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2017 | OriginalPaper | Chapter

Wickedness in Design of e-Health Systems for People Diagnosed with Schizophrenia

Author : Susanne Lindberg

Published in: Nordic Contributions in IS Research

Publisher: Springer International Publishing

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Abstract

With the digitisation of society, e-health systems support new contexts that are different from traditional Information Systems contexts, and therefore need to be better understood. In design for complex, new and sensitive contexts, it is not possible to apply known methods and solutions without deeper contextual understanding. The paper intends to answer how the wickedness of the design context when designing digital services for people diagnosed with schizophrenia can be understood – a context that is contradictory and complex, that is, a wicked design context. The paper presents a grounded theory analysis of stakeholder interviews and focus group interviews with people diagnosed with schizophrenia. Four wicked problems are identified: struggle of dependence, contradiction of social interaction, contradiction of trust and counteracting improvement behaviour. The paper also shows the viability of the use of grounded theory for uncovering and describing contextual wickedness.

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Literature
1.
go back to reference Iivari, J., Isomäki, H., Pekkola, S.: The user—the great unknown of systems development: reasons, forms, challenges, experiences and intellectual contributions of user involvement. Inf. Syst. J. 20, 109–117 (2010)CrossRef Iivari, J., Isomäki, H., Pekkola, S.: The user—the great unknown of systems development: reasons, forms, challenges, experiences and intellectual contributions of user involvement. Inf. Syst. J. 20, 109–117 (2010)CrossRef
2.
go back to reference Tokar, O., Batoroev, K.: Identifying opportunities for future design research for mHealth for mental health. In: Proceedings of ECIS 2016, pp. Paper 65 (2016) Tokar, O., Batoroev, K.: Identifying opportunities for future design research for mHealth for mental health. In: Proceedings of ECIS 2016, pp. Paper 65 (2016)
3.
go back to reference Aardoom, J.J., Dingemans, A.E., Van Furth, E.F.: E-health interventions for eating disorders: emerging findings, issues, and opportunities. Curr. Psychiatry Rep. 18, 1–8 (2016)CrossRef Aardoom, J.J., Dingemans, A.E., Van Furth, E.F.: E-health interventions for eating disorders: emerging findings, issues, and opportunities. Curr. Psychiatry Rep. 18, 1–8 (2016)CrossRef
4.
go back to reference Kowatsch, T., Maass, W., Pletikosa Cvijikj, I., Büchter, D., Brogle, B., Dintheer, A., Wiegand, D., Durrer-Schutz, D., Xu, R., Schutz, Y.: Design of a health information system enhancing the performance of obesity expert and children teams. In: Proceedings of ECIS 2014 (2014) Kowatsch, T., Maass, W., Pletikosa Cvijikj, I., Büchter, D., Brogle, B., Dintheer, A., Wiegand, D., Durrer-Schutz, D., Xu, R., Schutz, Y.: Design of a health information system enhancing the performance of obesity expert and children teams. In: Proceedings of ECIS 2014 (2014)
5.
go back to reference Hevner, A.R., March, S.T., Park, J., Ram, S.: Design science in information systems research. MISQ 28, 75–105 (2004)CrossRef Hevner, A.R., March, S.T., Park, J., Ram, S.: Design science in information systems research. MISQ 28, 75–105 (2004)CrossRef
6.
go back to reference Arias, E., Eden, H., Fischer, G., Gorman, A., Scharff, E.: Transcending the individual human mind—creating shared understanding through collaborative design. ACM Trans. Comput. Hum. Interact. (TOCHI) 7, 84–113 (2000)CrossRef Arias, E., Eden, H., Fischer, G., Gorman, A., Scharff, E.: Transcending the individual human mind—creating shared understanding through collaborative design. ACM Trans. Comput. Hum. Interact. (TOCHI) 7, 84–113 (2000)CrossRef
7.
go back to reference Gregor, S., Hevner, A.R.: Positioning and presenting design science research for maximum impact. MISQ 37, 337–356 (2013)CrossRef Gregor, S., Hevner, A.R.: Positioning and presenting design science research for maximum impact. MISQ 37, 337–356 (2013)CrossRef
