ABSTRACT
Parkinson's is a complex and multifaceted condition with a myriad of symptoms, thus, designing for and with this user group requires careful consideration. We reflect upon two studies, employing different design methodologies, relating to the design of rehabilitative exergames in Parkinson's. The first explored the concept of designing 'for' People with Parkinson's (PwP) and focused on specifications outlined by clinical stakeholders. The second used a designing 'with' approach and modified a pre-established participatory design method for use with PwP. We call attention to the importance of carrying out design work with PwP and contribute; an empathic understanding of living with Parkinson's, a set of recommendations for how to design with PwP and a set of wider considerations for developing rehabilitative exergames for PwP.
- Aarsland D et al. Prevalence, and characteristics of dementia in Parkinson disease: an 8-year prospective study. Arch Neurol, 60, (2003), 387--92.Google ScholarCross Ref
- Alankus, G., & Kelleher, C. Reducing compensatory motions in video games for stroke rehabilitation. In: Proc of CHI'12, Austin: USA (2012). Google ScholarDigital Library
- Assad, O. et al. Motion-Based Games for Parkinson's Disease Patients. In: Proc. of Entertainment Computing? ICEC'11, (2011), 47--58. Google ScholarDigital Library
- Balaam, M. et al. Motivating mobility: Designing for lived motivation in stroke rehabilitation. In: Proc. of CHI'11 Google ScholarDigital Library
- Barros, AC, et al. User-centred design of a mobile selfmanagement solution for Parkinson's disease. In Proc. of MUM'13 (2013), 23--26. Google ScholarDigital Library
- Berardelli A et al. Pathophysiology of bradykinesia in Parkinson's disease. Brain, 124, 11, (2001) 2131--2146.Google ScholarCross Ref
- Briggs, P. Blythe, M. & Vines, J. Invisible design: exploring insights and ideas through ambiguous film scenarios. In: Proc. Of CHI '12. Austin: Texas (2012).Google ScholarDigital Library
- Burke, JW et al. Serious games for upper limb rehabilitation following stroke. In: Proc. of VS-GAMES'09 (2009) 103--10. Google ScholarDigital Library
- Farley BG et al. Intensive amplitude-specific therapeutic approaches for Parkinson's disease. Top Geriatr Rehabil, 24 (2). (2008) 99--114Google ScholarCross Ref
- Galna B, et al. Retraining function in people with Parkinson's disease using the Microsoft kinect: game design and pilot testing. Jour neuroeng rehab, 11(1). (2014): 60.Google Scholar
- Gerling, KM. et al. Exergame design for elderly users: The case study of Silverbalance. In Proc. Of ACE '10, (2010) Google ScholarDigital Library
- Green, J. et al. Physiotherapy for patients with mobility problems more than 1 year after stroke: a randomised controlled trial. The Lancet, 359, 9302 (2002). 199--203.Google ScholarCross Ref
- Hoehn M, & Yahr M. Parkinsonism: onset, progression and mortality. Neurology 17, 5 (1967), 427--42Google ScholarCross Ref
- Hughes, TA et al. A 10-year study of the incidence of and factors predicting dementia in Parkinson's disease?. Neurology, 54, (2000) 1596--602.Google ScholarCross Ref
- Hurkmans, HL et al. Energy expenditure in chronic stroke patients playing Wii Sports: A pilot study. Journ NeuroEng and Rehab, 8, 38, (2011) 1--7.Google ScholarCross Ref
- Krause, M. et al. A digital game to support voice treatment for Parkinson's disease. In Proc. Of CHI'13 (2013) Google ScholarDigital Library
- Lindsay, S et al. Engaging older people using participatory design. In: Proc of CHI '12. Austin: Texas (2012) Google ScholarDigital Library
- Massimi, M. et al. Using participatory activities with seniors to critique, build and evaluate mobile phones. In: Proc. Of ASSETS '07, (2007) Google ScholarDigital Library
- Mazilu, S. et al. (2014, April). GaitAssist: a daily-life support and training system for parkinson's disease patients with freezing of gait. In Proc.of CHI'14 (2014) Google ScholarDigital Library
- McNaney, R et al. Cueing for swallowing in Parkinson's disease. In Proc. of CHI '11, (2011), 619--622. Google ScholarDigital Library
- McNaney, R et al. Exploring the acceptability of Google Glass as an everyday assistive technology for people with Parkinson's. In Proc. Of CHI'14, (2014). Google ScholarDigital Library
- Olanow CW, et al. The scientific and clinical basis for the treatment of Parkinson disease. Neurology. 72 (21 suppl 4):S1-S136 (2009).Google ScholarCross Ref
- Parkinson's Disease Foundation. Statistics on Parkinson's. http://www.pdf.org/en/parkinson_statistics on 03.09.2013Google Scholar
- Parkinson's Disease Society. Motor Fluctuations in Parkinson's: Information Sheet. Parkinson's Disease Society: London (2008).Google Scholar
- Parkinson's UK. What is Parkinson's? http://www.parkinsons.org.uk/content/what-parkinsonsGoogle Scholar
- Plow, M. A. et al. A scoping review of exergaming for adults with systemic disabling conditions. J Bioengineer & Biomedical Sci.S1:00 (2011).Google Scholar
- Robinson, L. et al. Keeping In Touch Everyday (KITE) project: developing assistive technologies with people with dementia and their carers to promote independence. International Psychogeriatrics, 21, 3, (2009) 494--502.Google ScholarCross Ref
- Shulman, LM et al. Non- recognition of depression and other non-motor symptoms in Parkinson's disease. Parkinsonism Relat D, 8, 3, (2002) 193--197.Google ScholarCross Ref
- Schutzer, KA et al. Barriers and motivations to exercise in older adults. Prev Med, 39, 5, (2004) 1056--1061.Google ScholarCross Ref
- Vines, J. et al. Questionable concepts: critique as a resource for designing with eighty somethings. In: Proc. Of CHI '12, (2012), 1169--1178. Google ScholarDigital Library
- Wallace, J. et al. A design-led enquiry into personhood in dementia. In: Proc. Of CHI '13, (2013) 2617--2626. Google ScholarDigital Library
- World Health Organization. International Classification of Functioning, Disability and Health. Geneva: WHO; (2001).Google Scholar
- Yu, W et al. An interactive multimedia system for Parkinson's patient rehabilitation. In: Proc. Of MMSys'10. (2010). pp. 129--137. Google ScholarDigital Library
Index Terms
- Designing for and with People with Parkinson's: A Focus on Exergaming
Recommendations
Co-designing smart home technology with people with dementia or Parkinson's disease
NordiCHI '18: Proceedings of the 10th Nordic Conference on Human-Computer InteractionInvolving users is crucial to designing technology successfully, especially for vulnerable users in health and social care, yet detailed descriptions and critical reflections on the co-design process, techniques and methods are rare. This paper ...
User-centred design of a mobile self-management solution for Parkinson's disease
MUM '13: Proceedings of the 12th International Conference on Mobile and Ubiquitous MultimediaParkinson's disease (PD) is a highly prevalent and disabling condition, requiring frequent medication adjustments. In parallel, non-adherence to medical treatment might lead to severe consequences. Therefore, a solution to monitor PD symptoms, allowing ...
Co-Created Personas: Engaging and Empowering Users with Diverse Needs Within the Design Process
CHI '19: Proceedings of the 2019 CHI Conference on Human Factors in Computing SystemsPersonas are powerful tools for designing technology and envisioning its usage. They are widely used to imagine archetypal users around whom to orient design work. We have been exploring co-created personas as a technique to use in co-design with users ...
Comments