Plain English summary
Introduction
Methods
Design and participants
Measures
Statistical analysis
Assessment of predictive accuracy
Model validation
Results
Sample and descriptive data
Observations (N = 108) | Missing (n) | |
---|---|---|
Age of the child (years) | 1 (0.93%) | |
Mean (SD) | 11.98 (4.20) | |
Range | 5-18 | |
Male children | 66 (61.11%) | 1 (0.93%) |
Gross Motor Function Classification System (GMFCS) level | 1 (0.93%) | |
Level IV | 40 (37.04%) | |
Level V | 52 (48.15%) | |
Not familiar with this classification or not sure | 15 (13.89%) | |
Highest education of the child has completed | 1 (0.93%) | |
Kindergarten | 11 (10.28%) | |
1st to 6th grade | 42 (39.26%) | |
7th to 12th grade | 31 (28.97%) | |
Ungraded | 23 (21.50%) | |
Age of parents/caregivers (years) | 7 (6.48%) | |
Mean (SD) | 44.39 (9.28) | |
Range | 20-73 | |
Female parents/caregivers | 100 (92.59%) | 2 (1.85%) |
Relationship with the child | 5 (4.63%) | |
Biological parent | 99 (91.67%) | |
Foster parent | 1 (0.93%) | |
Guardian | 2 (1.85%) | |
Other, e.g. maternal grandmother | 1 (0.93%) | |
Work status | ||
Not working due to my child’s health | 40 (37.04%) | |
Not working for other reasons | 8 (7.41%) | |
Looking for work | 2 (1.85%) | |
Working full or part time | 48 (44.44%) | |
Full-time homemaker | 12 (11.11%) | |
Providing care 7 days a week | 91 (84.26%) | 5 (4.63%) |
Highest education of the parents/caregivers | 5 (4.63%) | |
Some high school or less | 16 (14.81%) | |
High school or diploma | 14 (12.96%) | |
Vocational school or some college | 12 (11.11%) | |
College or university degree | 32 (29.36%) | |
Professional or graduate degree | 29 (26.85%) | |
Perceived socioeconomic status | 1 (0.93%) | |
Not at all well off | 4 (3.70%) | |
Not particularly well off | 30 (27.78%) | |
Fairly well off | 58 (53.70%) | |
Rather well off | 12 (11.11%) | |
Very well off | 3 (2.78%) | |
Observed CHU9D utilities | ||
Mean (SD) | 0.485 (0.231) | |
Range | 0.001-0.989 | |
Observed CPCHILD total scores | ||
Mean (SD) | 45.377 (13.498) | |
Range | 11.892-78.249 | |
Observed CPCHLD domain scores, mean (SD) | ||
Personal care/activities for daily living | 32.246 (12.504) | |
Positioning, transferring and mobility | 30.912 (12.855) | |
Comfort and emotions | 70.121 (23.143) | |
Communication and social interaction | 40.366 (22.260) | |
Health services utilisation and overall health | 60.802 (22.152) | |
Overall quality of life | 55.000 (25.376) |
Correlation coefficients | p-value | |
---|---|---|
CPCHILD total score | 0.5634 | < 0.0001 |
CPCHILD personal care and activities of daily living domain score | 0.3094 | 0.0011 |
CPCHILD positioning, transferring and mobility domain score | 0.3494 | 0.0002 |
CPCHILD comfort and emotion domain score | 0.5342 | < 0.0001 |
CPCHILD communication and social interaction domain score | 0.4058 | < 0.0001 |
CPCHILD health service utilisation and overall health domain score | 0.4289 | < 0.0001 |
CPCHILD overall quality of life domain score | 0.5026 | < 0.0001 |