8.
10.
go back to reference Andreasen, N.C.: Schizophrenia: the fundamental questions. Brain Res. Rev. 31, 106–112 (2000)CrossRef Andreasen, N.C.: Schizophrenia: the fundamental questions. Brain Res. Rev. 31, 106–112 (2000)CrossRef
11.
go back to reference Schuldberg, D.: Six subclinical spectrum traits in normal creativity. Creat. Res. J. 13, 5–16 (2001)CrossRef Schuldberg, D.: Six subclinical spectrum traits in normal creativity. Creat. Res. J. 13, 5–16 (2001)CrossRef
12.
go back to reference Couture, S.M., Penn, D.L., Roberts, D.L.: The functional significance of social cognition in schizophrenia: a review. Schizophr. Bull. 32, S44–S63 (2006)CrossRef Couture, S.M., Penn, D.L., Roberts, D.L.: The functional significance of social cognition in schizophrenia: a review. Schizophr. Bull. 32, S44–S63 (2006)CrossRef
13.
go back to reference Davidson, L., Shahar, G., Stayner, D.A., Chinman, M.J., Rakfeldt, J., Tebes, J.K.: Supported socialization for people with psychiatric disabilities: lessons from a randomized controlled trial. J. Commun. Psychol. 32, 453–477 (2004)CrossRef Davidson, L., Shahar, G., Stayner, D.A., Chinman, M.J., Rakfeldt, J., Tebes, J.K.: Supported socialization for people with psychiatric disabilities: lessons from a randomized controlled trial. J. Commun. Psychol. 32, 453–477 (2004)CrossRef
14.
go back to reference Campellone, T.R., Caponigro, J.M., Kring, A.M.: The power to resist: the relationship between power, stigma, and negative symptoms in schizophrenia. Psychiatry Res. 215, 280–285 (2014)CrossRef Campellone, T.R., Caponigro, J.M., Kring, A.M.: The power to resist: the relationship between power, stigma, and negative symptoms in schizophrenia. Psychiatry Res. 215, 280–285 (2014)CrossRef
15.
go back to reference Rittel, H.W., Webber, M.M.: Dilemmas in a general theory of planning. Policy Sci. 4, 155–169 (1973)CrossRef Rittel, H.W., Webber, M.M.: Dilemmas in a general theory of planning. Policy Sci. 4, 155–169 (1973)CrossRef
16.
go back to reference Zimmerman, J., Forlizzi, J., Evenson, S.: Research through design as a method for interaction design research in HCI. In: Proceedings of CHI, pp. 493–502. ACM (2007) Zimmerman, J., Forlizzi, J., Evenson, S.: Research through design as a method for interaction design research in HCI. In: Proceedings of CHI, pp. 493–502. ACM (2007)
17.
go back to reference Wilder-Willis, K.E., Shear, P.K., Steffen, J.J., Borkin, J.: The relationship between cognitive dysfunction and coping abilities in schizophrenia. Schizophr. Res. 55, 259–267 (2002)CrossRef Wilder-Willis, K.E., Shear, P.K., Steffen, J.J., Borkin, J.: The relationship between cognitive dysfunction and coping abilities in schizophrenia. Schizophr. Res. 55, 259–267 (2002)CrossRef
18.
go back to reference Castelein, S., Bruggeman, R., Davidson, L., van der Gaag, M.: Creating a supportive environment: peer support groups for psychotic disorders. Schizophr. Bull. 41, 1211–1213 (2015)CrossRef Castelein, S., Bruggeman, R., Davidson, L., van der Gaag, M.: Creating a supportive environment: peer support groups for psychotic disorders. Schizophr. Bull. 41, 1211–1213 (2015)CrossRef
19.
go back to reference Davidson, L., Chinman, M., Kloos, B., Weingarten, R., Stayner, D., Tebes, J.K.: Peer support among individuals with severe mental illness: a review of the evidence. Clin. Psychol. Sci. Pract. 6, 165–187 (1999)CrossRef Davidson, L., Chinman, M., Kloos, B., Weingarten, R., Stayner, D., Tebes, J.K.: Peer support among individuals with severe mental illness: a review of the evidence. Clin. Psychol. Sci. Pract. 6, 165–187 (1999)CrossRef
20.
go back to reference Lloyd-Evans, B., Mayo-Wilson, E., Harrison, B., Istead, H., Brown, E., Pilling, S., Johnson, S., Kendall, T.: A systematic review and meta-analysis of randomised controlled trials of peer support for people with severe mental illness. BMC Psychiatry 14, 1 (2014)CrossRef Lloyd-Evans, B., Mayo-Wilson, E., Harrison, B., Istead, H., Brown, E., Pilling, S., Johnson, S., Kendall, T.: A systematic review and meta-analysis of randomised controlled trials of peer support for people with severe mental illness. BMC Psychiatry 14, 1 (2014)CrossRef
