Skip to main content
Fachgebiete
Automobil + Motoren Bauwesen + Immobilien Business IT + Informatik Elektrotechnik + Elektronik Energie + Nachhaltigkeit Finance + Banking Management + Führung Marketing + Vertrieb Maschinenbau + Werkstoffe Versicherung + Risiko
DE
EN
Themenseiten
Organisationspsychologie Projektmanagement Marketing Smart Manufacturing
Bücher
Zeitschriften
Weitere Formate
Podcasts Webinare Technik Webinare Wirtschaft Kongresse Veranstaltungskalender Awards
Jetzt Einzelzugang starten
Zugang für Unternehmen
Referenzkunden
MTZ-Fachkongress

Antriebe und Energiesysteme von morgen


Austausch von Automobil- und Energiewirtschaft

Am 14./15. Mai geht es in Chemnitz um die Mobilitätswende durch Elektro- und Wasserstofffahrzeuge.
Erweiterte Suche
Anmelden
nach oben
Quality of Life Research
Erschienen in: Quality of Life Research 3/2014

01.04.2014

Quality of life for parents of children with influenza-like illness: development and validation of Care-ILI-QoL

verfasst von: Maria Yui Kwan Chow, Angela Morrow, Leon Heron, Jiehui Kevin Yin, Robert Booy, Julie Leask

Erschienen in: Quality of Life Research | Ausgabe 3/2014

Einloggen

Aktivieren Sie unsere intelligente Suche, um passende Fachinhalte oder Patente zu finden.

search-config
loading …

Abstract

Purpose

Influenza-like illnesses (ILI) cause paediatric morbidity and affect the quality of life (QoL) of children and their parents. We have developed a disease-specific questionnaire (Care-ILI-QoL) to measure the QoL of caregivers of children with ILI.

Methods

The drafting of the Care-ILI-QoL questionnaire was based on a systematic review, a quantitative survey, qualitative interviews with parents, and meetings with paediatricians. Children aged 6–48 months recruited from childcare centres in Sydney, Australia, were followed up during the 2011 influenza season. Care-ILI-QoL and SF-12v2 Acute Form were administered to the parent of a sick child 2 weeks after the onset of ILI, and again 2 weeks after the child had recovered. Exploratory factor analysis was conducted. Internal consistency, concurrent validity, discriminant validity, homogeneity of items, and responsiveness were tested.

Results

Out of the 125 children enrolled from 48 childcare centres, 55 children had ILI (total 75 ILI episodes). Care-ILI-QoL was reduced from 25 to 16 items covering four factors: Daily Activities, Perceived Support, Social Life, and Emotions (Cronbach’s alphas 0.90, 0.92, 0.78, and 0.72, respectively). Care-ILI-QoL has satisfactory concurrent and discriminant validity, good internal consistency, and excellent responsiveness. Total QoL and factor scores correlated well with SF-12v2 scores. Total QoL scores were significantly lower in parents who perceived their child as very/extremely sick, sacrificed 10 hours or more in work or recreation in caring for the child, or whose child had two or more general practitioner visits. Total QoL and factor scores were significantly higher after the child had recovered than when the child had ILI.

Conclusions

Care-ILI-QoL is the first ILI-specific QoL instrument for parents and is demonstrated to be valid and reliable in a developed country setting where the child is affected by ILI. It has the potential to be applied in clinical and research settings to assist measurement of disease burden, as a needs assessment tool for resources or to inform policy changes.
Vorheriger Artikel Validity, reliability and discriminative capacity of an electronic quality of life instrument (Pelican) for childhood asthma in the Netherlands
Nächster Artikel Validation of the Rhinoplasty Outcomes Evaluation (ROE) questionnaire adapted to Brazilian Portuguese

Sie haben noch keine Lizenz? Dann Informieren Sie sich jetzt über unsere Produkte:

Springer Professional "Wirtschaft+Technik"

Online-Abonnement

Mit Springer Professional "Wirtschaft+Technik" erhalten Sie Zugriff auf:

  • über 102.000 Bücher
  • über 537 Zeitschriften

aus folgenden Fachgebieten:

  • Automobil + Motoren
  • Bauwesen + Immobilien
  • Business IT + Informatik
  • Elektrotechnik + Elektronik
  • Energie + Nachhaltigkeit
  • Finance + Banking
  • Management + Führung
  • Marketing + Vertrieb
  • Maschinenbau + Werkstoffe
  • Versicherung + Risiko

Jetzt Wissensvorsprung sichern!

