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Influenza-like illnesses (ILI) cause paediatric morbidity and affect the quality of life (QoL) of children and their parents. We have developed a disease-specific questionnaire (Care-ILI-QoL) to measure the QoL of caregivers of children with ILI.
The drafting of the Care-ILI-QoL questionnaire was based on a systematic review, a quantitative survey, qualitative interviews with parents, and meetings with paediatricians. Children aged 6–48 months recruited from childcare centres in Sydney, Australia, were followed up during the 2011 influenza season. Care-ILI-QoL and SF-12v2 Acute Form were administered to the parent of a sick child 2 weeks after the onset of ILI, and again 2 weeks after the child had recovered. Exploratory factor analysis was conducted. Internal consistency, concurrent validity, discriminant validity, homogeneity of items, and responsiveness were tested.
Out of the 125 children enrolled from 48 childcare centres, 55 children had ILI (total 75 ILI episodes). Care-ILI-QoL was reduced from 25 to 16 items covering four factors: Daily Activities, Perceived Support, Social Life, and Emotions (Cronbach’s alphas 0.90, 0.92, 0.78, and 0.72, respectively). Care-ILI-QoL has satisfactory concurrent and discriminant validity, good internal consistency, and excellent responsiveness. Total QoL and factor scores correlated well with SF-12v2 scores. Total QoL scores were significantly lower in parents who perceived their child as very/extremely sick, sacrificed 10 hours or more in work or recreation in caring for the child, or whose child had two or more general practitioner visits. Total QoL and factor scores were significantly higher after the child had recovered than when the child had ILI.
Care-ILI-QoL is the first ILI-specific QoL instrument for parents and is demonstrated to be valid and reliable in a developed country setting where the child is affected by ILI. It has the potential to be applied in clinical and research settings to assist measurement of disease burden, as a needs assessment tool for resources or to inform policy changes.
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Yin, J. K., Salkeld, G., Lambert, S. B., Dierig, A., Heron, L., Leask, J., et al. (2013). Estimates and determinants of economic impacts from influenza-like illnesses caused by respiratory viruses in Australian children attending childcare: A cohort study. Influenza and Other Respiratory Viruses. doi: 10.1111/irv.12138.
World Health Organization. (2003). WHO definition of health. http://www.who.int/about/definition/en/print.html. Accessed 13 Feb.
Chow, M. Y., Morrow, A. M., Cooper Robbins, S. C., & Leask, J. (2013). Condition-specific quality of life questionnaires for caregivers of children with pediatric conditions: A systematic review. Quality of Life Research . doi: 10.1007/s11136-012-0343-z.
Drummond, M. F., O’Brien, B. J., Stoddard, G. L., & Torrance, G. W. (1997). Methods for the Economic Evaluation of Health Care Programs (2nd ed.). Toronto: Oxford Medical Publications.
Esposito, S., Gasparini, R., Bosis, S., Marchisio, P., Tagliabue, C., Tosi, S., et al. (2005). Clinical and socio-economic impact of influenza and respiratory syncytial virus infection on healthy children and their households. Clinical Microbiology and Infectious Diseases, 11(11), 933–936. CrossRef
Lambert, S., O’Grady, K. A., Gabriel, S., Carter, R., & Nolan, T. (2004). The cost of seasonal respiratory illnesses in Australian children: The dominance of patient and family costs and implications for vaccine use. Communicable Diseases Intelligence, 28(4), 510–516.
Szucs, T. (1999). The socio-economic burden of influenza. Journal of Antimicrobial Chemotherapy, 44(Suppl B), 11–15.
World Health Organization. (1996). WHOQOL-BREF: Introduction, administrations, scoring and generic version of the assessment. http://www.who.int/mental_health/media/en/76.pdf. Accessed 26 Mar 2012.
Medical Outcomes Trust. (2013). SF-36.org—A community for measuring health outcomes using SF tools. http://www.sf-36.org/. Accessed 31 Jan.
O’Connor, R. (2004). Measuring quality of life in health (1st ed.). Sydney: Churchill Livingstone.