21.
go back to reference Castelein, S., Bruggeman, R., Van Busschbach, J.T., Van Der Gaag, M., Stant, A., Knegtering, H., Wiersma, D.: The effectiveness of peer support groups in psychosis: a randomized controlled trial. Acta Psychiatr. Scand. 118, 64–72 (2008)CrossRef Castelein, S., Bruggeman, R., Van Busschbach, J.T., Van Der Gaag, M., Stant, A., Knegtering, H., Wiersma, D.: The effectiveness of peer support groups in psychosis: a randomized controlled trial. Acta Psychiatr. Scand. 118, 64–72 (2008)CrossRef
22.
go back to reference Chinman, M., George, P., Dougherty, R.H., Daniels, A.S., Ghose, S.S., Swift, A., Delphin-Rittmon, M.E.: Peer support services for individuals with serious mental illnesses: assessing the evidence. Psychiatr. Serv. 65, 429–441 (2014)CrossRef Chinman, M., George, P., Dougherty, R.H., Daniels, A.S., Ghose, S.S., Swift, A., Delphin-Rittmon, M.E.: Peer support services for individuals with serious mental illnesses: assessing the evidence. Psychiatr. Serv. 65, 429–441 (2014)CrossRef
23.
go back to reference Naslund, J.A., Grande, S.W., Aschbrenner, K.A., Elwyn, G.: Naturally occurring peer support through social media: the experiences of individuals with severe mental illness using YouTube. PLoS ONE 9, e110171 (2014)CrossRef Naslund, J.A., Grande, S.W., Aschbrenner, K.A., Elwyn, G.: Naturally occurring peer support through social media: the experiences of individuals with severe mental illness using YouTube. PLoS ONE 9, e110171 (2014)CrossRef
24.
go back to reference Gowen, K., Deschaine, M., Gruttadara, D., Markey, D.: Young adults with mental health conditions and social networking websites: seeking tools to build community. Psychiatr. Rehabil. J. 35, 245 (2012)CrossRef Gowen, K., Deschaine, M., Gruttadara, D., Markey, D.: Young adults with mental health conditions and social networking websites: seeking tools to build community. Psychiatr. Rehabil. J. 35, 245 (2012)CrossRef
25.
go back to reference Farrell, R., Hooker, C.: Design, science and wicked problems. Des. Stud. 34, 681–705 (2013)CrossRef Farrell, R., Hooker, C.: Design, science and wicked problems. Des. Stud. 34, 681–705 (2013)CrossRef
26.
go back to reference Nelson, H.G., Stolterman, E.: The Design Way: Intentional Change in an Unpredictable World: Foundations and Fundamentals of Design Competence. Educational Technology, Englewood Cliffs (2003) Nelson, H.G., Stolterman, E.: The Design Way: Intentional Change in an Unpredictable World: Foundations and Fundamentals of Design Competence. Educational Technology, Englewood Cliffs (2003)
27.
go back to reference Buchanan, R.: Wicked problems in design thinking. Des. Issues 8, 5–21 (1992)CrossRef Buchanan, R.: Wicked problems in design thinking. Des. Issues 8, 5–21 (1992)CrossRef
28.
go back to reference Hawryszkiewycz, I.: Visualizations for addressing wicked problems using design thinking. In: Proceedings of European Conference on Information Systems 2014 (2014) Hawryszkiewycz, I.: Visualizations for addressing wicked problems using design thinking. In: Proceedings of European Conference on Information Systems 2014 (2014)
29.
go back to reference Alvesson, M., Kärreman, D.: Constructing mystery: empirical matters in theory development. Acad. Manag. Rev. 32, 1265–1281 (2007)CrossRef Alvesson, M., Kärreman, D.: Constructing mystery: empirical matters in theory development. Acad. Manag. Rev. 32, 1265–1281 (2007)CrossRef
30.
go back to reference Hong, W., Chan, F.K., Thong, J.Y., Chasalow, L.C., Dhillon, G.: A framework and guidelines for context-specific theorizing in information systems research. Inf. Syst. Res. 25, 111–136 (2013)CrossRef Hong, W., Chan, F.K., Thong, J.Y., Chasalow, L.C., Dhillon, G.: A framework and guidelines for context-specific theorizing in information systems research. Inf. Syst. Res. 25, 111–136 (2013)CrossRef
31.
go back to reference Charmaz, K.: Constructing grounded theory: a practical guide through qualitative research. Sage Publications Ltd, London (2006) Charmaz, K.: Constructing grounded theory: a practical guide through qualitative research. Sage Publications Ltd, London (2006)
32.
