ABSTRACT
Significant health disparities exist between Hispanics and the general US population, complicated in part by communication, literacy, and linguistic factors. There are few available Spanish-language interactive, technology-driven health education programs that engage patients who have a range of health literacy levels. We describe the development of an interactive virtual patient educator for educating and counseling Hispanic women about cervical cancer and human papillomavirus. Specifically, we describe the iterative design methodology and rationale, usability evaluation, and pilot testing of the system with Hispanic women in a rural community in Florida. The pilot study findings provide preliminary evidence of the feasibility of the proposed patient education approach. The proposed application and the lessons learned will prove beneficial for future work targeted towards different cultural populations.
- T. Aguirre, S. Wilhelm, and A. Joshi. 2012. Assessment of technology access and preference for health education of a rural Hispanic community. Technology and Health Care 20, 6 (2012), 521--525. Google ScholarDigital Library
- Albert Bandura. 2004. Health Promotion by Social Cognitive Means. Health Education & Behavior 31, 2 (2004), 143--164.Google ScholarCross Ref
- Joseph R. Betancourt, Alexander R. Green, J. Emilio Carrillo, and II Owusu Ananeh-Firempong. 2003. Defining Cultural Competence: A Practical Framework for Addressing Racial/Ethnic Disparities in Health and Health Care. Public Health Reports 118, 4 (2003), 293--302.Google ScholarCross Ref
- Timothy W. Bickmore, Laura M. Pfeifer, and Brian W. Jack. 2009. Taking the Time to Care: Empowering Low Health Literacy Hospital Patients with Virtual Nurse Agents. In Proceedings of the SIGCHI Conference on Human Factors in Computing Systems (CHI '09). 1265--1274. Google ScholarDigital Library
- W. Timothy Bickmore, Dina Utami, Robin Matsuyama, and K. Michael Paasche- Orlow. 2016. Improving Access to Online Health Information With Conversational Agents: A Randomized Controlled Experiment. J Med Internet Res 18, 1 (Jan 2016).Google ScholarCross Ref
- Sullivan J. Prevost S. Cassell, J. and E. Eds Churchill. 2000. Embodied Conversational Agents. The MIT Press, Cambridge, MA.Google Scholar
- Alexis V Chaet, Bijan Morshedi, Kristen J Wells, Laura E Barnes, and Rupa Valdez. 2016. Spanish-Language Consumer Health Information Technology Interventions: A Systematic Review. Journal of Medical Internet Research 18, 8 (Aug 2016).Google ScholarCross Ref
- Dorothy N S Chan and Winnie K W So. 2017. A Systematic Review of the Factors Influencing Ethnic Minority Women's Cervical Cancer Screening Behavior: From Intrapersonal to Policy Level. Cancer Nursing Publish Ahead of Print (2017).Google Scholar
- Brian W Jack, Veerappa K Chetty, David Anthony, Jeffrey L Greenwald, Gail M Sanchez, Anna E Johnson, Shaula R Forsythe, Julie K O'Donnell, Michael K Paasche-Orlow, Christopher Manasseh, Stephen Martin, and Larry Culpepper. 2009. A Reengineered Hospital Discharge Program to Decrease Rehospitalization: A Randomized Trial. Annals of internal medicine 150, 3 (Feb 2009), 178--187.Google ScholarCross Ref
- Maria De Jesus. 2013. The Impact of Mass Media Health Communication on Health Decision-Making and Medical Advice-Seeking Behavior of U.S. Hispanic Population. Health Communication 28, 5 (2013), 525--529.Google Scholar
- C E Johnson, K E Mues, S L Mayne, and A N Kiblawi. 2008. Cervical cancer screening among immigrants and ethnic minorities: a systematic review using the Health Belief Model. Journal of Lower Genital Tract Disease 12, 3 (2008), 232--241.Google ScholarCross Ref
- Abby C. King, Timothy W. Bickmore, Maria Ines Campero, Leslie A. Pruitt, and James Langxuan Yin. 2013. Employing Virtual Advisors in Preventive Care for Underserved Communities: Results From the COMPASS Study. Journal of Health Communication 18, 12 (2013), 1449--1464.Google ScholarCross Ref
