Skip to main content
Erschienen in: Quality of Life Research 6/2014

01.08.2014 | Brief Communication

Health-related quality of life of children and adolescents with functional disabilities in a northern Swedish county

verfasst von: Erik Domellöf, Ludmilla Hedlund, Pia Ödman

Erschienen in: Quality of Life Research | Ausgabe 6/2014

Einloggen

Aktivieren Sie unsere intelligente Suche, um passende Fachinhalte oder Patente zu finden.

search-config
loading …

Abstract

Purpose

Health-related quality of life (HRQoL) studies in children and adolescents with disabilities tend to report lower self-reported health than in the typical population. However, reports are not always consistent and HRQoL appears to vary depending on diagnosis, cultural setting and clinical context. The aim of this study was to explore HRQoL in children and adolescents with various disabilities in Västerbotten County, Sweden.

Methods

A total of 175 children and adolescents [57 girls, 118 boys; mean age 11.7 years (range 7–17 years)] divided into four different diagnostic groups (intellectual disabilities, autism spectrum disorders, movement disorders and hearing disabilities) participated in the study. The EuroQol Five Dimensions Health Questionnaire, Youth version (EQ-5D-Y) was used as HRQoL measure.

Results

Significant differences in various EQ-5D-Y dimensions between the different diagnostic groups were found, but no differences in overall health status. HRQoL in children and adolescents with hearing disabilities was found similar to the typical child population in Sweden whereas children and adolescents with other diagnoses reported evidently more problems.

Conclusions

Findings suggest that there is an increased risk for children with functional disabilities other than hearing disabilities in northern Sweden to experience difficulties in various health domains and lowered general health.

Sie haben noch keine Lizenz? Dann Informieren Sie sich jetzt über unsere Produkte:

Springer Professional "Wirtschaft+Technik"

Online-Abonnement

Mit Springer Professional "Wirtschaft+Technik" erhalten Sie Zugriff auf:

  • über 102.000 Bücher
  • über 537 Zeitschriften

aus folgenden Fachgebieten:

  • Automobil + Motoren
  • Bauwesen + Immobilien
  • Business IT + Informatik
  • Elektrotechnik + Elektronik
  • Energie + Nachhaltigkeit
  • Finance + Banking
  • Management + Führung
  • Marketing + Vertrieb
  • Maschinenbau + Werkstoffe
  • Versicherung + Risiko

Jetzt Wissensvorsprung sichern!

Springer Professional "Wirtschaft"

Online-Abonnement

Mit Springer Professional "Wirtschaft" erhalten Sie Zugriff auf:

  • über 67.000 Bücher
  • über 340 Zeitschriften

aus folgenden Fachgebieten:

  • Bauwesen + Immobilien
  • Business IT + Informatik
  • Finance + Banking
  • Management + Führung
  • Marketing + Vertrieb
  • Versicherung + Risiko




Jetzt Wissensvorsprung sichern!

