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Erschienen in: Quality of Life Research 5/2009

01.06.2009

Measuring stigma across neurological conditions: the development of the stigma scale for chronic illness (SSCI)

verfasst von: Deepa Rao, Seung W. Choi, David Victorson, Rita Bode, Amy Peterman, Allen Heinemann, David Cella

Erschienen in: Quality of Life Research | Ausgabe 5/2009

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Abstract

Purpose

Most measures of stigma are illness specific and do not allow for comparisons across conditions. As part of a study of health-related quality of life for people with neurological disorders, our team developed an instrument to assess the stigma for people with chronic illnesses.

Methods

We based item content on literature review, responses from focus groups, and cognitive interviews. We then administered the items to people with neurological disorders for psychometric testing.

Results

Five hundred eleven participants completed items of the stigma scale. Exploratory factor analysis produced two factors that were highly correlated (r = 0.81). Confirmatory factor analysis produced high standardized loadings on an overall stigma factor (0.68–0.94), with poorer loadings on the two sub-domains (−0.12 to 0.53). These results demonstrated a sufficiently unidimensional scale that corresponded with the bifactor model. Item response theory modeling suggested good model fit, and differential item functioning analyses indicated that the 24-item scale showed potential for measurement equivalence across conditions.

Conclusions

Our efforts produced a stigma scale that had promising psychometric properties. Further study can provide additional information about the SSCI and its benefit in measuring the impact of stigma across conditions.

