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Computer Supported Cooperative Work (CSCW)

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20.06.2019

Personal Health Records and Patient-Oriented Infrastructures: Building Technology, Shaping (New) Patients, and Healthcare Practitioners

verfasst von: Enrico Maria Piras, Federico Cabitza, Myriam Lewkowicz, Liam Bannon

Erschienen in: Computer Supported Cooperative Work (CSCW) | Ausgabe 6/2019

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The Personal Health Record (PHR) is an umbrella label that refers to a family of digital Information and Communication Technologies under direct patient control which has gained momentum in the last decade. The “Personally Controlled Health Record”, a phrasing used in the early days and now almost abandoned, could be considered a more accurate label as it points to the revolutionary feature of such technologies. ‘Revolutionary’ is here used in its etymological sense, in that providing patient access and control over their clinical data was a part of a more general movement of transforming a provider-centred care into a patient-centric one. …

Nächster Artikel Between Personal and Common: the Design of Hybrid Information Spaces

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This phrase, as well as similar ones like `electronic medical record’, usually denote the patient-specific (electronic) record that represents and documents a single stay at a hospital of any patient. On the other hand, electronic health records and personal health record denote both lifelong collections of data and facts that pertain to the health of a single citizen. The difference between the latter two applications seems subtle, if not vague, to many commentators and it is often (NAHIT 2008) related to the degree of autonomy, access and ownership held by the patient (which is stronger in the PHR case)

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Titel: Personal Health Records and Patient-Oriented Infrastructures: Building Technology, Shaping (New) Patients, and Healthcare Practitioners
verfasst von: Enrico Maria Piras
Federico Cabitza
Myriam Lewkowicz
Liam Bannon
Publikationsdatum: 20.06.2019
Verlag: Springer Netherlands
Erschienen in: Computer Supported Cooperative Work (CSCW) / Ausgabe 6/2019
Print ISSN: 0925-9724
Elektronische ISSN: 1573-7551
DOI: https://doi.org/10.1007/s10606-019-09364-x

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