Literatur
1.
Zurück zum Zitat Noyes, J., & Edwards, R. T. (2011). EQ-5D for the assessment of health-related quality of life and resource allocation in children: A systematic methodological review. Value in Health, 14, 1117–1129.PubMedCrossRef Noyes, J., & Edwards, R. T. (2011). EQ-5D for the assessment of health-related quality of life and resource allocation in children: A systematic methodological review. Value in Health, 14, 1117–1129.PubMedCrossRef
2.
Zurück zum Zitat Burström, K., Svartengren, M., & Egmar, A. C. (2011). Testing a Swedish child-friendly pilot version of the EQ-5D instrument—initial results. European Journal of Public Health, 21(2), 178–183.PubMedCrossRef Burström, K., Svartengren, M., & Egmar, A. C. (2011). Testing a Swedish child-friendly pilot version of the EQ-5D instrument—initial results. European Journal of Public Health, 21(2), 178–183.PubMedCrossRef
3.
Zurück zum Zitat Fava, L., Muehlan, H., & Bullinger, M. (2009). Linking the DISABKIDS modules for health-related quality of life assessment with the international classification of functioning, disability and health (ICF). Disability and Rehabilitation, 31(23), 1943–1954.PubMedCrossRef Fava, L., Muehlan, H., & Bullinger, M. (2009). Linking the DISABKIDS modules for health-related quality of life assessment with the international classification of functioning, disability and health (ICF). Disability and Rehabilitation, 31(23), 1943–1954.PubMedCrossRef
4.
Zurück zum Zitat Tsoi, W. S. E., Zhang, L. A., Wang, W. Y., Tsang, K. L., & Lo, S. K. (2012). Improving quality of life of children with cerebral palsy: A systematic review of clinical trials. Child: Care, Health and Development, 38(1), 12–31. Tsoi, W. S. E., Zhang, L. A., Wang, W. Y., Tsang, K. L., & Lo, S. K. (2012). Improving quality of life of children with cerebral palsy: A systematic review of clinical trials. Child: Care, Health and Development, 38(1), 12–31.
5.
Zurück zum Zitat Cottencau, H., Roux, S., Blanc, R., Lenoir, P., Bonnet-Brilhault, F., & Barthélémy, C. (2012). Quality of life of adolescents with autism spectrum disorders: Comparison to adolescents with diabetes. European Child and Adolescent Psychiatry, 21(5), 289–296.CrossRef Cottencau, H., Roux, S., Blanc, R., Lenoir, P., Bonnet-Brilhault, F., & Barthélémy, C. (2012). Quality of life of adolescents with autism spectrum disorders: Comparison to adolescents with diabetes. European Child and Adolescent Psychiatry, 21(5), 289–296.CrossRef
6.
Zurück zum Zitat Matza, L. S., Secnik, K., Mannix, S., & Sallee, F. (2005). Parent-proxy EQ-5D ratings of children with attention-deficit hyperactivity disorder in the US and the UK. Pharmacoeconomics, 23(8), 777–790.PubMedCrossRef Matza, L. S., Secnik, K., Mannix, S., & Sallee, F. (2005). Parent-proxy EQ-5D ratings of children with attention-deficit hyperactivity disorder in the US and the UK. Pharmacoeconomics, 23(8), 777–790.PubMedCrossRef
7.
Zurück zum Zitat Majnemer, A., Shevell, M., Rosenbaum, P., Law, M., & Poulin, C. (2007). Determinants of life quality in school-age children with cerebral palsy. The Journal of Pediatrics, 151(5), 470–475.PubMedCrossRef Majnemer, A., Shevell, M., Rosenbaum, P., Law, M., & Poulin, C. (2007). Determinants of life quality in school-age children with cerebral palsy. The Journal of Pediatrics, 151(5), 470–475.PubMedCrossRef
8.
Zurück zum Zitat Shikako-Thomas, K., Lach, L., Majnemer, A., Nimigon, J., Cameron, K., & Shevell, M. (2009). Quality of life from the perspective of adolescents with cerebral palsy: “I just think I’m a normal kid, I just happen to have a disability”. Quality of Life Research, 18(7), 825–832.PubMedCrossRef Shikako-Thomas, K., Lach, L., Majnemer, A., Nimigon, J., Cameron, K., & Shevell, M. (2009). Quality of life from the perspective of adolescents with cerebral palsy: “I just think I’m a normal kid, I just happen to have a disability”. Quality of Life Research, 18(7), 825–832.PubMedCrossRef
9.
Zurück zum Zitat Arnaud, C., White-Koning, M., Michelsen, S., Parkes, J., Parkinson, K., Thyen, U., et al. (2008). Parent-reported quality of life of children with cerebral palsy in Europe. Pediatrics, 121(1), 54–64.PubMedCrossRef Arnaud, C., White-Koning, M., Michelsen, S., Parkes, J., Parkinson, K., Thyen, U., et al. (2008). Parent-reported quality of life of children with cerebral palsy in Europe. Pediatrics, 121(1), 54–64.PubMedCrossRef
10.
Zurück zum Zitat Chen, H., & Cisler, R. (2011). Assessing health-related quality of life among children with special health care needs in the United States. Children’s Health Care, 40(4), 311–325.CrossRef Chen, H., & Cisler, R. (2011). Assessing health-related quality of life among children with special health care needs in the United States. Children’s Health Care, 40(4), 311–325.CrossRef
11.
Zurück zum Zitat Dahan-Oliel, N., Shikako-Thomas, K., & Majnemer, A. (2012). Quality of life and leisure participation in children with neurodevelopmental disabilities: A thematic analysis of the literature. Quality of Life Research, 21(3), 427–439.PubMedCrossRef Dahan-Oliel, N., Shikako-Thomas, K., & Majnemer, A. (2012). Quality of life and leisure participation in children with neurodevelopmental disabilities: A thematic analysis of the literature. Quality of Life Research, 21(3), 427–439.PubMedCrossRef