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Literatur
1.
Zurück zum Zitat Goffman, E. (1963). Stigma: Notes on the management of spoiled identity. New York: Simon and Schuster, Inc. Goffman, E. (1963). Stigma: Notes on the management of spoiled identity. New York: Simon and Schuster, Inc.
4.
Zurück zum Zitat Jones, E., Farina, A., Hastorf, A., Markus, H., Miller, D., & Scott, R. (1984). Social stigma the psychology of marked relationships. New York: W.H. Freeman and Company. Jones, E., Farina, A., Hastorf, A., Markus, H., Miller, D., & Scott, R. (1984). Social stigma the psychology of marked relationships. New York: W.H. Freeman and Company.
6.
Zurück zum Zitat Sikkema, K., Kalichman, S., Hoffmann, R., Koob, J., Kelly, J., & Heckman, T. (2000). Coping strategies and emotional well-being among HIV-infected men and women experiencing AIDS-related bereavement. AIDS Care, 12(5), 613–624. doi:10.1080/095401200750003798.PubMedCrossRef Sikkema, K., Kalichman, S., Hoffmann, R., Koob, J., Kelly, J., & Heckman, T. (2000). Coping strategies and emotional well-being among HIV-infected men and women experiencing AIDS-related bereavement. AIDS Care, 12(5), 613–624. doi:10.​1080/​0954012007500037​98.PubMedCrossRef
7.
Zurück zum Zitat Sirey, J. A., Bruce, M. L., Alexopoulos, G. S., Perlick, D. A., Friedman, S. J., & Meyers, B. S. (2001). Stigma as a barrier to recovery: Perceived stigma and patient-rated severity of illness as predictors of antidepressant drug adherence. Psychiatric Services (Washington, D.C.), 52(12), 1615–1620. doi:10.1176/appi.ps.52.12.1615. Sirey, J. A., Bruce, M. L., Alexopoulos, G. S., Perlick, D. A., Friedman, S. J., & Meyers, B. S. (2001). Stigma as a barrier to recovery: Perceived stigma and patient-rated severity of illness as predictors of antidepressant drug adherence. Psychiatric Services (Washington, D.C.), 52(12), 1615–1620. doi:10.​1176/​appi.​ps.​52.​12.​1615.
9.
Zurück zum Zitat Corrigan, P. W., & Watson, A. C. (2002). The paradox of self-stigma and mental illness. Clinical Psychology: Science and Practice, 9(1), 35–53.CrossRef Corrigan, P. W., & Watson, A. C. (2002). The paradox of self-stigma and mental illness. Clinical Psychology: Science and Practice, 9(1), 35–53.CrossRef
12.
Zurück zum Zitat Link, B., Yang, L., Phelan, J., & Collins, P. (2004). Measuring mental illness stigma. Schizophrenia Bulletin, 30(3), 511–541.PubMed Link, B., Yang, L., Phelan, J., & Collins, P. (2004). Measuring mental illness stigma. Schizophrenia Bulletin, 30(3), 511–541.PubMed
13.
Zurück zum Zitat Watson, A., Corrigan, P., Larson, J., & Sells, M. (2007). Self-stigma in people with mental illness. Schizophrenia Bulletin, 33(6), 1312–1318.PubMedCrossRef Watson, A., Corrigan, P., Larson, J., & Sells, M. (2007). Self-stigma in people with mental illness. Schizophrenia Bulletin, 33(6), 1312–1318.PubMedCrossRef
14.
Zurück zum Zitat Berger, B. E., Ferrans, C. E., & Lashley, F. R. (2001). Measuring stigma in people with HIV: Psychometric assessment of the HIV stigma scale. Research in Nursing and Health, 24, 518–529. doi:10.1002/nur.10011.PubMedCrossRef Berger, B. E., Ferrans, C. E., & Lashley, F. R. (2001). Measuring stigma in people with HIV: Psychometric assessment of the HIV stigma scale. Research in Nursing and Health, 24, 518–529. doi:10.​1002/​nur.​10011.PubMedCrossRef
15.
Zurück zum Zitat Sayles, J., Hays, R., Sarkisian, C., Mahajan, A., Spritzer, K., & Cunningham, W. (2008). Development and psychometric assessment of a multidimensional measure of internalized HIV stigma in a sample of HIV-positive adults. AIDS and Behavior, 12(5), 748–758.PubMedCrossRef Sayles, J., Hays, R., Sarkisian, C., Mahajan, A., Spritzer, K., & Cunningham, W. (2008). Development and psychometric assessment of a multidimensional measure of internalized HIV stigma in a sample of HIV-positive adults. AIDS and Behavior, 12(5), 748–758.PubMedCrossRef
19.
Zurück zum Zitat Weaver, F. M., Giobbie-Hurder, A. G., Hughes, S. L., Smith, G., Kubal, J. D., & Ulasevich, A. (1999). Home medical equipment receipt in a home care appropriate population. Journal of Aging and Health, 11(4), 494–516. doi:10.1177/089826439901100402.PubMedCrossRef Weaver, F. M., Giobbie-Hurder, A. G., Hughes, S. L., Smith, G., Kubal, J. D., & Ulasevich, A. (1999). Home medical equipment receipt in a home care appropriate population. Journal of Aging and Health, 11(4), 494–516. doi:10.​1177/​0898264399011004​02.PubMedCrossRef
