Weitere Artikel dieser Ausgabe durch Wischen aufrufen
Our primary objective was to identify cognitive and behavioural profiles that affect adjustment, in order to make relevant recommendations about support and assistance for parents of autistic children.
One hundred and sixty French parents completed a battery of questionnaires and self-report measures developed or adapted to assess (1) the child and family situations; (2) perceived stress; (3) perceived social support; (4) perceived control; (5) coping strategies; and (6) quality of life.
The psychometric properties of the instruments we used proved to be adequate. Our results support the pre-existing data and our findings may prove to be of interest to clinicians. Our primary finding was that emotion-focused coping strategies seem to be less effective. Parents who employed emotion-focused strategies were more stressed and more disturbed in most parts of their life. They also experienced more guilt and reported more false beliefs about PDD.
Our data underscore the need for psychoeducation programmes for parents, focused on handling stress and emotions, modifying false beliefs and solving the daily problems that arise from PDD. We propose a 5-axis intervention model for parents of children with PDD, based on cognitive–behavioural therapies and on a stress management programme.
Bitte loggen Sie sich ein, um Zugang zu diesem Inhalt zu erhalten
Sie möchten Zugang zu diesem Inhalt erhalten? Dann informieren Sie sich jetzt über unsere Produkte:
Volkmar, F. R., Klin, A., Paul, R., & Cohen, J. D. (2005). Handbook of autism (3rd ed.). New York: Willey.
Hastings, R. P. (2003). Child behaviour problems and partner mental health as correlates of stress in mothers and fathers of children with autism. Journal of Intellectual Disabilities Research, 47(4–5), 231–237. CrossRef
Allik, H., Larsson, J. O., & Smedje, H. (2006). Health-related quality of life in parents of school-age children with Asperger syndrome or high-functioning autism. Health Quality of Life Outcomes, 4(1), published online: http://www.hqlo.com/content/pdf/1477-7525-4-1.pdf.
Cappe, E., Bobet, R., & Adrien, J.-L. (2009). Qualité de vie et processus d’adaptation des familles d’un enfant ayant un trouble autistique ou un syndrome d’Asperger. La Psychiatrie de l’enfant, 52(1), 201–246. CrossRef
Ghanizadeh, A., Alishahi, M.-J., & Ashkani, H. (2009). Helping families for caring children with Autistic Spectrum Disorders. Archives of Iranian Medicine, 12(5), 478–482. PubMed
Hutton, A. M., & Caron, S. L. (2005). Experiences of families with children with autism in rural New England. Focus on Autism and Other Developmental Disabilities, 20(3), 180–189. CrossRef
Lickenbrock, D. M. Ekas, N.V., & Whitman, T. L. (2010). Feeling good, Feeling bad: Influences of maternal perceptions of the child and marital adjustment on well-being in mothers of children with an Autism Spectrum Disorder. Journal of Autism and Developmental Disorders, published online: 14 September 2010.
Montes, G., & Halterman, J. S. (2006). Psychological functioning and coping among mothers of children with autism: A population- based study. Pediatrics, 119, 1040–1046. CrossRef
Mugno, D., Ruta, L., Genitori, D’Arrigo, V., & Mazzone, L. (2007). Impairment of quality of life in parents of children and adolescents with pervasive developmental disorder. Health and Quality of Life Outcomes, 5(22), published online: http://www.hqlo.com/content/pdf/1477-7525-5-22.pdf.
Pisula, E. (2002). Parents of children with autism: Recent research findings. Psychiatra Polska, 36(1), 95–108.
Altiere, M. J., & von Kluge, S. (2009). Searching for acceptance: Challenges encountered while raising a child with autism. Journal of Intellectual & Developmental Disability, 34(2), 142–152. CrossRef
Ekas, N. V., Whitman, T. L., & Shivers, C. (2009). Religiosity, spirituality, and socioemotional functioning in mothers of children with Autism Spectrum Disorder. Journal of Autism and Devolpmental Disorders, 39, 706–719. CrossRef
Greenberg, J. S., Seltzer, M. M., Krauss, M. W., Chou, R. J.-A., & Hong, J. (2004). The effect of quality of the relationship between mothers and adult children with schizophrenia, autism, or Down syndrome on maternal well-being: The mediating role of optimism. American Journal of Orthopsychiatry, 74(1), 14–25. PubMedCrossRef
Manning, M. M., Wainwright, L., & Bennett, J. (2010). The double ABCX model of adaptation in racially diverse families with a school-age child with autism. Journal of Autism and Developmental Disorders, published online: 10 July 2010.