Jetzt informieren

Springer Professional "Wirtschaft"

Online-Abonnement

Mit Springer Professional "Wirtschaft" erhalten Sie Zugriff auf:

  • über 67.000 Bücher
  • über 340 Zeitschriften

aus folgenden Fachgebieten:

  • Bauwesen + Immobilien
  • Business IT + Informatik
  • Finance + Banking
  • Management + Führung
  • Marketing + Vertrieb
  • Versicherung + Risiko




Jetzt Wissensvorsprung sichern!

Jetzt informieren
Literatur
1.
Heikkinen, T., Silvennoinen, H., Peltola, V., Ziegler, T., Vainionpaa, R., Vuorinen, T., et al. (2004). Burden of influenza in children in the community. Journal of Infectious Diseases, 190(8), 1369–1373.PubMedCrossRef
2.
Iskander, M., Kesson, A., Dwyer, D., Rost, L., Pym, M., Wang, H., et al. (2009). The burden of influenza in children under 5 years admitted to the Children’s Hospital at Westmead in the winter of 2006. Journal of Paediatrics and Child Health, 45(12), 698–703.PubMedCrossRef
3.
Munoz, F. M. (2002). The impact of influenza in children. Seminars in Pediatric Infectious Diseases, 13(2), 72–78.PubMedCrossRef
4.
O’Brien, M. A., Uyeki, T. M., Shay, D. K., Thompson, W. W., Kleinman, K., McAdam, A., et al. (2004). Incidence of outpatient visits and hospitalizations related to influenza in infants and young children. Pediatrics, 113(3 Pt 1), 585–593.PubMedCrossRef
5.
Nair, H., Brooks, W. A., Katz, M., Roca, A., Berkley, J. A., Madhi, S. A., et al. (2011). Global burden of respiratory infections due to seasonal influenza in young children: A systematic review and meta-analysis. Lancet, 378(9807), 1917–1930.PubMedCrossRef
6.
Newall, A. T., & Scuffham, P. A. (2008). Influenza-related disease: The cost to the Australian healthcare system. Vaccine, 26(52), 6818–6823.PubMedCrossRef
7.
Nicholson, K. G., Wood, J. M., & Zambon, M. (2003). Influenza. Lancet, 362(9397), 1733–1745.PubMedCrossRef
8.
Iskander, M., Booy, R., & Lambert, S. (2007). The burden of influenza in children. Current Opinion in Infectious Diseases, 20(3), 259–263.PubMedCrossRef
9.
Poehling, K. A., Edwards, K. M., Weinberg, G. A., Szilagyi, P., Staat, M. A., Iwane, M. K., et al. (2006). The underrecognized burden of influenza in young children. New England Journal of Medicine, 355(1), 31–40.PubMedCrossRef
10.
Yin, J. K., Salkeld, G., Lambert, S. B., Dierig, A., Heron, L., Leask, J., et al. (2013). Estimates and determinants of economic impacts from influenza-like illnesses caused by respiratory viruses in Australian children attending childcare: A cohort study. Influenza and Other Respiratory Viruses. doi:10.​1111/​irv.​12138.
11.
12.
Chow, M. Y., Morrow, A. M., Cooper Robbins, S. C., & Leask, J. (2013). Condition-specific quality of life questionnaires for caregivers of children with pediatric conditions: A systematic review. Quality of Life Research . doi:10.​1007/​s11136-012-0343-z.
13.
Solans, M., Pane, S., Estrada, M. D., Serra-Sutton, V., Berra, S., Herdman, M., et al. (2008). Health-related quality of life measurement in children and adolescents: A systematic review of generic and disease-specific instruments. Value in Health, 11(4), 742–764.PubMedCrossRef
14.
Leidy, N. K., Revicki, D. A., & Geneste, B. (1999). Recommendations for evaluating the validity of quality of life claims for labeling and promotion. Value in Health, 2(2), 113–127.PubMedCrossRef
15.
Drummond, M. F., O’Brien, B. J., Stoddard, G. L., & Torrance, G. W. (1997). Methods for the Economic Evaluation of Health Care Programs (2nd ed.). Toronto: Oxford Medical Publications.
16.