- Matthew Kreuter and Ricardo Wray. 2003. Tailored and Targeted Health Communication: Strategies for Enhancing Information Relevance. 27 (11 2003).Google Scholar
- Jessica L. Krok-Schoen, Jill M. Oliveri, and Electra D. Paskett. 2016. Cancer Care Delivery and Women's Health: The Role of Patient Navigation. Frontiers in Oncology 6 (2016), 2.Google ScholarCross Ref
- M Kutner, E Greenberg, Y Jin, and C Paulsen. 2006. The health literacy of America's adults: results from the 2003 National Assessment of Adult Literacy. Education 6 (2006), 1--59.Google Scholar
- Sara J. Newmann and Elizabeth O. Garner. 2005. Social inequities along the cervical cancer continuum: a structured review. Cancer Causes & Control 16, 1 (2005), 63--70.Google ScholarCross Ref
- Seth M. Noar and Nancy Grant Harrington. 2016. Tailored Communications for Health-Related Decision-Making and Behavior Change. Springer New York, New York, NY, 251--263.Google Scholar
- Simon Provoost, Ming Ho Lau, Jeroen Ruwaard, and Heleen Riper. 2017. Embodied Conversational Agents in Clinical Psychology: A Scoping Review. J Med Internet Res 19, 5 (May 2017).Google ScholarCross Ref
- Ulfat Shaikh, Jasmine Nettiksimmons, Jill G. Joseph, Daniel Tancredi, and Patrick S. Romano. 2014. Collaborative Practice Improvement for Childhood Obesity in Rural Clinics. American Journal of Medical Quality 29, 6 (2014), 467--475.Google ScholarCross Ref
- Rebecca Siegel, Deepa Naishadham, and Ahmedin Jemal. 2012. Cancer statistics for Hispanics/Latinos, 2012. CA: A Cancer Journal for Clinicians 62, 5 (2012), 283--298.Google ScholarCross Ref
- Rebecca L. Siegel, Kimberly D. Miller, and Ahmedin Jemal. 2015. Cancer statistics, 2015. CA: A Cancer Journal for Clinicians 65, 1 (2015), 5--29.Google ScholarCross Ref
- United States Census Bureau. 2016. Population Quickfacts. (July 2016).Google Scholar
- Michelle van Ryn. 2002. Research on the Provider Contribution to Race/Ethnicity Disparities in Medical Care. Medical Care 40, 1 (2002), 140--151.Google ScholarCross Ref
- Kristen J Wells, Maria I Rivera, Sara K Proctor, Gloria Arroyo, Shalanda A Bynum, Gwendolyn P Quinn, John S Luque, Marlene Rivera, Dinorah Martinez-Tyson, and Cathy D Meade. 2012. Creating a Patient Navigation Model to Address Cervical Cancer Disparities in a Rural Hispanic Farmworker Community. Journal of Health Care for the Poor and Underserved 23, 4 (Nov 2012), 1712--1718.Google ScholarCross Ref
- Kristen J Wells, Coralia Vázquez-Otero, Marissa Bredice, Cathy D Meade, Alexis Chaet, Maria I Rivera, Gloria Arroyo, Sara K Proctor, and Laura E Barnes. 2015. Acceptability of an Embodied Conversational Agent-based Computer Application for Hispanic Women. Hispanic Health Care International 13, 4 (2015), 179--185.Google ScholarCross Ref
Index Terms
- Design of a Culturally-Informed Virtual Human for Educating Hispanic Women about Cervical Cancer
Recommendations
Geographical Disparities of Lung Cancer Mortality Centered on Central Appalachia
This article explores regional disparities in lung cancer mortality for females and males and associated factors across central Appalachia and surrounding regions. It asks, how are lung cancer mortality rates distributed geographically, what are the ...
Integrating participatory design and health literacy to improve research and interventions
Selected papers from the forthcoming book Health Literacy: New Directions in Research, Theory, and PracticeHealth communication is an essential health promotion strategy to convert scientific findings into actionable, empowering information for the public. Health communication interventions have shown positive outcomes, but many efforts have been ...
Comments