Final model predictors
Mapping regressions
N = 108 | Predictors | Differences between predicted and observed mean CHU9D utilities | Mean of predicted CHU9D utilities | Minimum predicted CHU9D utilities | Maximum predicted CHU9D utilities | Range of predicted CHU9D utilities | MAE | CCC | Recommended mapping model |
---|---|---|---|---|---|---|---|---|---|
Observed CHU9D utilities | 0.485 | 0.001 | 0.989 | 0.988 | |||||
Predictor set 1: CPCHILD total score | |||||||||
OLS | 0.000 | 0.485 | 0.162 | 0.802 | 0.640 | 0.1572 | 0.482 | ||
MM-estimator | -0.005 | 0.480 | 0.155 | 0.799 | 0.644 | 0.1572 | 0.483c | 2nd choice | |
GLM Gaussian family log link | 0.002 | 0.487 | 0.260 | 0.850 | 0.590 | 0.1613 | 0.442 | ||
GLM Gaussian family logit link | 0.002 | 0.487 | 0.190 | 0.787 | 0.596 | 0.1572 | 0.483c | ||
GLM Gamma family log link | 0.003 | 0.488 | 0.217 | 0.983 | 0.766 | 0.162 | 0.492b | ||
GLM Gamma family logit link | 0.005 | 0.490 | 0.165 | 0.818 | 0.653 | 0.1561 | 0.508a | 1st choice | |
Predictor set 2: selected CPCHILD domain scores | |||||||||
OLS | Comfort and emotion and Quality of life domain scores | 0.000 | 0.485 | 0.108 | 0.706 | 0.598 | 0.1553 | 0.507 | |
MM-estimator | Comfort and emotion and Quality of life domain scores | -0.011 | 0.474 | 0.058 | 0.728 | 0.670 | 0.1521 | 0.531c | |
GLM Gaussian family log link | Comfort and emotion and Quality of life domain scores | 0.000 | 0.485 | 0.188 | 0.750 | 0.561 | 0.157 | 0.505 | |
GLM Gaussian family logit link | Comfort and emotion, Health and Quality of life domain scores | 0.000 | 0.485 | 0.143 | 0.712 | 0.569 | 0.1553 | 0.518 | |
GLM Gamma family log link | Comfort and emotion, Health and Quality of life domain scores | 0.003 | 0.488 | 0.153 | 0.905 | 0.752 | 0.1532 | 0.533b | 2nd choice |
GLM Gamma family logit link | Comfort and emotion, Health and Quality of life domain scores | 0.008 | 0.493 | 0.101 | 0.790 | 0.689 | 0.1521 | 0.552a | 1st choice |
OLS | MM | GLM Gaussian family log link | GLM Gaussian family logit link | GLM Gamma family log link | GLM Gamma family logit link | |
---|---|---|---|---|---|---|
Model 1: CPCHILD total score | ||||||
CPCHILD total score | 0.0096*** (0.001) | 0.0097*** (0.001) | 0.0178*** (0.003) | 0.0415*** (0.007) | 0.02275** (0.003) | 0.0471*** (0.007) |
Constant | 0.0472 (0.056) | 0.0393 (0.059) | − 1.5588*** (0.142) | − 1.9406*** (0.316) | − 1.7965*** (0.159) | − 2.1839*** (0.274) |
Model 2: selected CPCHILD domain scores | ||||||
CPCHILD comfort and emotions domain score | 0.0036*** (0.001) | 0.0036*** (0.001) | 0.0108*** (0.003) | 0.0173*** (0.005) | 0.0078*** (0.002) | 0.0112** (0.004) |
CPCHILD quality of life domain score | 0.0026** (0.001) | 0.0034** (0.001) | 0.0039* (0.002) | 0.0110** (0.004) | 0.0059* (0.002) | 0.0130* (0.005) |
CPCHILD health domain score | 0.0050* (0.002) | 0.0120** (0.004) | ||||
Constant | 0.0851 (0.059) | 0.0355 (0.052) | − 1.7380*** (0.19) | − 1.8988*** (0.327) | − 1.9387*** (0.162) | − 2.2743*** (0.256) |