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Erschienen in: Social Indicators Research 3/2013

01.05.2013

Towards International and Interdisciplinary Research Collaboration for the Measurements of Quality of Life

verfasst von: Sachie Mizohata, Raynald Jadoul

Erschienen in: Social Indicators Research | Ausgabe 3/2013

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Abstract

This paper focuses on three main subjects: (1) monitoring quality of life (QoL) in old age; (2) international and interdisciplinary collaboration for QoL research; and (3) computer-based technology and infrastructure assisting (1) and (2). This type of computer-supported cooperative work in the social sciences has been termed eHumanities or eSocial Science. Although QoL issues matter for all ages, given the size of population aging and the demographic outlook of developed countries, QoL in old age is one of the most pressing issues to study (Walker and Mollenkopf in Quality of life in old age: international and multi-disciplinary perspectives, Springer, The Netherlands, 2007). Despite the recognized need for good measurement methods in QoL (e.g., Stiglitz et al. in The measurement of economic performance and social progress revisited. progress revisited. OFCE working documents, Observatoire Francais des Conjonctures Economiques (OFCE), Paris, 2009), effective mechanisms allowing cross-country comparisons are still rare. In the context of QoL or human well-being research and measurement, one of the most influential concepts is the capability approach (CA). Yet, the operationalization of the CA has long been one of the serious challenges faced by capabilities and quality of life researchers. As regards to this issue, we argue that modern technology has the potential to provide ample tools for enhancing the measurement of human well-being, and facilitating large-scale collaborative research on the QoL. This paper demonstrates a methodology, procedures, and tools that we have developed, based on the new technologies designed and developed for both governmental and intergovernmental (OECD) sponsored assessments and that are ready to be used for QoL analysis. We propose a viable alternative for facilitating international and interdisciplinary research collaboration to develop a methodology and a dashboard of indicators to monitor the progress of human well-being over the years and to formalize its multidimensional measure for international comparisons.

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Fußnoten
1
Different terms such as e-Science, e-Research, cyber-science and the like have been used to describe the new research methods. However, we treat these terms as synonymous for the purposes of analysis in this paper. Though, in general, we adopt the term eSocial Science, eHumanities, or eResearch to be consistent.
 
2
By “general,” we mean context independent in its foundation principles and generally applicable in a scientific-oriented perspective.
 
3
For example, the Human Development Index (HDI).
 
4
As McGillivray (2007, p. 3) clarifies, some terms are distinctly different, but others have overlapping meanings. In this paper, we use the following terms synonymously and interchangeably: quality of life, human development, human well-being, and the wider approaches to human flourishing.
 
5
TAO is the French acronym for “Testing Assisté par Ordinateur” (i.e. “Computer-Assisted Testing”).
 
6
CMS or “Content Management System” is, in our case, a Web infrastructure suitable for sharing large information sets.
 
7
In accordance with the Semantic Web vision, the models produced via the platform can also be managed, “understood,” and enriched by the machines themselves using inference and other reasoning algorithms.
 
8
Meetings took place on June 5, 2007 in Shiga, Japan (a group of seven people: six seniors; one moderator/recorder), on October 19, 2008 in Metz, France (a group of five people: two seniors; one gerontology nurse; one moderator; one recorder), and on November 26, 2008 in Hupperdange, Luxembourg (a group of ten people: six seniors; one gerontology social worker; one moderator/interpreter/recorder each). Each meeting lasted for about three hours and 30 min.
 
9
We chose these countries which belong to OECD members states, and share similar living standards and welfare state arrangements (OECD 2008) as well as due to our familiarity.
 
10
The questions were: “(1) Thinking about your life as a whole, what is it that makes your life good—that is, the things that give our life quality? You may mention as many things as you like. (2) What is it that makes your life bad—that is the things reduce the quality in your life? Your may mention as many things as you like. (3) Thinking of all these good and bad things you have just mentioned, which one is the most important to you? (4) What single thing would improve the quality of your life? (5) What single thing would improve the overall quality of life for people of your age?” (Bowling 2004, p. 162).
 
11
http://​www.​un.​org/​esa/​socdev/​ageing/​madrid_​intlplanaction.​html The MIPAA has three main priorities: older people and development of society, advancing health and well-being into old age, and enabling and supporting environments for the elderly. Each of the priorities has 11 specific objectives with a total of 117 recommendations to achieve these objectives.
 
12
For example, in his work, José Manuel Roche justifies selecting the initial indicators drawing on general international conventions (Roche 2008, p. 431).
 
13
To evaluate health status of elderly persons, social scientists often employ ADLs and IADLs, and “if the respondent is unable to perform even one ADL or IADL, he/she is considered to be unhealthy/inactive” (Ogawa et al. 2009, p. 143). “The seven ADLs include bathing, dressing, eating, transferring from/to bed/chair, walking inside a house, going outside and toileting. The seven IADLs consist in preparing own meals, shopping for personal items, managing money, making a phone call, doing light house work, going out alone by using public transportation and taking medication” (ibid., pp. 143–144).
 
14
Including email, Skype, GoToMeeting (Web conference), TeamViewer (document sharing).
 
15
Although we do not mention them by name, numerous researchers, retirees, practitioners, and computer scientists assisted and contributed to the early stages of this work. Then, the questionnaire was reviewed and has been refined with the help of the following individuals: Alan Walker, Paul Chatin, Mari Yamaguchi, Guy Palmer, Fabiola de Falco, Mireille Ramiandrisoa, Nathalie Bourgeois, Lars Andersson, Agnes Nemenyi, Robert Cummins, Sabina Alkire, and Kentaro Yamamoto.
 
16
Difficulties in the wider uptake of eResearch have been discussed (e.g., De Roure and Goble 2009).
 
17
However, the German version was not used.
 
19
The idea here is largely derived from Elizabeth Anderson’s work entitled “Justifying the capabilities approach to justice” in Measuring Justice (Cambridge University Press 2010, p. 93).
 
20
However, the process of elaboration of model has not yet been documented thoroughly.
 
21
This refers to the standards L10n and i18n; more details on: http://​www.​w3.​org/​International/​questions/​qa-i18n.​en.
 
22
In the CAPI version we used, critical security issues, however, remain. Namely, the security of collected data needs to be enhanced when data are stored in the CAPI, but not yet uploaded to a results server. Also, no integrity check assures that collected data stay unmanipulated while in the CAPI. Finally, data are “readable” by a third-party during the upload to the server. These issues will be addressed in 2nd version of the platform.
 
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Metadaten
Titel
Towards International and Interdisciplinary Research Collaboration for the Measurements of Quality of Life
verfasst von
Sachie Mizohata
Raynald Jadoul
Publikationsdatum
01.05.2013
Verlag
Springer Netherlands
Erschienen in
Social Indicators Research / Ausgabe 3/2013
Print ISSN: 0303-8300
Elektronische ISSN: 1573-0921
DOI
https://doi.org/10.1007/s11205-012-0027-7

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