Pickard, A. S., Topfer, L. A., & Feeny, D. H. (2004). A structured review of studies on health-related quality of life and economic evaluation in pediatric acute lymphoblastic leukemia. Journal of the National Cancer Institute, 33, 102–125.PubMedCrossRef
17.
Chow, M. Y., Morrow, A. M., Booy, R., & Leask, J. (2013). The impact of children’s influenza-like-illnesses on parental quality of life: A qualitative study. Journal of Paediatrics and Child Health, 49(8), 664–670.PubMedCrossRef
18.
Esposito, S., Gasparini, R., Bosis, S., Marchisio, P., Tagliabue, C., Tosi, S., et al. (2005). Clinical and socio-economic impact of influenza and respiratory syncytial virus infection on healthy children and their households. Clinical Microbiology and Infectious Diseases, 11(11), 933–936.CrossRef
19.
Lambert, S., O’Grady, K. A., Gabriel, S., Carter, R., & Nolan, T. (2004). The cost of seasonal respiratory illnesses in Australian children: The dominance of patient and family costs and implications for vaccine use. Communicable Diseases Intelligence, 28(4), 510–516.
20.
Tsolia, M. N., Logotheti, I., Papadopoulos, N. G., Mavrikou, M., Spyridis, N. P., Drossatou, P., et al. (2006). Impact of influenza infection in healthy children examined as outpatients and their families. Vaccine, 24(33–34), 5970–5976.PubMedCrossRef
21.
Szucs, T. (1999). The socio-economic burden of influenza. Journal of Antimicrobial Chemotherapy, 44(Suppl B), 11–15.
22.
Lambert, S. B., Allen, K. M., Carter, R. C., & Nolan, T. M. (2008). The cost of community-managed viral respiratory illnesses in a cohort of healthy preschool-aged children. Respiratory Research, 9, 11.PubMedCentralPubMedCrossRef
23.
Ware, J. E., Jr, & Sherbourne, C. D. (1992). The MOS 36-item short-form health survey (SF-36). Conceptual framework and item selection. Medical Care, 30(6), 473–483.PubMedCrossRef
24.
25.
Papaioannou, D., Brazier, J., & Parry, G. (2011). How valid and responsive are generic health status measures, such as EQ-5D and SF-36, in schizophrenia? A systematic review. Value in Health, 14(6), 907–920.PubMedCentralPubMedCrossRef
26.
27.
O’Connor, R. (2004). Measuring quality of life in health (1st ed.). Sydney: Churchill Livingstone.
28.
Wiebe, S., Guyatt, G., Weaver, B., Matijevic, S., & Sidwell, C. (2003). Comparative responsiveness of generic and specific quality-of-life instruments. Journal of Clinical Epidemiology, 56(1), 52–60.PubMedCrossRef
29.
Varni, J. W., Sherman, S. A., Burwinkle, T. M., Dickinson, P. E., & Dixon, P. (2004). The PedsQL[trademark] family impact module: Preliminary reliability and validity. Health and Quality of Life Outcomes, 2, 55.PubMedCentralPubMedCrossRef
30.
Dube, E., De Wals, P., & Ouakki, M. (2010). Quality of life of children and their caregivers during an AOM episode: Development and use of a telephone questionnaire. Health and Quality of Life Outcomes, 8, 75.PubMedCentralPubMedCrossRef
31.
Berdeaux, G., Hervie, C., Smajda, C., & Marquis, P. (1998). Parental quality of life and recurrent ENT infections in their children: Development of a questionnaire. Rhinitis Survey Group. Quality of Life Research, 7(6), 501–512.PubMedCrossRef
32.
33.
Chow, M. Y., Leask, J., Yin, J. K., Heron, L., Morrow, A. M., Dierig, A., et al. (2013). The impact of influenza-like-illness in young children on their parents: A quality of life survey. Quality of Life Research, Under review (unpublished data).
34.
Ware, J. E., Kosinski, M., Turner-Bowker, D. M., & Gandek, B. (2002). User’s manual for the SF-12v2 Health Survey with a supplement documenting SF-12 Health Survey. Lincoln, RI: QualityMetric Incorporated.