20.
Zurück zum Zitat de Boer, A. G., Wijker, W., Speelman, J. D., & de Haes, J. C. (1996). Quality of life in patients with Parkinson’s disease: development of a questionnaire. Journal of Neurology, Neurosurgery and Psychiatry, 61(1), 70–74. doi:10.1136/jnnp.61.1.70.CrossRef de Boer, A. G., Wijker, W., Speelman, J. D., & de Haes, J. C. (1996). Quality of life in patients with Parkinson’s disease: development of a questionnaire. Journal of Neurology, Neurosurgery and Psychiatry, 61(1), 70–74. doi:10.​1136/​jnnp.​61.​1.​70.CrossRef
22.
Zurück zum Zitat Corbin, J., & Strauss, A. (2008). Basics of qualitative research. Los Angeles: Sage. Corbin, J., & Strauss, A. (2008). Basics of qualitative research. Los Angeles: Sage.
23.
Zurück zum Zitat Lawrence, J., Fauerbach, J., Heinberg, L., Doctor, M., & Thombs, D. (2006). The reliability and validity of the perceived stigmatization questionnaire (PSQ) and the social comfort questionnaire (SCQ) among an adult burn survivor sample. Psychological Assessment, 18(1), 106–111. doi:10.1037/1040-3590.18.1.106.PubMedCrossRef Lawrence, J., Fauerbach, J., Heinberg, L., Doctor, M., & Thombs, D. (2006). The reliability and validity of the perceived stigmatization questionnaire (PSQ) and the social comfort questionnaire (SCQ) among an adult burn survivor sample. Psychological Assessment, 18(1), 106–111. doi:10.​1037/​1040-3590.​18.​1.​106.PubMedCrossRef
27.
Zurück zum Zitat Green, C., Kiebert, G., Murphy, C., Mitchell, J., O′Brien, M., & Burrell, A. (2003). Patients’ health-related quality of life and health state values for motor neurone disease/amyotrophic lateral sclerosis. Quality of Life Research, 12, 565–574. doi:10.1023/A:1025052609818.PubMedCrossRef Green, C., Kiebert, G., Murphy, C., Mitchell, J., O′Brien, M., & Burrell, A. (2003). Patients’ health-related quality of life and health state values for motor neurone disease/amyotrophic lateral sclerosis. Quality of Life Research, 12, 565–574. doi:10.​1023/​A:​1025052609818.PubMedCrossRef
28.
Zurück zum Zitat Cella, D., Dineen, K., Arnason, B., Reder, A., Webster, K., & Karabatsos, G. (1996). Validation of the functional assessment of multiple sclerosis quality of life instrument. Neurology, 47, 129–139.PubMed Cella, D., Dineen, K., Arnason, B., Reder, A., Webster, K., & Karabatsos, G. (1996). Validation of the functional assessment of multiple sclerosis quality of life instrument. Neurology, 47, 129–139.PubMed
29.
Zurück zum Zitat Ford, H., Gerry, E., Tennant, A., Whalley, D., Haigh, R., & Johnson, M. (2001). Developing a disease-specific quality of life measure for people with multiple sclerosis. Clinical Rehabilitation, 15, 247–258. doi:10.1191/026921501673658108.PubMedCrossRef Ford, H., Gerry, E., Tennant, A., Whalley, D., Haigh, R., & Johnson, M. (2001). Developing a disease-specific quality of life measure for people with multiple sclerosis. Clinical Rehabilitation, 15, 247–258. doi:10.​1191/​0269215016736581​08.PubMedCrossRef
30.
Zurück zum Zitat Rotstein, Z., Barak, Y., Noy, S., & Achiron, A. (2000). Quality of life in multiple sclerosis: Development and validation of the ‘RAYS’ scale and comparison with the SF-36. International Journal for Quality in Health Care, 12(6), 511–517. doi:10.1093/intqhc/12.6.511.PubMedCrossRef Rotstein, Z., Barak, Y., Noy, S., & Achiron, A. (2000). Quality of life in multiple sclerosis: Development and validation of the ‘RAYS’ scale and comparison with the SF-36. International Journal for Quality in Health Care, 12(6), 511–517. doi:10.​1093/​intqhc/​12.​6.​511.PubMedCrossRef
32.
Zurück zum Zitat Willis, G. B. (1999). Cognitive interviewing: A “how to” guide, from the short course “reducing survey error through research on the cognitive and decision processes in surveys”. Presented at: Meeting of the American Statistical Association; Dallas, TX, USA. Willis, G. B. (1999). Cognitive interviewing: A “how to” guide, from the short course “reducing survey error through research on the cognitive and decision processes in surveys”. Presented at: Meeting of the American Statistical Association; Dallas, TX, USA.
