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Quality of Life Research
Published in: Quality of Life Research 10/2013

01-12-2013

A comparison of directly elicited and pre-scored preference-based measures of quality of life: the case of adhesive capsulitis

Authors: Anthony H. Harris, Joanne Youd, Rachelle Buchbinder

Published in: Quality of Life Research | Issue 10/2013

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Abstract

Purpose

To assess the convergent validity and comparative responsiveness in measuring the health-related quality of life associated with adhesive capsulitis of a disease-specific measure (Shoulder Pain and Disability Index), a generic quality of life measure (SF-36), a preference-based multi-attribute utility scale (assessment of quality of life), and two direct patient preference elicitation methods (willingness to pay and time trade-off).

Method

Instruments administered to all 156 participants in both arms of a randomized placebo-controlled trial of physiotherapy following arthrographic joint distension at baseline were reported at 6, 12, and 26 weeks. Convergent validity was measured using both pooled correlation between instruments and within subjects over time. Responsiveness was measured using the effect size for those with no improvement, moderate improvement, and marked improvement.

Results

With the exception of the monetary measure, all of the instruments showed a low quality of life at baseline with adhesive capsulitis (66– 87 % of perfect health) and a substantial improvement in quality of life to week 26 on recovery. The time trade-off and willingness to pay measures of patient preferences were not responsive to changes in health, but all of the other instruments were at least moderately sensitive to change and moderately correlated with one another.