Phelps, K. W., McCammon, S. L., Wuensch, K. L., & Golden, J. A. (2009). Enrichment, stress, and growth from parenting an individual with an autism spectrum disorder. Journal of Intellectual & Developmental Disability, 34(2), 133–141. CrossRef
WHOQOL Group. (1993). Study protocol for the World Health Organization project to develop a quality of life assessment instrument (WHOQOL). Quality of Life Research, 2, 153–159. CrossRef
Epstein, T., Saltzman-Benaiah, J., O’Hare, A., Goll, J. C., & Tuck, S. (2008). Associated features of Asperger Syndrome and their relationship to parenting stress. Child: Care, Health and Development, 34(4), 503–511. CrossRef
Herring, S., Gray, K., Taffe, J., Tonge, B., Sweeney, D., & Einfeld, S. (2006). Behaviour and emotional problems in toddlers with pervasive developmental disorders and developmental delay: associations with parental mental health and family functioning. Journal of Intellectual Disability Research, 50(12), 874–882. PubMedCrossRef
Phetrasuwan, S., & Miles, M. S. (2009). Parenting stress in mothers of children with autism spectrum disorders. The Journal for Specialists in Pediatric Nursing, 14(3), 158–165.
Altiere, M. J., & von Kluge, S. (2009). Family functioning and coping behaviors in parents of children with autism. Journal of Child and Family Studies, 18, 83–92. CrossRef
Lloyd, T., & Hastings, R. P. (2009). Parental locus of control and psychological well-being in mothers of children with intellectual disability. Journal of Intellectual & Developmental Disability, 34(2), 104–115. CrossRef
Pisula, E., & Kossakowska, Z. (2010). Sense of coherence and coping with stress among mothers and fathers of children with autism. Journal of Autism and Developmental Disorders, published online: 02 April 2010.
Siman-Tov, A., & Kaniel, S. (2010). Stress and personal resource as predictors of the adjustment of parents to autistic children: A multivariate model. Journal of Autism and Developmental Disorders, published online: 25 September 2010 .
Tobing, L. E., & Glenwick, D. S. (2007). Predictors and moderators of psychological distress in mothers of children with pervasive developmental disorders. Journal of Family Social Work, 10(4), 1–22. CrossRef
Rotter, J. B. (1990). Internal versus external control of reinforcement. American Psychologist, 45, 489–493. CrossRef
Lazarus, R. S., & Folkman, S. (1984). Stress, appraisal, and coping. New York: Springer.
Bruchon-Schweitzer, M. (2002). Psychologie de la santé. Modèles, concepts et méthodes. Paris: Dunod.
Pierce, G. R., Sarason, B. R., & Sarason, I. G. (1996). Handbook of social support and the family. New York: Plenum Press.
Sarafino, E. P. (1994). Health Psychology. Biopsychosocial interactions. Chichester: Wiley.
Zeidner, M., & Endler, N. S. (1996). Handbook of coping: Theory, research, applications. New York: Wiley.
Ekas, N. V., Lickenbrock, D. M., & Whitman, T. L. (2010). Optimism, social support, and well-being in mothers of children with Autism Spectrum Disorder. Journal of Autism and Developmental Disorders, published online: 02 March 2010.
Boyd, B. A. (2002). Examining the relationship between stress and lack of social support in mothers of children with autism. Focus on Autism and other Developmental Disabilities, 17(4), 208–215. CrossRef
Tarakeswahr, N., & Pargament, K. I. (2001). Religious coping in families of children with autism. Focus on Autism and Other Developmental Disabilities, 16, 247–260. CrossRef
Pottie, C. G., & Ingram, K. M. (2008). Daily stress, coping, and well-being in parents of children with autism: A multilevel modeling approach. Journal of Family Psychology, 22(6), 844–864. CrossRef
Jones, J., & Passey, J. (2005). Family adaptation, coping and resources: parents of children with developmental disabilities and behaviour problems. Journal on Developmental Disabilities II, special issue on families of individuals with DD, 31–36.
Lustig, D. C. (2002). Family coping in families with a child with a disability. Education & Training in Mental Retardation & Developmental Disabilities, 37, 14–22.
Moos, R. H., & Schaefer, J. A. (1993). Coping resources and processes: Current concepts and measures. In L. Goldberger & S. Breznitz (Eds.), Handbook of stress: Theoretical and clinical aspects (2nd ed., pp. 234–257). New York: Free Press.
