Skip to main content
Erschienen in: Quality of Life Research 2/2016

28.07.2015

Quality of life in women with lipoedema: a contextual behavioral approach

verfasst von: Joanna E. Dudek, Wojciech Białaszek, Paweł Ostaszewski

Erschienen in: Quality of Life Research | Ausgabe 2/2016

Einloggen

Aktivieren Sie unsere intelligente Suche, um passende Fachinhalte oder Patente zu finden.

search-config
loading …

Abstract

Purpose

Lipoedema is a chronic, progressive adipose disorder of unknown etiology, often underdiagnosed or misdiagnosed as obesity. It manifests itself with accumulation of the fat in lower parts of the body and associated edema and, due to numerous physical and psychological consequences, affects the quality of life (QOL) of those who suffer. The aim of this study was to investigate the psychological factors that might have an impact on the QOL of women with lipoedema from the contextual behavioral viewpoint.

Methods

In an Internet-based cross-sectional study, women suffering from lipoedema (N = 120) were asked to fill in questionnaires assessing: symptom severity, QOL (WHOQOL-BREF), satisfaction with life (SWLS), psychological flexibility (Acceptance and Action Questionnaire-II), social connectedness (Social Connectedness Scale-Revised) and other psychological factors. The majority of participants were from the USA, the UK, and Australia.

Results

Multiple hierarchical regression analyses showed that a higher level of QOL was predicted by higher levels of psychological flexibility and social connectedness, while controlling for symptom severity. Higher level of SWL was predicted only by higher level of social connectedness.

Conclusions

Acceptance and Commitment Therapy with psychological flexibility as the target of change and Functional Analytic Psychotherapy with social connectedness as the target of change might be useful in treating women with lipoedema; however, further research in this area is needed. The authors conclude that psychological and biomedical interventions for women with lipoedema and their QOL merit more attention from researchers and the medical community than is currently received.

Sie haben noch keine Lizenz? Dann Informieren Sie sich jetzt über unsere Produkte:

Springer Professional "Wirtschaft+Technik"

Online-Abonnement

Mit Springer Professional "Wirtschaft+Technik" erhalten Sie Zugriff auf:

  • über 102.000 Bücher
  • über 537 Zeitschriften

aus folgenden Fachgebieten:

  • Automobil + Motoren
  • Bauwesen + Immobilien
  • Business IT + Informatik
  • Elektrotechnik + Elektronik
  • Energie + Nachhaltigkeit
  • Finance + Banking
  • Management + Führung
  • Marketing + Vertrieb
  • Maschinenbau + Werkstoffe
  • Versicherung + Risiko

Jetzt Wissensvorsprung sichern!

Springer Professional "Wirtschaft"

Online-Abonnement

Mit Springer Professional "Wirtschaft" erhalten Sie Zugriff auf:

  • über 67.000 Bücher
  • über 340 Zeitschriften

aus folgenden Fachgebieten:

  • Bauwesen + Immobilien
  • Business IT + Informatik
  • Finance + Banking
  • Management + Führung
  • Marketing + Vertrieb
  • Versicherung + Risiko




Jetzt Wissensvorsprung sichern!

Fußnoten
2
Other locations such as: Canada (N = 4), New Zealand (N = 3), Germany (N = 2), South Africa (N = 2), Peru (N = 2), Puerto Rico (N = 2), Egypt (N = 1) Greece (N = 1), Israel (N = 1), Portugal (N = 1), Isle of Man (N = 1), Norway (N = 1). Four participants did not provide their location.
 
3
WHOQOL-BREF, Questionnaire, June 1997, Updated 1/10/2014 retrieved from http://​depts.​washington.​edu/​seaqol/​WHOQOL-BREF.
 