Conclusions

These findings verify the significant adverse impact of adhesive capsulitis upon quality of life found in larger studies. There was a fair degree of convergence, as measured by the correlation between the instruments but while the time trade-off mean values were quite plausible, at a mean of 87 % of full health before treatment, there was a low correlation with health profile and disease-specific measures. It may be that the time trade-off measured wider aspects of quality of life and that individuals were not prepared to trade survival for potential gains in a self-limiting condition.
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Literature
1.
Felson, D. T., Anderson, J. J., Boers, M., Bombardier, C., Chernoff, M., Fried, B., et al. (1993). The American College of Rheumatology preliminary core set of disease activity measures for rheumatoid arthritis clinical trials. The committee on outcome measures in rheumatoid arthritis clinical trials. Arthritis and Rheumatism, 36(6), 729–740.PubMedCrossRef
2.
Beurskens, A. J., de Vet, H. C., Koke, A. J., van der Heijden, G. J., & Knipschild, P. G. (1995). Measuring the functional status of patients with low back pain. Assessment of the quality of four disease-specific questionnaires. Spine, 20(9), 1017–1028.PubMedCrossRef
3.
Bellamy, N., Buchanan, W. W., Goldsmith, C. H., Campbell, J., & Stitt, L. W. (1988). Validation study of WOMAC: A health status instrument for measuring clinically important patient relevant outcomes to antirheumatic drug therapy in patients with osteoarthritis of the hip or knee. Journal of Rheumatology, 15(12), 1833–1840.PubMed
4.
Pincus, T., Summey, J. A., Soraci, S. A, Jr, Wallston, K. A., & Hummon, N. P. (1983). Assessment of patient satisfaction in activities of daily living using a modified Stanford Health Assessment Questionnaire. Arthritis and Rheumatism, 26(11), 1346–1353.PubMedCrossRef
5.
Roach, K. E., Budiman-Mak, E., Songsiridej, N., & Lertratanakul, Y. (1991). Development of a shoulder pain and disability index. Arthritis Care & Research, 4(4), 143–149.CrossRef
6.
Buchbinder, R., Bombardier, C., Yeung, M., & Tugwell, P. (1995). Which outcome measures should be used in rheumatoid arthritis clinical trials? Clinical and quality-of-life measures’ responsiveness to treatment in a randomized controlled trial. Arthritis and Rheumatism, 38(11), 1568–1580.PubMedCrossRef
7.
Jolles, B. M., Buchbinder, R., & Beaton, D. E. (2005). A study compared nine patient-specific indices for musculoskeletal disorders. Journal of Clinical Epidemiology, 58(8), 791–801.PubMedCrossRef
8.
Gold, M. R., Siegel, J. E., Russell, L. B., & Weinstein, M. C. (1996). Cost-effectiveness in health and medicine. Oxford: Oxford University Press.
9.
10.
Group, T. E. (1990). EuroQol-a new facility for the measurement of health-related quality of life. Health Policy, 16(3), 199–208.CrossRef
11.
Hawthorne, G., Richardson, J., & Osborne, R. (1999). The assessment of quality of life (AQoL) instrument: a psychometric measure of health-related quality of life. Quality of Life Research, 8(3), 209–224.PubMedCrossRef
12.
Brazier, J., Roberts, J., & Deverill, M. (2002). The estimation of a preference-based measure of health from the SF-36. Journal of Health Economics, 21(2), 271–292.PubMedCrossRef
13.
Ware, J. E, Jr, & Sherbourne, C. D. (1992). The MOS 36-item short-form health survey (SF-36). I. Conceptual framework and item selection. Medical Care, 30(6), 473–483.PubMedCrossRef
14.
Dawson, J., Fitzpatrick, R., Murray, D., & Carr, A. (1996). Comparison of measures to assess outcomes in total hip replacement surgery. Quality in Health Care, 5(2), 81–88.PubMedCrossRef
15.
Ethgen, O., Tancredi, A., Lejeune, E., Kvasz, A., Zegels, B., & Reginster, J. Y. (2003). Do utility values and willingness to pay suitably reflect health outcome in hip and knee osteoarthritis? A comparative analysis with the WOMAC Index. Journal of Rheumatology, 30(11), 2452–2459.PubMed
16.
Hawker, G., Melfi, C., Paul, J., Green, R., & Bombardier, C. (1995). Comparison of a generic (SF-36) and a disease specific (WOMAC) (Western Ontario and McMaster Universities Osteoarthritis Index) instrument in the measurement of outcomes after knee replacement surgery. Journal of Rheumatology, 22(6), 1193–1196.PubMed
17.
Picavet, H. S., & Hoeymans, N. (2004). Health related quality of life in multiple musculoskeletal diseases: SF-36 and EQ-5D in the DMC3 study. Annals of the Rheumatic Diseases, 63(6), 723–729.PubMedCrossRef
18.
Revicki, D. A., & Kaplan, R. M. (1993). Relationship between psychometric and utility-based approaches to the measurement of health-related quality of life. Quality of Life Research, 2(6), 477–487.PubMedCrossRef
19.
Carette, S. (2000). Adhesive capsulitis–research advances frozen in time? [comment]. Journal of Rheumatology, 27(6), 1329–1331.PubMed
20.
Hazleman, B. (1972). The painful stiff shoulder. Rheumatology and Physical Medicine, 11(8), 413–421.PubMedCrossRef
21.
Green, S., Buchbinder, R., Glazier, R., & Forbes, A. (1998). Systematic review of randomised controlled trials of interventions for painful shoulder: Selection criteria, outcome assessment, and efficacy. [see comment]. BMJ, 316(7128), 354–360.PubMedCrossRef
22.
23.
Michener, L. A., & Leggin, B. G. (2001). A review of self-report scales for the assessment of functional limitation and disability of the shoulder. Journal of Hand Therapy, 14(2), 68–76.PubMedCrossRef
