of 2351 transgender people with newly diagnosed HIV infection during 2009–2014, 84.0% were transgender women (male-to-female), 15.4% were transgender men (female-to-male), and 0.7% were additional gender identity (e.g., gender queer, bi-gender). Over half of both transgender women (50.8%; 1002/1974) and men (58.4%; 211/361) with newly diagnosed HIV infection were non-Hispanic black/African American. Improvements in data collection methods and quality are needed to gain a better understanding of HIV burden among transgender people.

Resumen

Las publicaciones sobre el diagnóstico de la infección por VIH entre personas transgénero se han limitado a los datos estatales o locales. Analizamos los datos del Sistema Nacional de Vigilancia del VIH y presentamos los resultados del primer análisis a nivel nacional de personas transgénero con diagnóstico de infección por VIH. Del 2009 al 2014, las jurisdicciones de vigilancia del VIH de 45 estados más el Distrito de Columbia identificaron y reportaron al menos un caso de infección de VIH recientemente diagnosticada en personas transgénero; Jurisdicciones de 5 estados no reportaron casos en personas transgénero. De las 2.351 personas transgénero con infección por el VIH recién diagnosticada durante el período 2009-2014, el 84,0% eran mujeres transgénero (hombre a mujer), el 15,4% hombres transgéneros (mujer a hombre) y el 0,7% (género queer, bi-género). Más de la mitad de las mujeres (50,8%; 1002/1974) y los hombres (58,4%; 211/361) transgénero con infección por el VIH recientemente diagnosticada eran negros/afroamericanos. Se necesitan mejoras en los métodos de recopilación de datos y en la calidad de los datos para comprender mejor la cantidad de VIH en la población transgénero.

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Acknowledgments

The authors would like to thank the staff of HIV surveillance programs within state and city health departments. Publication of this manuscript would not have been possible without their dedication towards HIV surveillance activities and data collection. The authors thank Dr. Eduardo Valverde of CDC’s National Center for HIV, Viral Hepatitis, STD, and TB Prevention, Division of HIV/AIDS Prevention for his assistance with Spanish translation. For their review and commentary, the authors thank Dr. Deb Karch, Mrs. Anna Satcher Johnson, Dr. Azfar Sidiqi, and Dr. H. Irene Hall of CDC’s National Center for HIV, Viral Hepatitis, STD, and TB Prevention, Division of HIV/AIDS Prevention, and Dr. Sara Braunstein, Mr. Sonny Ly, and Dr. Lucia Torian of the New York City Department of Health and Mental Hygiene. Finally, the authors would like to acknowledge the dedication, work, and contribution of healthcare providers, community groups, and the transgender community.

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  1. National Center for HIV, Viral Hepatitis, STD and TB Prevention, Division of HIV/AIDS Prevention, Centers for Disease Control and Prevention, 1600 Clifton Rd., NE, MS-E46, Atlanta, GA, 30333, USA

    Hollie Clark & Nicole Crepaz

  2. ICF International, Atlanta, GA, USA

    Aruna Surendera Babu

  3. Division of Disease Control, New York City Department of Health and Mental Hygiene, New York City, NY, USA

    Ellen Weiss Wiewel

  4. District of Columbia Department of Health, HIV/AIDS, Hepatitis, STD and TB Administration, Strategic Information Division, Government of the District of Columbia, Washington, DC, USA

    Jenevieve Opoku

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Clark, H., Babu, A., Wiewel, E.W. et al. Diagnosed HIV Infection in Transgender Adults and Adolescents: Results from the National HIV Surveillance System, 2009–2014. AIDS Behav 21, 2774–2783 (2017). https://doi.org/10.1007/s10461-016-1656-7

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