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Quality of Life Research

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16.12.2017 | Review

Quality of life among parents of preterm infants: a scoping review

verfasst von: Mariana Amorim, Susana Silva, Michelle Kelly-Irving, Elisabete Alves

Erschienen in: Quality of Life Research | Ausgabe 5/2018

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Abstract

Purpose

To synthesize the body of knowledge on the factors influencing the QoL of mothers and fathers of preterm infants.

Methods

A scoping review was performed. Publications indexed in PubMed®, Web of Science™, CINAHL® and PsycINFO® were searched, targeting studies presenting original empirical data that examined parental perception on QoL after a preterm delivery. Eligibility and data extraction were conducted by two independent researchers. The main quantitative findings were synthesized and qualitative data were explored by content analysis.

Results

The studies, 11 quantitative and 1 mixed methods, were derived mainly from the USA (n = 6). Heterogeneity across the studies was observed regarding the operationalization of QoL and the use of units of analysis (mothers, parents, families and caregivers). In a context where 40 out of 45 covariates were analysed by only one or two studies, results suggested that parental QoL after a preterm delivery is influenced by factors related with mother’s characteristics, family issues and health care environment rather than infants’ variables. Factors regarding fathers’ characteristics and structural levels were not addressed.

Conclusions

Standardizing the operationalization of the QoL when analysing mothers and fathers of preterm infants calls for a structured questionnaire adapted to their specific needs. Further research should include both mothers and fathers, invest in mixed methods approaches and be performed in different countries and settings for allowing integration and comparison of findings.

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Titel: Quality of life among parents of preterm infants: a scoping review
verfasst von: Mariana Amorim
Susana Silva
Michelle Kelly-Irving
Elisabete Alves
Publikationsdatum: 16.12.2017
Verlag: Springer International Publishing
Erschienen in: Quality of Life Research / Ausgabe 5/2018
Print ISSN: 0962-9343
Elektronische ISSN: 1573-2649
DOI: https://doi.org/10.1007/s11136-017-1771-6

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Abstract

Purpose

Methods

Results

Conclusions

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