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Quality of Life Research
Erschienen in: Quality of Life Research 9/2013

01.11.2013

Satisfaction with oncology care among patients with advanced cancer and their caregivers

verfasst von: Breffni Hannon, Nadia Swami, Monika K. Krzyzanowska, Natasha Leighl, Gary Rodin, Lisa W. Le, Camilla Zimmermann

Erschienen in: Quality of Life Research | Ausgabe 9/2013

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Abstract

Purpose

Satisfaction with care is important for quality assurance in oncology, but may differ between patients and caregivers. We aimed to assess satisfaction with cancer care in paired analyses of these groups, examine differences between them, and identify areas for potential intervention.

Methods

Patients with advanced cancer and their caregivers were recruited from 24 medical oncology outpatient clinics. Satisfaction with care was measured using the FAMCARE (caregivers) and FAMCARE-Patient (patients) scales. Quality of life (QOL) was measured with the Caregiver QOL Index-Cancer (caregivers) and FACIT-Sp (patients). The paired t test assessed differences in overall satisfaction and individual scores. In addition, scores were dichotomized into satisfied versus not satisfied, and McNemar’s test was used to assess differences. Multivariable linear regression analyses assessed predictors of patient and caregiver satisfaction, respectively.

Results

Satisfaction ratings in the 191 patient–caregiver pairs were high, but patients were more satisfied (p = 0.02). Both groups were least satisfied with information regarding prognosis and pain management. Caregivers were significantly less satisfied than patients regarding coordination of care (p = 0.001) and family inclusion in treatment/care decisions (p < 0.0001). In both groups, higher education was associated with lower satisfaction (p ≤ 0.01), while better QOL predicted greater satisfaction (p < 0.0001).

Conclusions

Communication regarding pain control and prognosis were identified as key areas for improvement. Caregivers seem to desire greater involvement in treatment decisions, though this must be balanced with patient autonomy.
Vorheriger Artikel Using group-based trajectory modeling to examine heterogeneity of symptom burden in patients with head and neck cancer undergoing aggressive non-surgical therapy
Nächster Artikel Physical activity and health-related quality of life among adult women in Cali, Colombia: a cross-sectional study

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Metadaten
Titel
Satisfaction with oncology care among patients with advanced cancer and their caregivers
verfasst von
Breffni Hannon
Nadia Swami
Monika K. Krzyzanowska
Natasha Leighl
Gary Rodin
Lisa W. Le
Camilla Zimmermann
Publikationsdatum
01.11.2013
Verlag
Springer Netherlands
Erschienen in
Quality of Life Research / Ausgabe 9/2013
Print ISSN: 0962-9343
Elektronische ISSN: 1573-2649
DOI
https://doi.org/10.1007/s11136-013-0371-3

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