ABSTRACT
Past and current research studies recurrently acknowledge the relevance of technological developments to support informal caregivers with their activities and responsibilities. These studies highlight the demands associated with caregiving and suggest that further research in the area is needed to better understand such demands and to figure out more effective ways for technologies to support people who deal with them. In Europe, especial attention has been dedicated to informal caregivers for the past few years, due to indicators showing that more than 80% of the care for frail and old people, one of the major groups of care receivers in the region, is informally provided by family members and friends. The same scenario can be found across different continents, corroborating the relevance of the subject. Therefore, this workshop seeks contributions exploring issues of collaboration and coordination in the context of informal care. Early stage research studies in the area as well as contributions exploring the design and evaluation of computer technologies for it are most welcome.
- Magnusson, L., Hanson, E., Britto, L., Berthold, H., Chambers, M., and Daly, T. 2002. Supporting Family Carers Through the Use of Information and Communication Technolgy - the EU Project ACTION. International Journal of Nursing Studies. 39, 2002, 369--381.Google ScholarCross Ref
- Müller, S., Sanit, M., and Sixsmith, A. 2008. Eliciting User Requirements for Ambient Assisted Living: Results of the SOPRANO Project. In eChallenges 2008, Stockhilm, Sweden. IOS Press, Amsterdam, 81--88.Google Scholar
- Nies, H.2004. A European Research Agenda or Integrated Care for Older People. 24 p.Google Scholar
- Pochobradsky, E., Bergman, F., Brix-Samoylenko, H., Erfkamp, H., and Laub, R.2005. Situation pflegender AngehörigerEndbericht Österreichisches Bundesinstitut für Gesundheitswesen (ÖBIG) im Auftrag des Bundesministeriums für soziale Sicherheit, Generationen und Konsumentenschutz. 42 p.Google Scholar
- Savage, S. and Bailey, S. 2004. The impact of caring on caregivers' mental health: a review of the literature. Australian Health Review. 27, 1, 7.Google ScholarCross Ref
- de Carvalho, A.F.P., Schinkinger, S., Breskovic, I., and Tellioğlu, H. 2013. Technology for Work-Life Balance in Terms of Informal Care Work. In ECSCW 2013 Workshop "CSCW at the Boundary of Work and Life", Paphos, Cyprus, 1--6.Google Scholar
- Cranswick, K. and Dosman, D. 2008. Eldercare: What we know today. Canadian Social Trends. 86 (21.10.2008), 10.Google Scholar
- Given, B.A., Given, C.W., and Kozachik, S. 2001. Family support in advanced cancer. A Cancer Journal for Clinicians. 51, 4, 19.Google ScholarCross Ref
- Chwalisz, K. and Kisler, V. 1995. Perceive Stress: A Better Measure of Carer Burden. Measurement and Evaluation in Counseling and Development. 28, 88--98.Google Scholar
- Brouwer, W.B.F., van Exel, N.J.A., van de Berg, B., Dinant, H.J., Koopmanschap, M.A., and van den Bos, G.A.M. 2004. Burden of caregiving: Evidence of objective burden, subjective burden, and quality of life impacts on informal caregivers of patients with rheumatoid arthritis. Arthritis Care & Research. 51, 4, 570--577. D.O.I = 10.1002/art.20528.Google ScholarCross Ref
- Coon, D. and Evans, B. 2009. Empirically Based Treatments for Family Carers Distress: What Works and Where do We Go From Hear. Geriatric Nursing. 30, 6, 426--436.Google ScholarCross Ref
- Breskovic, I., de Carvalho, A.F.P., Schinkinger, S., and Tellioğlu, H. 2013. Social Awareness Support for Meeting Informal Carers' Needs: Early Development in TOPIC. In Adjunct Proceedings of the 13th European Conference on Computer Supported Cooperative Work (ECSCW 2013), Paphos, Cyprus. Department of Computer Science Aarhus University, Aarhus, Denmark, 3--8.Google Scholar
- Gaver, W.W. 2006. The Video Window: My Life with a Ludic System. Pers Ubiquit Comput 10, 60--65. Google ScholarDigital Library
- Podtschaske, B., Glende, S., and Nedopil, C. 2010. Nutzerabhängige Innovationsbarrieren im Bereich altersgerechter Assistenzsysteme, 1. Studie im Rahmen der AAL-Begleitforschung des Bundesministeriums für Bildung und Forschung. Abschlussbericht. Available from: http://www.aal-deutschland.de/deutschland/dokumente/Abschlussbericht AAL-Nutzerstudie_Final.pdf {last accessed: 26 Sep 2013}Google Scholar
- Van Dijk, J. 2010. Conceptual Framework of the Study on the Social Impact of ICT, 1--30. Available from: http://ec.europa.eu/information_society/newsroom/cf/document.cfm?action=display&doc_id=673 {last accessed: 26 Sep 2013}Google Scholar
- Niitamo, V.-P., Kulkki, S., Eriksson, M., and Hribernik, K.A. 2006. State-of-the-art and Good Practice in the Field of Living Labs. In Proceedings of the 12th International Conference on Concurrent Enterprising: Innovative Products and Services through Collaborative Networks, Milan, Italy, 349--357.Google Scholar
- Budweg, S., Schaffers, H., Ruland, R., and Prinz, W. 2011. Enhancing Collaboration in Communities of Professionals Using a Living Lab Approach. Production Planning & Control. 22, 5.Google ScholarCross Ref
- Hlauschek, W., Panek, P., and Zagler, W.L. 2009. Involvement of Elderly Citizens as Potential end Users of Assistive Technologies in the Living Lab Schwechat. In Proceedings of the 2nd International Conference on PErvasive Technologies Related to Assistive Environments (PETRA '09). ACM, New York. Google ScholarDigital Library
- Harley, D. and Fitzpatrick, G. 2009. Creating a Conversational Context Through Video Blogging: Case Study of Geriatric 1927. Journal of Computers in Human Behavior, Special Issue "Enabling Elderly Users to Create and Ahare Self Authored Multimedia Content". 25, 3, 679--689. Google ScholarDigital Library
- Tixier, M. and Lewkowicz, M.I.E., , . . 2009. Designing Social Support Online Services for Communities of Family Carers. In BIS Workshop. Springer-Verlag, Berlin/Heidelberg, 336--347.Google Scholar
- Harley, D. and Fitzpatrick, G. 2009. YouTube and Intergenerational Communication: The case of Geriatric 1927. Universal Access in the Information Society. 8, 1. Google ScholarDigital Library
- Muüller, C., Wan, L., and Hrg, D. 2010. Dealing with Wandering: A Case Study on Carers' Attitudes towards Privacy and Autonomy when Reflecting the Use of LBS. In GROUP 2010.Google Scholar
- Rice, M. and Alm, N. 2007. Sociable TV: Exploring User-led Interaction Design for Older Adults. In Proceedings for the 5th European Conference on Interactive Television, Amsterdam, May 24--25. Google ScholarDigital Library
- Caplan, S.E. and Turner, J.S. 2007. Bringing Theory to Research on Computer-mediated Comforting Communication. Computers in Human Behavior. 23, 985--998.Google ScholarCross Ref
- Barnes, M.K. and Duck, S. 1994. Everyday Communicative Contexts for Social Support. In Communication of social support: Messages, interactions, relationships and communit, Burleson, B., Albrecht, T., and Sarason, I.G., (eds.). Sage, Thousand Oaks. p. 175--194.Google Scholar
Index Terms
- Collaboration and coordination in the context of informal care (CCCiC 2014)
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