ABSTRACT
This paper describes an interdisciplinary, user-centered approach to the design of healthcare technologies, involving clinicians, therapists, developers, Human-Computer Interaction (HCI) and Health and Social Care researchers. Our starting point has been to understand patients' experiences of becoming ill through a series of focus groups with health professionals, patients and their carers. We used the metaphor of illness as a journey to capture those experiences. We have also reviewed data in the public domain (http://www.healthtalkonline.org). We have employed a theoretical framework which combines concepts from Activity Theory and other social sciences approaches to model illnesses. We outlined a set of design concepts for the design of the SMART 2 system which are emerging from our analysis of the patient experience.
- Darzi, A. R. 2008. High quality care for all. NHS next stage review final report. Norwich, the Stationary Office.Google Scholar
- Lorig, K., and Holman, H. 2003. Self-management education: history, definition, outcomes and mechanisms. Annals of Behavioral Medicine. 26 (1), 1--7.Google ScholarCross Ref
- Bandura, A. 1997. The nature and structure of self-efficacy. In Self-efficacy: The Exercise of Control, A. Bandura, Ed. W. H. Freeman and Company, New York, NY, 36--78.Google Scholar
- Cooper, A., Reimann, R., & Cronin, D. 2007. About face 3. The essentials of interaction design. Wiley Publishing, Indianapolis, IN. Google ScholarDigital Library
- Labov, W. & Waletzky, J. 1997. Narrative analysis: Oral versions of personal experience. Journal of Narrative and Life History. 7 (1--4), 3--38.Google ScholarCross Ref
- McCarthy, J. and Wright, P. 2004. Technology as Experience. The MIT Press, Boston, MA. Google ScholarDigital Library
- Becker, G. B. 1993. Continuity after a stroke: Implications of life-course disruption in old age. The Gerontologist, 33 (2), 148--158.Google ScholarCross Ref
- Bury, M. 1991. The sociology of chronic illness: a review of research and prospect. Sociology of Health and Illness, 13 (4), 542--468.Google ScholarCross Ref
- Moggridge, B. 2007. Designing Interactions. The MIT Press, Cambridge, MA. Google ScholarDigital Library
- Campbell, J. 1968. The Hero with a Thousand Faces. Princeton University Press.Google Scholar
- Perry, L., & McLaren, S. 2003. Coping and adaptation at six months after stroke: experiences with eating disabilities. International Journal of Nursing Studies, 40, 185--195.Google ScholarCross Ref
- Folkman, S. 2008. The case for positive emotions in stress process. Anxiety, Stress & Coping, 21 (1), 3--14.Google Scholar
- Nardi, B. A. 1996. Context and Consciousness: Activity Theory and Human-Computer Interaction. MIT Press, Cambridge MA. Google ScholarDigital Library
- Wood, d., Bruner, J. S. and Ross, G. 1974. The role of tutoring in problem solving. Journal of Child Psychology and Psychiatry. 17 (2), 89--90.Google ScholarCross Ref
- Engeström, Y. 2001. Expansive Learning at Work: toward an activity theoretical reconceptualization. Journal of Education and Work, 14 (1), 133--156.Google ScholarCross Ref
- McLellan, D. L. 1997. Introduction to rehabilitation. In Rehabilitation Studies Handbook, B. A. Wilson, & D. L. McLellan, Eds. Cambridge University Press.Google Scholar
- Miller, W. R. & Rollnick, S. 2002. Motivational Interviewing. Preparing People for Change (2nd Ed). Guilford Press, New York, NY.Google Scholar
- Carrol, J. (Ed). 1995 Scenario-based design. Envisioning work and technology system development. Wiley Publishing. New York. Google ScholarDigital Library
- Blythe, M., Monk, A., and Park, J. 2002. Technology biographies: field study techniques for home use product development. In Proc. CHI '02 (Extended Abstracts), ACM Press, 658--659. Google ScholarDigital Library
- Nasr, N. 2007. Outcome from Total Hip Replacement: From Standardised Measures to Patient-Focused Narrative-Based Assessment. Doctoral Thesis. Sheffield Hallam University.Google Scholar
- Gaver, B., Dunne, T. and Pacenti, E. 1999. Cultural Probes. Interactions, 6 (1), 21--29. Google ScholarDigital Library
- Prochaska, J. O. 1979. Systems of Psychotherapy: A Transtheoretical Analysis. Brooks/Cole Publishing, Pacific Grove, CA.Google Scholar
- Jungk, R. and Müllert, N. 1987. Future Workshops: How to Create Desirable Futures. London: Institute for Social Inventions.Google Scholar
- Consolvo, S., Klasnja, P., McDonald, D. W., Avrahami, D., Froehlich, J., LeGrand, L., Libby, R., Mosher, K., Landay, J. A. 2008. Flowers or robot army?: encouraging awareness & activity with personal, mobile displays. UbiComp '08: Proceedings of the 10th international conference on Ubiquitous computing, Seoul, Korea. Google ScholarDigital Library
Index Terms
- User-centered design for supporting the self-management of chronic illnesses: an interdisciplinary approach
Recommendations
Self-Care Technologies in HCI: Trends, Tensions, and Opportunities
Many studies show that self-care technologies can support patients with chronic conditions and their carers in understanding the ill body and increasing control of their condition. However, many of these studies have largely privileged a medical ...
Features and Effects of Information Technology-Based Interventions to Improve Self-Management in Chronic Kidney Disease Patients: a Systematic Review of the Literature
Slowing down the progression of chronic kidney disease (CKD) and its adverse health outcomes requires the patient's self-management and attention to treatment recommendations. Information technology (IT)---based interventions are increasingly being used ...
Agent-based modeling for the self-management of chronic diseases
The impact of mobile technologies on healthcare is particularly evident in the case of self-management of chronic diseases, where they can decrease spending and improve life quality of patients. We propose the adoption of agent-based modeling and ...
Comments