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2021 | OriginalPaper | Chapter

ParkinsonCom Project: Towards a Software Communication Tool for People with Parkinson’s Disease

Authors : Káthia Marçal de Oliveira, Elise Batselé, Sophie Lepreux, Elise Buchet, Christophe Kolski, Mathilde Boutiflat, Véronique Delcroix, Hélène Geurts, Kodzo Apedo, Loïc Dehon, Houcine Ezzedine, Yohan Guerrier, Marie-Claire Haelewyck, Nicolas Jura, Philippe Pudlo, Yosra Rekik

Published in: Universal Access in Human-Computer Interaction. Design Methods and User Experience

Publisher: Springer International Publishing

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Abstract

Parkinson’s disease (PD) is the second most prevalent neurodegenerative disease in the world. Impacts of the disease on both quality of life and social participation make it a major preoccupation in terms of public health. This disease is always associated not only to motor but also non-motors symptoms. Among these symptoms, several people with PD report communication impairments that worsen their speech intelligibility, their ability to express affective states and as consequence, their social relations. In order to improve this situation, we have been working on the ParkinsonCom project. This project aims to co-construct and make available a communication support tool for people with PD using a participatory design. To that end a user-centered design has been applied, integrating people with PD as well as their caregivers (family, friends, medical professionals…) in all stages of the development. This paper presents the whole methodology of the project and the results of the first phase related to requirements analysis.

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ParkinsonCom (https://parkinsoncom.eu/) is supported by the European Regional Development Fund (Interreg V France-Wallonie-Vlaanderen) and the Agency for a quality life AVIQ (l’Agence pour une Vie de Qualité) from Wallonia, Belgium.

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Title: ParkinsonCom Project: Towards a Software Communication Tool for People with Parkinson’s Disease
Authors: Káthia Marçal de Oliveira
Elise Batselé
Sophie Lepreux
Elise Buchet
Christophe Kolski
Mathilde Boutiflat
Véronique Delcroix
Hélène Geurts
Kodzo Apedo
Loïc Dehon
Houcine Ezzedine
Yohan Guerrier
Marie-Claire Haelewyck
Nicolas Jura
Philippe Pudlo
Yosra Rekik
Publisher: Springer International Publishing
Book: Universal Access in Human-Computer Interaction. Design Methods and User Experience
Print ISBN: 978-3-030-78091-3

Electronic ISBN: 978-3-030-78092-0

Copyright Year: 2021
DOI: https://doi.org/10.1007/978-3-030-78092-0_28

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