Taylor, S. E. (1983). Adjustment to threatening life events: A theory of cognitive adaptation. American Psychologist, 38, 1161–1173. CrossRef
McCubbin, H. I., & Patterson, J. M. (1983). The family stress process: The Double ABCX Model of adjustment and adaptation. In H. I. McCubbin, M. B. Sussman, & J. M. Patterson (Eds.), Social stress and the family: Advances and developments in family stress theory and research (pp. 7–37). New York: Haworth Press.
Antonovsky, A. (1987). Unravelling the mystery of health: How people manage stress and stay well. San Francisco: Jossey-Bass.
McKennel, A. C. (1970). Attitude measurement: Use of coefficient alpha with cluster of factor analysis. Sociology, 4, 227–245. CrossRef
Nunnaly, J. C. (1978). Psychometric theory. New York: McGraw Hill Book Company.
Ferguson, E., Matthews, G., & Cox, T. (1999). The Appraisal of life events (ALE) scale: Reliability, and validity. Bristish Journal of Health Psychology, 4, 97–116. CrossRef
Koleck, M. (2000). Rôle de certains facteurs psychosociaux dans l’évolution des lombalgies communes. Une étude semi-prospective en psychologie de la santé. Thèse de Psychologie. Bordeaux: Université Victor Segalen.
Cousson, F., Bruchon-Schweitzer, M., Quintard, B., Nuissier, J., & Rascle, N. (1996). Analyse multidimensionnelle d’une échelle de coping: Validation française de la W.C.C. (ways of coping checklist). Psychologie française, 141(2), 155–164.
Cappe, E., Bobet, R., Gattegno, M. P., Fernier, A., & Adrien, J. L. (2009). Effet d’un programme spécialisé pour enfants avec autisme sur la qualité de vie des parents. Revue québécoise de psychologie, 30(2), 137–159.
Richieri, R. (2005). Qualité de vie des aidants naturels de patients souffrant de schizophrénie: Élaboration d’un instrument de mesure. Thèse de Médecine. Marseille: Université de la Méditerranée.
Richieri, R., Boyer, L., Reine, G., Loundou, A., Auquier, P., Lançon, C., & Simeoni, M. C. (2010). The Schizophrenia Caregiver Quality of Life questionnaire (S-CGQoL): Development and validation of an instrument to measure quality of life of caregivers of individuals with schizophrenia. Schizophrenia Research, doi: 10.1016/j.schres.2010.08.037.
Le Roux, B., & Rouanet, H. (2004). Geometric data analysis: from correspondence analysis to structured data analysis. Bruxelles: Kluwer.
Kaiser, H. F. (1960). The application of electronic computers to factor analysis. Educational and Psychological Measurement, 20, 141–151. CrossRef
Cattell, R. B. (1966). The scree test for the number of factors. Multivariate Behavioral Research, 1, 245–276. CrossRef
Mak, W. W. S., Ho, A. H. Y., & Law, R. W. (2007). Sense of coherence, parenting attitudes and stress among mothers of children with autism in Hong Kong. Journal of Applied Research in Intellectual Disabilities, 20(2), 157–167. CrossRef
Margalit, M., Raviv, A., & Ankonina, D. (1992). Coping and coherence among parents with disabled children. Journal of Clinical Child Psychology, 21(3), 202–209. CrossRef
Olsson, M. B., & Hwang, C. P. (2002). Sense of coherence in parents of children with different developmental disabilities. Journal of Intellectual Disabilities Research, 46(7), 548–559. CrossRef
Sivberg, B. (2002). Coping strategies and parental attitudes. A comparison of parents with children with autistic spectrum disorders and parents with non-autistic children. International Journal of Circumpolar Health, 61(Suppl 2), 36–50. PubMed
Gray, D. (1998). Autism and the family: Problems, prospects, and coping with the disorder. Springfield: Charles C. Thomas.
Cottraux, J. (1990). Les thérapies comportementales et cognitives. Paris: Masson.
Huws, J. C., Jones, R. S.-P., & Ingledew, D. K. (2001). Parents of children with autism using an email group: A grounded theory study. Journal of Health Psychology, 6(5), 569–584. CrossRef
Bandura, A. (1997). Self-efficacy: The exercise of control. New York: Freeman.
MacCallum, R. C., Widaman, K. F., Zhang, S., & Hong, S. (1999). Sample size in factor analysis. Psychological Methods, 4, 84–99. CrossRef
- Quality of life: a key variable to consider in the evaluation of adjustment in parents of children with autism spectrum disorders and in the development of relevant support and assistance programmes
- Springer Netherlands
Neuer Inhalt/© Stellmach, Neuer Inhalt/© Maturus, Pluta Logo/© Pluta