35.
Glaser, B. G., & Strauss, A. L. (1967). The discovery of grounded theory: Strategies for qualitative research. Chicago: Aldine Publishing Company.
36.
Streiner, D. L., & Norman, G. R. (2008). Health Measurement Scales-a practical guide to their development and use (4th ed.). New York: Oxford University Press.
37.
38.
Yin, J. K., Lahra, M. M., Iskander, M., Lambert, S. B., Heron, L., Nissen, M. D., et al. (2011). Pilot study of influenza vaccine effectiveness in urban Australian children attending childcare. Journal of Paediatrics and Child Health, 47(12), 857–862.PubMedCrossRef
39.
Keller, S. D., Bayliss, M. S., Ware, J. E., Jr., Hsu, M. A., Damiano, A. M., & Goss, T. F. (1997). Comparison of responses to SF-36 Health Survey questions with one-week and four-week recall periods. Health Services Research, 32(3), 367–384.PubMedCentralPubMed
40.
Morris, C., & Bartlett, D. (2004). Gross motor function classification system: Impact and utility. Developmental Medicine and Child Neurology, 46(1), 60–65.PubMedCrossRef
41.
Nandakumar, R., & Ackerman, T. (2004). The SAGE handbook of quantitative methodology for the social sciences (pp. 93–105). Thousand Oaks, CA: SAGE Publications.
42.
Tabachnick, B. G., & Fidell, L. S. (2007). Using multivariate statistics (5th ed.). Boston, MA: Pearson Education.
43.
44.
Walters, S. J. (2009). Quality of life outcomes in clinical trials and health-care evaluation: A practical guide to analysis and interpretation. Chichester, UK: Wiley.CrossRef
45.
Kaiser, H. F. (1974). An index of factorial simplicity. Psychometrika, 39(1), 31–36.CrossRef
46.
Pallant, J. (2007). SPSS survival manual: A step by step guide to data analysis using SPSS (3rd ed., p. 181). Sydney, Australia: Allen & Unwin.
47.
Cohen, B. L., Noone, S., Munoz-Furlong, A., & Sicherer, S. H. (2004). Development of a questionnaire to measure quality of life in families with a child with food allergy. Journal of Allergy and Clinical Immunology, 114(5), 1159–1163.PubMedCrossRef
48.
Farnik, M., Brozek, G., Pierzchala, W., Zejda, J. E., Skrzypek, M., & Walczak, L. (2010). Development, evaluation and validation of a new instrument for measurement quality of life in the parents of children with chronic disease. Health and Quality of Life Outcomes, 8, 151.PubMedCentralPubMedCrossRef
49.
Juniper, E. F., Guyatt, G. H., Feeny, D. H., Ferrie, P. J., Griffith, L. E., & Townsend, M. (1996). Measuring quality of life in the parents of children with asthma. Quality of Life Research, 5(1), 27–34.PubMedCrossRef
50.
Weitzner, M. A., Jacobsen, P. B., Wagner, H., Jr, Friedland, J., & Cox, C. (1999). The Caregiver Quality of Life Index-Cancer (CQOLC) scale: Development and validation of an instrument to measure quality of life of the family caregiver of patients with cancer. Quality of Life Research, 8(1–2), 55–63.PubMedCrossRef
51.
Boling, W., Macrina, D. M., & Clancy, J. P. (2003). The Caregiver Quality of Life Cystic Fibrosis (CQOLCF) scale: Modification and validation of an instrument to measure quality of life in cystic fibrosis family caregivers. Quality of Life Research, 12(8), 1119–1126.PubMedCrossRef
52.
Cappelleri, J. C., Gerber, R. A., Quattrin, T., Deutschmann, R., Luo, X., Arbuckle, R., et al. (2008). Development and validation of the WEll-being and Satisfaction of CAREgivers of children with diabetes questionnaire (WE-CARE). Health and Quality of Life Outcomes, 6, 3.PubMedCentralPubMedCrossRef
53.
Basra, M. K., Sue-Ho, R., & Finlay, A. Y. (2007). The family dermatology life quality index: Measuring the secondary impact of skin disease. British Journal of Dermatology, 156(3), 528–538.PubMedCrossRef