Literatur
1.
Zurück zum Zitat Langendoen, S. I., Habbema, L., Nijsten, T. E. C., & Neumann, H. A. M. (2009). Lipoedema: From clinical presentation to therapy. A review of the literature. British Journal of Dermatology, 161(5), 980–986.CrossRefPubMed Langendoen, S. I., Habbema, L., Nijsten, T. E. C., & Neumann, H. A. M. (2009). Lipoedema: From clinical presentation to therapy. A review of the literature. British Journal of Dermatology, 161(5), 980–986.CrossRefPubMed
3.
Zurück zum Zitat Földi, M., & Földi, E. (2006). Földi’s textbook of lymphology: For physicians and lymphedema therapists (2nd ed.). Munich: Elsevier. Földi, M., & Földi, E. (2006). Földi’s textbook of lymphology: For physicians and lymphedema therapists (2nd ed.). Munich: Elsevier.
4.
Zurück zum Zitat Bosman, J. (2011). Lipedema: Poor knowledge, neglect or disinterest? Journal of Lymphoedema, 6(2), 109. Bosman, J. (2011). Lipedema: Poor knowledge, neglect or disinterest? Journal of Lymphoedema, 6(2), 109.
5.
Zurück zum Zitat Fife, C. E., Maus, E. A., & Carter, M. J. (2010). Lipedema: A frequently misdiagnosed and misunderstood fatty deposition syndrome. Advances in Skin & Wound Care, 23(2), 81–92.CrossRef Fife, C. E., Maus, E. A., & Carter, M. J. (2010). Lipedema: A frequently misdiagnosed and misunderstood fatty deposition syndrome. Advances in Skin & Wound Care, 23(2), 81–92.CrossRef
6.
Zurück zum Zitat Seo, C. A. (2014). You mean it’s not my fault: Learning about lipedema, a fat disorder. Narrative Inquiry in Bioethics, 4(2), E6–E9.CrossRefPubMed Seo, C. A. (2014). You mean it’s not my fault: Learning about lipedema, a fat disorder. Narrative Inquiry in Bioethics, 4(2), E6–E9.CrossRefPubMed
7.
Zurück zum Zitat Hayes, S. C., Barnes-Holmes, D., & Wilson, K. G. (2012). Contextual behavioral science: Creating a science more adequate to the challenge of the human condition. Journal of Contextual Behavioral Science, 1, 1–16.CrossRef Hayes, S. C., Barnes-Holmes, D., & Wilson, K. G. (2012). Contextual behavioral science: Creating a science more adequate to the challenge of the human condition. Journal of Contextual Behavioral Science, 1, 1–16.CrossRef
8.
Zurück zum Zitat Hayes, S. C., Strosahl, K. D., & Wilson, K. G. (2011). Acceptance and Commitment Therapy: The process and practice of mindful change (2nd ed.). New York: The Guilford Press. Hayes, S. C., Strosahl, K. D., & Wilson, K. G. (2011). Acceptance and Commitment Therapy: The process and practice of mindful change (2nd ed.). New York: The Guilford Press.
9.
Zurück zum Zitat Tsai, M., Kohlenberg, R. J., Kanter, J. W., Kohlenberg, B., Follette, W. C., & Callaghan, G. M. (2008). A guide to Functional Analytic Psychotherapy: Awareness, courage, love, and behaviorism. New York: Springer Science & Business Media. Tsai, M., Kohlenberg, R. J., Kanter, J. W., Kohlenberg, B., Follette, W. C., & Callaghan, G. M. (2008). A guide to Functional Analytic Psychotherapy: Awareness, courage, love, and behaviorism. New York: Springer Science & Business Media.
10.
Zurück zum Zitat Bond, F. W., Hayes, S. C., Baer, R. A., Carpenter, K. M., Guenole, N., Orcutt, H. K., et al. (2011). Preliminary psychometric properties of the Acceptance and Action Questionnaire-II: A revised measure of psychological inflexibility and experiential avoidance. Behavior Therapy, 42(4), 676–688.CrossRefPubMed Bond, F. W., Hayes, S. C., Baer, R. A., Carpenter, K. M., Guenole, N., Orcutt, H. K., et al. (2011). Preliminary psychometric properties of the Acceptance and Action Questionnaire-II: A revised measure of psychological inflexibility and experiential avoidance. Behavior Therapy, 42(4), 676–688.CrossRefPubMed