33.
Zurück zum Zitat Ryan, G., & Bernard, H. (2000). Data management and analysis methods. In N. Denzin & Y. Lincoln (Eds.), Handbook of qualitative research. Thousand Oaks, CA: Sage Publications. Ryan, G., & Bernard, H. (2000). Data management and analysis methods. In N. Denzin & Y. Lincoln (Eds.), Handbook of qualitative research. Thousand Oaks, CA: Sage Publications.
34.
Zurück zum Zitat Samejima, F. (1969). Estimation of latent ability using a response pattern of graded scores. Psychometrika Monograph, No. 17. Samejima, F. (1969). Estimation of latent ability using a response pattern of graded scores. Psychometrika Monograph, No. 17.
35.
Zurück zum Zitat Orlando, M., & Thissen, D. (2003). Further investigation of the performance of S-X2: An item fit index for use with dichotomous item response theory models. Applied Psychological Measurement, 27, 289–298. doi:10.1177/0146621603027004004.CrossRef Orlando, M., & Thissen, D. (2003). Further investigation of the performance of S-X2: An item fit index for use with dichotomous item response theory models. Applied Psychological Measurement, 27, 289–298. doi:10.​1177/​0146621603027004​004.CrossRef
37.
Zurück zum Zitat Alonso, J., Buron, A., Bruffaerts, R., He, Y., Posada-Villa, J., Lepine, J. P., et al. (2008). Association of perceived stigma and mood and anxiety disorders: Results from the World Mental Health Surveys. Acta Psychiatrica Scandinavica, 118(4), 305–314. doi:10.1111/j.1600-0447.2008.01241.x.PubMedCrossRef Alonso, J., Buron, A., Bruffaerts, R., He, Y., Posada-Villa, J., Lepine, J. P., et al. (2008). Association of perceived stigma and mood and anxiety disorders: Results from the World Mental Health Surveys. Acta Psychiatrica Scandinavica, 118(4), 305–314. doi:10.​1111/​j.​1600-0447.​2008.​01241.​x.PubMedCrossRef
38.
Zurück zum Zitat Zubrod, C., Schneiderman, M., & Frei, E. (1960). Appraisal of methods for the study of chemotherapy of cancer in man: Comparative therapeutic trial of nitrogen mustard and triethylene thiophosphoramide. Journal of Chronic Diseases, 11, 7–33. doi:10.1016/0021-9681(60)90137-5.CrossRef Zubrod, C., Schneiderman, M., & Frei, E. (1960). Appraisal of methods for the study of chemotherapy of cancer in man: Comparative therapeutic trial of nitrogen mustard and triethylene thiophosphoramide. Journal of Chronic Diseases, 11, 7–33. doi:10.​1016/​0021-9681(60)90137-5.CrossRef
40.
Zurück zum Zitat Hambleton, R. K., Swaminathan, H., & Rogers, H. J. (1992). Fundamentals of item response theory. Newbury Park, CA: Sage Hambleton, R. K., Swaminathan, H., & Rogers, H. J. (1992). Fundamentals of item response theory. Newbury Park, CA: Sage
42.
Zurück zum Zitat Perez, L., Huang, J., Jansky, L., Nowinski, C., Victorson, D., Peterman, A., et al. (2007). Using focus groups to inform the Neuro-QOL measurement tool: Exploring patient-centered, health-related quality of life concepts across neurological conditions. The Journal of Neuroscience Nursing, 39(6), 342–353. doi:10.1097/01376517-200712000-00005.PubMedCrossRef Perez, L., Huang, J., Jansky, L., Nowinski, C., Victorson, D., Peterman, A., et al. (2007). Using focus groups to inform the Neuro-QOL measurement tool: Exploring patient-centered, health-related quality of life concepts across neurological conditions. The Journal of Neuroscience Nursing, 39(6), 342–353. doi:10.​1097/​01376517-200712000-00005.PubMedCrossRef
45.
Zurück zum Zitat McDonald, R. P. (1999). Test theory: A unified treatment. Mahwah, NJ: Lawrence Erlbaum. McDonald, R. P. (1999). Test theory: A unified treatment. Mahwah, NJ: Lawrence Erlbaum.
Metadaten
Titel
Measuring stigma across neurological conditions: the development of the stigma scale for chronic illness (SSCI)
verfasst von
Deepa Rao
Seung W. Choi
David Victorson
Rita Bode
Amy Peterman
Allen Heinemann
David Cella
Publikationsdatum
01.06.2009
Verlag
Springer Netherlands
Erschienen in
Quality of Life Research / Ausgabe 5/2009
Print ISSN: 0962-9343
Elektronische ISSN: 1573-2649
DOI
https://doi.org/10.1007/s11136-009-9475-1

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