12.
Zurück zum Zitat Umansky, A. M., Jeffe, D. B., & Lieu, J. C. (2011). The HEAR-QL: Quality of life questionnaire for children with hearing loss. Journal of the American Academy of Audiology, 22(10), 644–653.PubMedCentralPubMedCrossRef Umansky, A. M., Jeffe, D. B., & Lieu, J. C. (2011). The HEAR-QL: Quality of life questionnaire for children with hearing loss. Journal of the American Academy of Audiology, 22(10), 644–653.PubMedCentralPubMedCrossRef
13.
Zurück zum Zitat Skevington, S. M. (2002). Advancing cross-cultural research on quality of life: Observations drawn from the WHOQOL development. World Health Organization Quality of Life Assessment. Quality of Life Research, 11(2), 135–144.PubMedCrossRef Skevington, S. M. (2002). Advancing cross-cultural research on quality of life: Observations drawn from the WHOQOL development. World Health Organization Quality of Life Assessment. Quality of Life Research, 11(2), 135–144.PubMedCrossRef
14.
Zurück zum Zitat Eiser, C., & Morse, R. (2001). A review of measures of quality of life for children with chronic illness. Archives of Disease in Childhood, 84(3), 205–211.PubMedCentralPubMedCrossRef Eiser, C., & Morse, R. (2001). A review of measures of quality of life for children with chronic illness. Archives of Disease in Childhood, 84(3), 205–211.PubMedCentralPubMedCrossRef
15.
Zurück zum Zitat Meserole, R. L., Carson, C. M., Riley, A. W., Wang, N. Y., Quittner, A. L., & Eisenberg, L. S., et al. (2013). Assessment of health-related quality of life 6 years after childhood cochlear implantation. Quality of Life Research. doi: 10.1007/s11136-013-0509-3. Meserole, R. L., Carson, C. M., Riley, A. W., Wang, N. Y., Quittner, A. L., & Eisenberg, L. S., et al. (2013). Assessment of health-related quality of life 6 years after childhood cochlear implantation. Quality of Life Research. doi: 10.​1007/​s11136-013-0509-3.
16.
Zurück zum Zitat Wille, N., Badia, X., Bonsel, G., Burström, K., Cavrini, G., Egmar, A. C., et al. (2010). Development of the EQ-5D-Y: A child-friendly version of the EQ-5D. Quality of Life Research, 19(6), 875–886.PubMedCentralPubMedCrossRef Wille, N., Badia, X., Bonsel, G., Burström, K., Cavrini, G., Egmar, A. C., et al. (2010). Development of the EQ-5D-Y: A child-friendly version of the EQ-5D. Quality of Life Research, 19(6), 875–886.PubMedCentralPubMedCrossRef
17.
Zurück zum Zitat Ravens-Sieberer, U., Wille, N., Bonsel, G., Burström, K., Cavrini, G., Egmar, A. C., et al. (2010). Feasibility, reliability, and validity of the EQ-5D-Y: Results from a multinational study. Quality of Life Research, 19(6), 887–897.PubMedCentralPubMedCrossRef Ravens-Sieberer, U., Wille, N., Bonsel, G., Burström, K., Cavrini, G., Egmar, A. C., et al. (2010). Feasibility, reliability, and validity of the EQ-5D-Y: Results from a multinational study. Quality of Life Research, 19(6), 887–897.PubMedCentralPubMedCrossRef
19.
Zurück zum Zitat Connolly, P. (2007). Quantitative data analysis in education: A critical introduction using SPSS. New York: Routledge. Connolly, P. (2007). Quantitative data analysis in education: A critical introduction using SPSS. New York: Routledge.
20.
Zurück zum Zitat Jelsma, J., & Ramma, L. (2010). How do children at special schools and their parents perceive their HRQoL compared to children at open schools? Health and Quality of Life Outcomes, 8, 72.PubMedCentralPubMedCrossRef Jelsma, J., & Ramma, L. (2010). How do children at special schools and their parents perceive their HRQoL compared to children at open schools? Health and Quality of Life Outcomes, 8, 72.PubMedCentralPubMedCrossRef
21.
Zurück zum Zitat Chaplin, J. E., Hanas, R., Lind, A., Tollig, H., Wramner, N., & Lindblad, B. (2009). Assessment of childhood diabetes-related quality-of-life in West Sweden. Acta Paediatrica, 98(2), 361–366.PubMedCrossRef Chaplin, J. E., Hanas, R., Lind, A., Tollig, H., Wramner, N., & Lindblad, B. (2009). Assessment of childhood diabetes-related quality-of-life in West Sweden. Acta Paediatrica, 98(2), 361–366.PubMedCrossRef
22.
Zurück zum Zitat White-Koning, M., Arnaud, C., Dickinson, H. O., Thyen, U., Beckung, E., Fauconnier, J., et al. (2007). Determinants of child-parent agreement in quality-of-life reports: A European study of children with cerebral palsy. Pediatrics, 120, e804–e814.PubMedCrossRef White-Koning, M., Arnaud, C., Dickinson, H. O., Thyen, U., Beckung, E., Fauconnier, J., et al. (2007). Determinants of child-parent agreement in quality-of-life reports: A European study of children with cerebral palsy. Pediatrics, 120, e804–e814.PubMedCrossRef
Metadaten
Titel
Health-related quality of life of children and adolescents with functional disabilities in a northern Swedish county
verfasst von
Erik Domellöf
Ludmilla Hedlund
Pia Ödman
Publikationsdatum
01.08.2014
Verlag
Springer International Publishing
Erschienen in
Quality of Life Research / Ausgabe 6/2014
Print ISSN: 0962-9343
Elektronische ISSN: 1573-2649
DOI
https://doi.org/10.1007/s11136-013-0613-4

Weitere Artikel der Ausgabe 6/2014

Quality of Life Research 6/2014 Zur Ausgabe