11.
Zurück zum Zitat Kashdan, T. B., & Rottenberg, J. (2010). Psychological flexibility as a fundamental aspect of health. Clinical Psychology Review, 30(7), 865–878.PubMedCentralCrossRefPubMed Kashdan, T. B., & Rottenberg, J. (2010). Psychological flexibility as a fundamental aspect of health. Clinical Psychology Review, 30(7), 865–878.PubMedCentralCrossRefPubMed
12.
Zurück zum Zitat Lundgren, T., Dahl, J., & Hayes, S. C. (2008). Evaluation of mediators of change in the treatment of epilepsy with Acceptance and Commitment Therapy. Journal of Behavioral Medicine, 31(3), 225–235.CrossRefPubMed Lundgren, T., Dahl, J., & Hayes, S. C. (2008). Evaluation of mediators of change in the treatment of epilepsy with Acceptance and Commitment Therapy. Journal of Behavioral Medicine, 31(3), 225–235.CrossRefPubMed
13.
Zurück zum Zitat Wicksell, R. K., Kemani, M., Jensen, K., Kosek, E., Kadetoff, D., Sorjonen, K., et al. (2013). Acceptance and Commitment Therapy for fibromyalgia: A randomized controlled trial. European Journal of Pain, 17(4), 599–611.CrossRefPubMed Wicksell, R. K., Kemani, M., Jensen, K., Kosek, E., Kadetoff, D., Sorjonen, K., et al. (2013). Acceptance and Commitment Therapy for fibromyalgia: A randomized controlled trial. European Journal of Pain, 17(4), 599–611.CrossRefPubMed
14.
Zurück zum Zitat Vowles, K. E., & McCracken, L. M. (2008). Acceptance and values-based action in chronic pain: A study of treatment effectiveness and process. Journal of Consulting and Clinical Psychology, 76(3), 397–407.CrossRefPubMed Vowles, K. E., & McCracken, L. M. (2008). Acceptance and values-based action in chronic pain: A study of treatment effectiveness and process. Journal of Consulting and Clinical Psychology, 76(3), 397–407.CrossRefPubMed
15.
Zurück zum Zitat Lillis, J., Luoma, J. B., Levin, M. E., & Hayes, S. C. (2010). Measuring weight self-stigma: The Weight Self-stigma Questionnaire. Obesity, 18(5), 971–976.CrossRefPubMed Lillis, J., Luoma, J. B., Levin, M. E., & Hayes, S. C. (2010). Measuring weight self-stigma: The Weight Self-stigma Questionnaire. Obesity, 18(5), 971–976.CrossRefPubMed
16.
Zurück zum Zitat Lillis, J., & Kendra, K. E. (2014). Acceptance and Commitment Therapy for weight control: Model, evidence, and future directions. Journal of Contextual Behavioral Science, 3(1), 1–7.PubMedCentralCrossRefPubMed Lillis, J., & Kendra, K. E. (2014). Acceptance and Commitment Therapy for weight control: Model, evidence, and future directions. Journal of Contextual Behavioral Science, 3(1), 1–7.PubMedCentralCrossRefPubMed
17.
Zurück zum Zitat Pearson, A. N., Follette, V. M., & Hayes, S. C. (2012). A pilot study of Acceptance and Commitment Therapy as a workshop intervention for body dissatisfaction and disordered eating attitudes. Cognitive and Behavioral Practice, 19(1), 181–197.CrossRef Pearson, A. N., Follette, V. M., & Hayes, S. C. (2012). A pilot study of Acceptance and Commitment Therapy as a workshop intervention for body dissatisfaction and disordered eating attitudes. Cognitive and Behavioral Practice, 19(1), 181–197.CrossRef
18.
Zurück zum Zitat Kanter, J. W., Holman, G., Wetterneck, C. T., Tsai, M., & Kohlenberg, R. J. (2014). A new contextual behavioral model for social connection for Functional Analytic Psychotherapy. In Presented at the symposium presented at the Association for Contextual Behavioral Science 12th Annual World Conference, Minneapolis, MN. Kanter, J. W., Holman, G., Wetterneck, C. T., Tsai, M., & Kohlenberg, R. J. (2014). A new contextual behavioral model for social connection for Functional Analytic Psychotherapy. In Presented at the symposium presented at the Association for Contextual Behavioral Science 12th Annual World Conference, Minneapolis, MN.