24.
Buchbinder, R., Green, S., Forbes, A., Hall, S., & Lawler, G. (2004). Arthrographic joint distension with saline and steroid improves function and reduces pain in patients with painful stiff shoulder: Results of a randomised, double blind, placebo controlled trial. Annals of the Rheumatic Diseases, 63(3), 302–309.PubMedCrossRef
25.
Buchbinder, R., Hoving, J., Green, S., Forbes, A., Hall, S., & Nash, P. (2004). Short-course prednisolone therapy for the stiff painful shoulder (adhesive capsulitis or frozen shoulder): A randomised placebo-controlled trial. Annals of the Rheumatic Diseases, 63, 1460–1469.PubMedCrossRef
26.
Buchbinder, R., Youd, J. M., Green, S., Stein, A., Forbes, A., Harris, A., et al. (2007). Efficacy and cost-effectiveness of physiotherapy following glenohumeral joint distension for adhesive capsulitis: A randomized trial. Arthritis and Rheumatism, 57(6), 1027–1037.PubMedCrossRef
27.
van der Heijden, G. J., Leffers, P., & Bouter, L. M. (2000). Shoulder disability questionnaire design and responsiveness of a functional status measure. Journal of Clinical Epidemiology, 53(1), 29–38.PubMedCrossRef
28.
Hudak, P. L., Amadio, P. C., & Bombardier, C. (1996). Development of an upper extremity outcome measure: The DASH (disabilities of the arm, shoulder and hand) [corrected]. The Upper Extremity Collaborative Group (UECG) [erratum appears in Am J Ind Med 1996 Sep;30(3):372]. American Journal of Industrial Medicine, 29(6), 602–608.PubMedCrossRef
29.
Christie, A., Hagen, K. B., Mowinckel, P., & Dagfinrud, H. (2009). Methodological properties of six shoulder disability measures in patients with rheumatic diseases referred for shoulder surgery. Journal of Shoulder and Elbow Surgery, 18(1), 89–95.PubMedCrossRef
30.
van den Hout, W. B., Vermeulen, H. M., Rozing, P. M., & Vliet Vlieland, T. P. (2005). Impact of adhesive capsulitis and economic evaluation of high-grade and low-grade mobilisation techniques. Australian Journal of Physiotherapy, 51(3), 141–149.PubMedCrossRef
31.
ABS. (1997). National health survey: SF-36 population norms. Canberra: Australian Bureau of Statistics.
32.
Torrance, G. W. (1986). Measurement of health state utilities for economic appraisal. Journal of Health Economics, 5(1), 1–30.PubMedCrossRef
33.
Prosser, L. A., & Wittenberg, E. (2011). Trends in utility elicitation methods: Direct versus indirect methods. Value in Health, 14(3), A149.CrossRef
34.
Wark, J., Hristov, E., Osborne, R., & Dalton, A. (2010). Treatment-naive osteoporosis patients strongly prefer once-yearly intravenous therapy: A time trade-off study. Bone, 46, S33.
35.
Olsen, J. A., & Smith, R. D. (2001). Theory versus practice: A review of ‘willingness-to-pay’ in health and health care. Health Economics, 10(1), 39–52.PubMedCrossRef
36.
Bland, J. M., & Altman, D. G. (1995). Calculating correlation coefficients with repeated observations: Part 2–correlation between subjects. BMJ, 310(6980), 633.PubMedCrossRef
37.
Bland, J. M., & Altman, D. G. (1995). Calculating correlation coefficients with repeated observations: Part 1–correlation within subjects. BMJ, 310(6977), 446.PubMedCrossRef
38.
Cohen, J. (1988). Statistical power analysis for the behavioral sciences (2nd ed.). Hillsdale, NJ: Lawrence Earlbaum Associates.
39.
Ostor, A. J. K., Richards, C. A., Prevost, A. T., Speed, C. A., & Hazleman, B. L. (2005). Diagnosis and relation to general health of shoulder disorders presenting to primary care. Rheumatology, 44(6), 800–805.PubMedCrossRef
40.
Katz, J. N., Larson, M. G., Phillips, C. B., Fossel, A. H., & Liang, M. H. (1992). Comparative measurement sensitivity of short and longer health status instruments. Medical Care, 30(10), 917–925.PubMedCrossRef
41.
Ruta, D. A., Hurst, N. P., Kind, P., Hunter, M., & Stubbings, A. (1998). Measuring health status in British patients with rheumatoid arthritis: reliability, validity and responsiveness of the short form 36-item health survey (SF-36). British Journal of Rheumatology, 37(4), 425–436.PubMedCrossRef
42.
Bateman, I. J., Carson, R. T., Day, B., Hanemann, M., Hanley, N., Hett, T., et al. (2002). Economic valuation with stated preference techniques: A manual. Cheltenham: Edward Elgar.CrossRef
43.
Willers, C., Alekna, V., Bianchi, M. L., Clark, P., Curiel, M. D., Dimai, H. P., et al. (2012). Health related quality of life after hip fracture: Differences between EQ-5D and time trade off instruments. Osteoporosis International, 23, S265.
44.
Arnesen, T., & Trommald, M. (2004). Roughly right or precisely wrong? Systematic review of quality-of-life weights elicited with the time trade-off method. Journal of Health Services & Research Policy, 9(1), 43–50.CrossRef
45.
Suarez-Almazor, M. E., Kendall, C., Johnson, J. A., Skeith, K., & Vincent, D. (2000). Use of health status measures in patients with low back pain in clinical settings. Comparison of specific, generic and preference-based instruments. Rheumatology, 39(7), 783–790.PubMedCrossRef
Metadata
Title
A comparison of directly elicited and pre-scored preference-based measures of quality of life: the case of adhesive capsulitis
Authors
Anthony H. Harris
Joanne Youd
Rachelle Buchbinder
Publication date
01-12-2013
Publisher
Springer Netherlands
Published in
Quality of Life Research / Issue 10/2013
Print ISSN: 0962-9343
Electronic ISSN: 1573-2649
DOI
https://doi.org/10.1007/s11136-013-0415-8

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