go back to reference Glaser, B.G., Strauss, A.L.: Discovery of grounded theory. Sociology Press, Mill Valley (1967) Glaser, B.G., Strauss, A.L.: Discovery of grounded theory. Sociology Press, Mill Valley (1967)
33.
go back to reference Gregory, R.: Design science research and the grounded theory method: characteristics, differences, and complementary uses. In: Proceedings of ECIS 2010, pp. Paper 44 (2010) Gregory, R.: Design science research and the grounded theory method: characteristics, differences, and complementary uses. In: Proceedings of ECIS 2010, pp. Paper 44 (2010)
34.
go back to reference Hughes, J., Jones, S.: Reflections on the use of grounded theory in interpretive information systems research. In: Proceedings of ECIS 2003, pp. Paper 62 (2003) Hughes, J., Jones, S.: Reflections on the use of grounded theory in interpretive information systems research. In: Proceedings of ECIS 2003, pp. Paper 62 (2003)
35.
go back to reference Urquhart, C., Fernandez, W.: Grounded theory method: the researcher as blank slate and other myths. In: Proceedings of ICIS 2006, pp. Paper 31 (2006) Urquhart, C., Fernandez, W.: Grounded theory method: the researcher as blank slate and other myths. In: Proceedings of ICIS 2006, pp. Paper 31 (2006)
36.
go back to reference Urquhart, C.: An encounter with grounded theory: tackling the practical and philosophical issues. In: Qualitative Research in IS: Issues and Trends, pp. 104–140 (2000) Urquhart, C.: An encounter with grounded theory: tackling the practical and philosophical issues. In: Qualitative Research in IS: Issues and Trends, pp. 104–140 (2000)
37.
go back to reference Melling, B., Houguet-Pincham, T.: Online peer support for individuals with depression: A summary of current research and future considerations. Psychiatr. Rehabil. J. 34, 252 (2011)CrossRef Melling, B., Houguet-Pincham, T.: Online peer support for individuals with depression: A summary of current research and future considerations. Psychiatr. Rehabil. J. 34, 252 (2011)CrossRef
38.
go back to reference Webb, M., Burns, J., Collin, P.: Providing online support for young people with mental health difficulties: challenges and opportunities explored. Early Interv. Psychiatry 2, 108–113 (2008)CrossRef Webb, M., Burns, J., Collin, P.: Providing online support for young people with mental health difficulties: challenges and opportunities explored. Early Interv. Psychiatry 2, 108–113 (2008)CrossRef
39.
go back to reference Lederman, R., Wadley, G., Gleeson, J., Alvarez-Jimenez, M.: Using on-line technologies to identify and track early warning signs of psychosis. In: Proceedings of the 21st European Conference on Information Systems—Research in Progress, pp. Paper 1 (2013) Lederman, R., Wadley, G., Gleeson, J., Alvarez-Jimenez, M.: Using on-line technologies to identify and track early warning signs of psychosis. In: Proceedings of the 21st European Conference on Information Systems—Research in Progress, pp. Paper 1 (2013)
40.
go back to reference Goldkuhl, G.: Design theories in information systems—a need for multi-grounding. J. Inf. Technol. Theory Appl. 6, 59 (2004) Goldkuhl, G.: Design theories in information systems—a need for multi-grounding. J. Inf. Technol. Theory Appl. 6, 59 (2004)
41.
go back to reference Myers, M.D.: Qualitative research in information systems. Manag. Inf. Syst. Q 21, 241–242 (1997)CrossRef Myers, M.D.: Qualitative research in information systems. Manag. Inf. Syst. Q 21, 241–242 (1997)CrossRef
42.
go back to reference Liamputtong, P.: Researching the vulnerable: a guide to sensitive research methods. Sage, London (2006) Liamputtong, P.: Researching the vulnerable: a guide to sensitive research methods. Sage, London (2006)
43.
go back to reference Usher, K., Holmes, C.: Ethical aspects of phenomenological research with mentally ill people. Nurs. Ethics 4, 49–56 (1997)CrossRef Usher, K., Holmes, C.: Ethical aspects of phenomenological research with mentally ill people. Nurs. Ethics 4, 49–56 (1997)CrossRef
Metadata
Title
Wickedness in Design of e-Health Systems for People Diagnosed with Schizophrenia
Author
Susanne Lindberg
Copyright Year
2017
DOI
https://doi.org/10.1007/978-3-319-64695-4_10

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