19.
Zurück zum Zitat Reis, H. T., & Shaver, P. R. (1988). Intimacy as an interpersonal process. In S. Duck (Ed.), Handbook of research in personal relationships (pp. 367–389). London: Wiley. Reis, H. T., & Shaver, P. R. (1988). Intimacy as an interpersonal process. In S. Duck (Ed.), Handbook of research in personal relationships (pp. 367–389). London: Wiley.
20.
Zurück zum Zitat Seppala, E., Rossomando, T., & Doty, J. R. (2013). Social connection and compassion: Important predictors of health and well-being. Social Research, 80(2), 411–430. Seppala, E., Rossomando, T., & Doty, J. R. (2013). Social connection and compassion: Important predictors of health and well-being. Social Research, 80(2), 411–430.
22.
Zurück zum Zitat Mangabeira, V., Kanter, J., & Del Prette, G. (2012). Functional Analytic Psychotherapy (FAP): A review of publications from 1990 to 2010. International Journal of Behavioral Consultation and Therapy, 7(2–3), 78–89.CrossRef Mangabeira, V., Kanter, J., & Del Prette, G. (2012). Functional Analytic Psychotherapy (FAP): A review of publications from 1990 to 2010. International Journal of Behavioral Consultation and Therapy, 7(2–3), 78–89.CrossRef
23.
Zurück zum Zitat Diener, E., Emmons, R. A., Larsen, R. J., & Griffin, S. (1985). The Satisfaction with Life Scale. Journal of Personality Assessment, 49(1), 71.CrossRefPubMed Diener, E., Emmons, R. A., Larsen, R. J., & Griffin, S. (1985). The Satisfaction with Life Scale. Journal of Personality Assessment, 49(1), 71.CrossRefPubMed
24.
Zurück zum Zitat Pavot, W., & Diener, E. (2008). The Satisfaction with Life Scale and the emerging construct of life satisfaction. The Journal of Positive Psychology, 3(2), 137–152.CrossRef Pavot, W., & Diener, E. (2008). The Satisfaction with Life Scale and the emerging construct of life satisfaction. The Journal of Positive Psychology, 3(2), 137–152.CrossRef
25.
Zurück zum Zitat The WHOQOL Group. (1998). Development of the World Health Organization WHOQOL-BREF quality of life assessment. Psychological Medicine, 28(3), 551–558.CrossRef The WHOQOL Group. (1998). Development of the World Health Organization WHOQOL-BREF quality of life assessment. Psychological Medicine, 28(3), 551–558.CrossRef
26.
Zurück zum Zitat Skevington, S. M., Lotfy, M., O’Connel, K. A., & WHOQOL Group. (2004). The World Health Organization’s WHOQOL-BREF quality of life assessment: Psychometric properties and results of the international field trial. A report from the WHOQOL group. Quality of Life Research, 13(2), 299–310.CrossRefPubMed Skevington, S. M., Lotfy, M., O’Connel, K. A., & WHOQOL Group. (2004). The World Health Organization’s WHOQOL-BREF quality of life assessment: Psychometric properties and results of the international field trial. A report from the WHOQOL group. Quality of Life Research, 13(2), 299–310.CrossRefPubMed
27.
Zurück zum Zitat Berlim, M. T., Pavanello, D. P., Caldieraro, M. A. K., & Fleck, M. P. (2005). Reliability and validity of the WHOQOL BREF in a sample of Brazilian outpatients with major depression. Quality of Life Research, 14(2), 561–564.CrossRefPubMed Berlim, M. T., Pavanello, D. P., Caldieraro, M. A. K., & Fleck, M. P. (2005). Reliability and validity of the WHOQOL BREF in a sample of Brazilian outpatients with major depression. Quality of Life Research, 14(2), 561–564.CrossRefPubMed