54.
McKenna, S. P., Whalley, D., Dewar, A. L., Erdman, R. A. M., Kohlmann, T., Niero, M., et al. (2005). International development of the Parents’ Index of Quality of Life in Atopic Dermatitis (PIQoL-AD). Quality of Life Research, 14(1), 231–241.PubMedCrossRef
55.
Mazer, P., Gischler, S. J., Koot, H. M., Tibboel, D., van Dijk, M., & Duivenvoorden, H. J. (2008). Impact of a child with congenital anomalies on parents (ICCAP) questionnaire; a psychometric analysis. Health and Quality of Life Outcomes, 6, 102.PubMedCentralPubMedCrossRef
56.
Kline, P. (1994). An easy guide to factor analysis. New York: Routledge.
57.
Norman, G. R., & Streiner, D. L. (2008). Biostatistics: The bare essentials (3rd ed.). Shelton, Conn: People’s Medical Publication House.
58.
Bachmann, C., Ackmann, C., Janhsen, E., Steuber, C., Bachmann, H., & Lehr, D. (2010). Clinical evaluation of the short-form pediatric enuresis module to assess quality of life. Neurourology and Urodynamics, 29(8), 1397–1402.PubMedCrossRef
59.
Camfield, C., Breau, L., & Camfield, P. (2001). Impact of pediatric epilepsy on the family: A new scale for clinical and research use. Epilepsia, 42(1), 104–112.PubMedCrossRef
60.
Hatt, S. R., Leske, D. A., Yamada, T., Bradley, E. A., Cole, S. R., & Holmes, J. M. (2010). Development and initial validation of quality-of-life questionnaires for intermittent exotropia. Ophthalmology, 117(1), 163–168.PubMedCentralPubMedCrossRef
61.
Jastrowski Mano, K. E., Khan, K. A., Ladwig, R. J., & Weisman, S. J. (2011). The impact of pediatric chronic pain on parents’ health-related quality of life and family functioning: Reliability and validity of the PedsQL 4.0 Family Impact Module. Journal of Pediatric Psychology, 36(5), 517–527.
62.
Rudraraju, R., Jones, B. G., Sealy, R., Surman, S. L., & Hurwitz, J. L. (2013). Respiratory syncytial virus: Current progress in vaccine development. Viruses, 5(2), 577–594.PubMedCentralPubMedCrossRef
63.
Young, T. (2011). Using PRO data to generate QALYS: Deriving preference-based single index measures from existing measures (Workshop). The International Society of Quality of Life Research 18th Annual Conference; Denver, CO, US.
Metadaten
Titel
Quality of life for parents of children with influenza-like illness: development and validation of Care-ILI-QoL
verfasst von
Maria Yui Kwan Chow
Angela Morrow
Leon Heron
Jiehui Kevin Yin
Robert Booy
Julie Leask
Publikationsdatum
01.04.2014
Verlag
Springer International Publishing
Erschienen in
Quality of Life Research / Ausgabe 3/2014
Print ISSN: 0962-9343
Elektronische ISSN: 1573-2649
DOI
https://doi.org/10.1007/s11136-013-0538-y

Weitere Artikel der Ausgabe 3/2014

Quality of Life Research 3/2014 Zur Ausgabe

OriginalPaper

Equivalence and measurement properties of an electronic version of the Psoriasis Symptom Inventory

Review

A review of patient-reported outcomes for children and adolescents with obesity

OriginalPaper

Quality of life of glaucoma patients in China: sociodemographic, clinical, and psychological correlates—a cross-sectional study

Brief Communication

The EORTC QLQ-C15-PAL questionnaire: validation study for Spanish bone metastases patients

Commentary

Understanding social forces involved in diabetes outcomes: a systems science approach to quality-of-life research

OriginalPaper

Validity and reliability of the Chinese version of the Short Form of Quality of Life Enjoyment and Satisfaction Questionnaire (Q-LES-Q-SF)

Premium Partner

    Bildnachweise