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Über dieses Buch

The multidisciplinary book assesses the legal and economic uncertainties surrounding the collection, storage, provision and economic development of biological samples (tumors, tissues, cells) and associated personal data related to oncology. Public, partly public and private sector actors in the field of cancer care and research hold collections supported by significant public and social funding. Under certain conditions, particularly in the context of networking (sometimes promoted by public authorities), these collections can also represent major economic assets and scientific resources. However, this involves a number of issues and institutional constraints:

legal: the will of the source person; non-pecuniary damage; freedom to establish collections; competence in deciding on their use; legal frameworks for their distribution; desire for return on investment for public institutions, notably in terms of industrial and intellectual property.

economic: cost of establishing and running biological resource centres; destroying resources; emerging markets; profit sharing.

public health policy choices: prioritisation of therapeutic measures over research (fundamental or clinical trials); conservation of resources; promotion of scientific (and not commercial) value of collections.

The establishment, heritage recognition (“patrimonialisation”), development and sharing of these resources thus merit our calling into question present practices and their evolution, as well as the leverage available to public authorities (incentives, legislation, regulation) in a context where norms emerge from professional practice to become widely used in collaborative networks.

Filling a gap in the current literature on law and economics, which pays little heed to these specific considerations, this book explores these considerations to bring to light the economic implications of ethical choices and governance issues in the health sector (structural organisation of local, national and European actors in oncology).

It is intended for researchers in fields such as law, economics and biomedical sciences, as well as for public policymakers.

Inhaltsverzeichnis

Frontmatter

Tumor Banks or the Valorization of a Complex Object

Frontmatter

2018 | OriginalPaper | Buchkapitel

Chapter 1. Is Putting Cancer in Banks a Patrimony To Be Developed?

Xavier Bioy

2018 | OriginalPaper | Buchkapitel

Chapter 2. Biological Samples and Their Sampling Degrees

Thibaut Coussens-Barre

2018 | OriginalPaper | Buchkapitel

Chapter 3. Personal Data Protection in Tumor Banks

Emilie Debaets

2018 | OriginalPaper | Buchkapitel

Chapter 4. The Policies of Tumor Biobankers: Main Strategies and an Example of the Policies Adopted by the Nice Hospital Biobank, France

Paul Hofman

2018 | OriginalPaper | Buchkapitel

Chapter 5. The Concept of Biological Samples Collection

Anne Brouchet, Sophie Peries

2018 | OriginalPaper | Buchkapitel

Chapter 6. Does Tumor Bank Regulation Promote the Valorization of Tumor Collections?

Anna Pigeon

2018 | OriginalPaper | Buchkapitel

Chapter 7. Economic Modeling and Valorization of Biobanks

Catherine Bobtcheff, Carole Haritchabalet

2018 | OriginalPaper | Buchkapitel

Chapter 8. Socializing Tumors: From the Conservation of Tumors in Banks to Their Ontological Variations

Fabien Milanovic

The Issues Related to Tumor Collections Valorization

Frontmatter

2018 | OriginalPaper | Buchkapitel

Chapter 9. The Valorization of Tumor Collections: Reconciling the Interests of the Different Actors

Emmanuelle Rial-Sebbag

2018 | OriginalPaper | Buchkapitel

Chapter 10. The Development of Tumor Collections: The Interest of the European Union

Nathalie De Grove-Valdeyron

The Means for Tumor Collections Valorization

Frontmatter

2018 | OriginalPaper | Buchkapitel

Chapter 11. Academic Valorization of Biobanks

Anne-Marie Duguet, Laurence Mabile, Anne Cambon-Thomsen

2018 | OriginalPaper | Buchkapitel

Chapter 12. Commercialization Through the Use of Private Law Contracts

Laurent Izac

2018 | OriginalPaper | Buchkapitel

Chapter 13. The Governance Framework of North American Biobanks: A Rapidly Evolving Policy Patchwork

Yann Joly, Miriam Pinkesz

2018 | OriginalPaper | Buchkapitel

Chapter 14. Biobank Expertise and the Research Unit-Biobank Relationship

Catherine Bobtcheff, Carole Haritchabalet

2018 | OriginalPaper | Buchkapitel

Chapter 15. Extra-Patrimoniality for the Patient

Sophie Paricard

2018 | OriginalPaper | Buchkapitel

Chapter 16. The Moment of Patrimonialization

Marie-Xavière Catto

2018 | OriginalPaper | Buchkapitel

Chapter 17. The Patrimonial Specificities of Public Persons

Benoît Schmaltz, Pierre Égéa

2018 | OriginalPaper | Buchkapitel

Chapter 18. Biological Sample Collection in the Era of Genomic Medicine: A New Example of a Public Commons?

Christine Noiville, Florence Bellivier
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