28.
Zurück zum Zitat Gloster, A. T., Klotsche, J., Chaker, S., Hummel, K. V., & Hoyer, J. (2011). Assessing psychological flexibility: What does it add above and beyond existing constructs? Psychological Assessment, 23, 970–982.CrossRefPubMed Gloster, A. T., Klotsche, J., Chaker, S., Hummel, K. V., & Hoyer, J. (2011). Assessing psychological flexibility: What does it add above and beyond existing constructs? Psychological Assessment, 23, 970–982.CrossRefPubMed
29.
Zurück zum Zitat Lee, R. M., Draper, M., & Lee, S. (2001). Social connectedness, dysfunctional interpersonal behaviors, and psychological distress: Testing a mediator model. Journal of Counseling Psychology, 48(3), 310–318.CrossRef Lee, R. M., Draper, M., & Lee, S. (2001). Social connectedness, dysfunctional interpersonal behaviors, and psychological distress: Testing a mediator model. Journal of Counseling Psychology, 48(3), 310–318.CrossRef
30.
Zurück zum Zitat Raes, F., Pommier, E., Neff, K. D., & Van Gucht, D. (2011). Construction and factorial validation of a short form of the Self-Compassion Scale. Clinical Psychology & Psychotherapy, 18, 250–255.CrossRef Raes, F., Pommier, E., Neff, K. D., & Van Gucht, D. (2011). Construction and factorial validation of a short form of the Self-Compassion Scale. Clinical Psychology & Psychotherapy, 18, 250–255.CrossRef
31.
Zurück zum Zitat Sandoz, E. K., Wilson, K. G., Merwin, R. M., & Kellum, K. (2013). Assessment of body image flexibility: The Body Image-Acceptance and Action Questionnaire. Journal of Contextual Behavioral Science, 2(1–2), 39–48.CrossRef Sandoz, E. K., Wilson, K. G., Merwin, R. M., & Kellum, K. (2013). Assessment of body image flexibility: The Body Image-Acceptance and Action Questionnaire. Journal of Contextual Behavioral Science, 2(1–2), 39–48.CrossRef
32.
Zurück zum Zitat Evans, C., & Dolan, B. (1993). Body Shape Questionnaire: Derivation of shortened “alternate forms”. International Journal of Eating Disorders, 13(3), 315–321.CrossRefPubMed Evans, C., & Dolan, B. (1993). Body Shape Questionnaire: Derivation of shortened “alternate forms”. International Journal of Eating Disorders, 13(3), 315–321.CrossRefPubMed
33.
Zurück zum Zitat Fairburn, C. G., & Beglin, S. J. (1994). Assessment of eating disorder psychopathology: Interview or self-report questionnaire? International Journal of Eating Disorders, 16, 363–370.PubMed Fairburn, C. G., & Beglin, S. J. (1994). Assessment of eating disorder psychopathology: Interview or self-report questionnaire? International Journal of Eating Disorders, 16, 363–370.PubMed
34.
Zurück zum Zitat Leonard, R. C., Knott, L. E., Lee, E. B., Singh, S., Smith, A. H., Kanter, J., et al. (2014). The development of the Functional Analytic Psychotherapy Intimacy Scale. The Psychological Record, 64(4), 647–657.CrossRef Leonard, R. C., Knott, L. E., Lee, E. B., Singh, S., Smith, A. H., Kanter, J., et al. (2014). The development of the Functional Analytic Psychotherapy Intimacy Scale. The Psychological Record, 64(4), 647–657.CrossRef
35.
Zurück zum Zitat McCracken, L. M. (2013). Committed action: An application of the psychological flexibility model to activity patterns in chronic pain. The Journal of Pain, 14(8), 828–835.CrossRefPubMed McCracken, L. M. (2013). Committed action: An application of the psychological flexibility model to activity patterns in chronic pain. The Journal of Pain, 14(8), 828–835.CrossRefPubMed