Australian New Zealand Clinical Trials Registry. (2007). Paediatric Influenza Vaccine Outcome Trial (PIVOT). https://www.anzctr.org.au/Trial/Registration/TrialReview.aspx?id=335384. Accessed 13 Feb.
Chow, M. Y., Leask, J., Yin, J. K., Heron, L., Morrow, A. M., Dierig, A., et al. (2013). The impact of influenza-like-illness in young children on their parents: A quality of life survey. Quality of Life Research, Under review (unpublished data).
Ware, J. E., Kosinski, M., Turner-Bowker, D. M., & Gandek, B. (2002). User’s manual for the SF-12v2 Health Survey with a supplement documenting SF-12 Health Survey. Lincoln, RI: QualityMetric Incorporated.
Glaser, B. G., & Strauss, A. L. (1967). The discovery of grounded theory: Strategies for qualitative research. Chicago: Aldine Publishing Company.
Streiner, D. L., & Norman, G. R. (2008). Health Measurement Scales-a practical guide to their development and use (4th ed.). New York: Oxford University Press.
Dupont, W. D., & Plummer, W. D. (2009). PS power and sample size calculations software version 3.0. http://biostat.mc.vanderbilt.edu/PowerSampleSize. Accessed 4 Feb 2011.
Nandakumar, R., & Ackerman, T. (2004). The SAGE handbook of quantitative methodology for the social sciences (pp. 93–105). Thousand Oaks, CA: SAGE Publications.
Tabachnick, B. G., & Fidell, L. S. (2007). Using multivariate statistics (5th ed.). Boston, MA: Pearson Education.
COSMIN. (2012). http://www.cosmin.nl. Accessed 13 Nov 2012.
Walters, S. J. (2009). Quality of life outcomes in clinical trials and health-care evaluation: A practical guide to analysis and interpretation. Chichester, UK: Wiley. CrossRef
Kaiser, H. F. (1974). An index of factorial simplicity. Psychometrika, 39(1), 31–36. CrossRef
Pallant, J. (2007). SPSS survival manual: A step by step guide to data analysis using SPSS (3rd ed., p. 181). Sydney, Australia: Allen & Unwin.
Farnik, M., Brozek, G., Pierzchala, W., Zejda, J. E., Skrzypek, M., & Walczak, L. (2010). Development, evaluation and validation of a new instrument for measurement quality of life in the parents of children with chronic disease. Health and Quality of Life Outcomes, 8, 151. PubMedCentralPubMedCrossRef
Weitzner, M. A., Jacobsen, P. B., Wagner, H., Jr, Friedland, J., & Cox, C. (1999). The Caregiver Quality of Life Index-Cancer (CQOLC) scale: Development and validation of an instrument to measure quality of life of the family caregiver of patients with cancer. Quality of Life Research, 8(1–2), 55–63. PubMedCrossRef
Cappelleri, J. C., Gerber, R. A., Quattrin, T., Deutschmann, R., Luo, X., Arbuckle, R., et al. (2008). Development and validation of the WEll-being and Satisfaction of CAREgivers of children with diabetes questionnaire (WE-CARE). Health and Quality of Life Outcomes, 6, 3. PubMedCentralPubMedCrossRef
Kline, P. (1994). An easy guide to factor analysis. New York: Routledge.
Norman, G. R., & Streiner, D. L. (2008). Biostatistics: The bare essentials (3rd ed.). Shelton, Conn: People’s Medical Publication House.
Jastrowski Mano, K. E., Khan, K. A., Ladwig, R. J., & Weisman, S. J. (2011). The impact of pediatric chronic pain on parents’ health-related quality of life and family functioning: Reliability and validity of the PedsQL 4.0 Family Impact Module. Journal of Pediatric Psychology, 36(5), 517–527.
Young, T. (2011). Using PRO data to generate QALYS: Deriving preference-based single index measures from existing measures (Workshop). The International Society of Quality of Life Research 18th Annual Conference; Denver, CO, US.
- Quality of life for parents of children with influenza-like illness: development and validation of Care-ILI-QoL
Maria Yui Kwan Chow
Jiehui Kevin Yin
- Springer International Publishing
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