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Erschienen in:

01.09.2009

PatientViewpoint: a website for patient-reported outcomes assessment

verfasst von: Claire F. Snyder, Roxanne Jensen, S. Orion Courtin, Albert W. Wu, Website for Outpatient QOL Assessment Research Network

Erschienen in: Quality of Life Research | Ausgabe 7/2009

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Abstract

Purpose

To develop a prototype website to collect patient-reported outcomes in outpatient clinical oncology and link the data with the electronic medical record (EMR).

Methods

A multidisciplinary Research Network, including experts in outcomes research, clinical oncology, nursing, social work, information technology, EMRs, behavioral science, decision science, clinical trials, law, and a cancer survivor, was formed to design the prototype website. The Research Network developed the initial website specifications, elicited feedback from patients (n = 20) and clinicians (n = 7), constructed the website, and conducted usability testing (n = 10).

Results

Clinicians reported that the website could improve clinical practice if it was not burdensome and were most interested in tracking change over time. Patients were interested in using the website because of the potential to facilitate communication with their clinicians. Patients emphasized the importance of short and simple surveys and a user-friendly interface. The PatientViewpoint website was designed to meet these specifications. Usability testing suggested that patients had few problems accessing and using the site.

Conclusions

Preliminary reports from clinicians and patients suggest that a website to collect PROs and link them with the EMR could help improve the quality of cancer care. Further pilot-testing will evaluate the use, usefulness, and acceptability of PatientViewpoint.

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Titel: PatientViewpoint: a website for patient-reported outcomes assessment
verfasst von: Claire F. Snyder
Roxanne Jensen
S. Orion Courtin
Albert W. Wu
Website for Outpatient QOL Assessment Research Network
Publikationsdatum: 01.09.2009
Verlag: Springer Netherlands
Erschienen in: Quality of Life Research / Ausgabe 7/2009
Print ISSN: 0962-9343
Elektronische ISSN: 1573-2649
DOI: https://doi.org/10.1007/s11136-009-9497-8

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Abstract

Purpose

Methods

Results

Conclusions

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