36.
Zurück zum Zitat Champey, J., Corruble, E., Gottenberg, J., Buhl, C., Meyer, T., Caudmont, C., et al. (2006). Quality of life and psychological status in patients with primary Sjögren’s syndrome and sicca symptoms without autoimmune features. Arthritis Care & Research, 55(3), 451–457.CrossRef Champey, J., Corruble, E., Gottenberg, J., Buhl, C., Meyer, T., Caudmont, C., et al. (2006). Quality of life and psychological status in patients with primary Sjögren’s syndrome and sicca symptoms without autoimmune features. Arthritis Care & Research, 55(3), 451–457.CrossRef
37.
Zurück zum Zitat Chen, H., Gould, M. K., Blanc, P. D., Miller, D. P., Kamath, T. V., Lee, J. H., & Sullivan, S. D. (2007). Asthma control, severity, and quality of life: Quantifying the effect of uncontrolled disease. Journal of Allergy and Clinical Immunology, 120(2), 396–402.CrossRefPubMed Chen, H., Gould, M. K., Blanc, P. D., Miller, D. P., Kamath, T. V., Lee, J. H., & Sullivan, S. D. (2007). Asthma control, severity, and quality of life: Quantifying the effect of uncontrolled disease. Journal of Allergy and Clinical Immunology, 120(2), 396–402.CrossRefPubMed
38.
Zurück zum Zitat Danieli, E., Airò, P., Bettoni, L., Cinquini, M., Antonioli, C. M., Cavazzana, I., et al. (2005). Health-related quality of life measured by the Short Form 36 (SF-36) in systemic sclerosis: Correlations with indexes of disease activity and severity, disability, and depressive symptoms. Clinical Rheumatology, 24(1), 48–54.CrossRefPubMed Danieli, E., Airò, P., Bettoni, L., Cinquini, M., Antonioli, C. M., Cavazzana, I., et al. (2005). Health-related quality of life measured by the Short Form 36 (SF-36) in systemic sclerosis: Correlations with indexes of disease activity and severity, disability, and depressive symptoms. Clinical Rheumatology, 24(1), 48–54.CrossRefPubMed
39.
Zurück zum Zitat Hahn, B. A., Kirchdoerfer, L. J., Fullerton, S., & Mayer, E. (1997). Patient-perceived severity of irritable bowel syndrome in relation to symptoms, health resource utilization and quality of life. Alimentary Pharmacology & Therapeutics, 11(3), 553–559.CrossRef Hahn, B. A., Kirchdoerfer, L. J., Fullerton, S., & Mayer, E. (1997). Patient-perceived severity of irritable bowel syndrome in relation to symptoms, health resource utilization and quality of life. Alimentary Pharmacology & Therapeutics, 11(3), 553–559.CrossRef
40.
Zurück zum Zitat Welch, G., Weinger, K., & Barry, M. J. (2002). Quality-of-life impact of lower urinary tract symptom severity: Results from the health professionals follow-up study. Urology, 59(2), 245–250.CrossRefPubMed Welch, G., Weinger, K., & Barry, M. J. (2002). Quality-of-life impact of lower urinary tract symptom severity: Results from the health professionals follow-up study. Urology, 59(2), 245–250.CrossRefPubMed
41.
Zurück zum Zitat Belsley, D. (1991). Conditioning diagnostics: Collinearity and weak data in regression. New York: Wiley. Belsley, D. (1991). Conditioning diagnostics: Collinearity and weak data in regression. New York: Wiley.
Metadaten
Titel
Quality of life in women with lipoedema: a contextual behavioral approach
verfasst von
Joanna E. Dudek
Wojciech Białaszek
Paweł Ostaszewski
Publikationsdatum
28.07.2015
Verlag
Springer International Publishing
Erschienen in
Quality of Life Research / Ausgabe 2/2016
Print ISSN: 0962-9343
Elektronische ISSN: 1573-2649
DOI
https://doi.org/10.1007/s11136-015-1080-x

Weitere Artikel der Ausgabe 2/2016

Quality of Life Research 2/2016 Zur Ausgabe